New Member

Hello,

I'm new here so i just wanted to say hi to everyone.

I want to get some advice about PD. I currently care for my Grandmother full time...she has pd for about 7/8 years.

I wonder what stage she is in......she takes Carpidoba 5 times a day along with a pill that helps her pd meds last longer so she doesn't shake before her next dose.

I asked her how it feels when she has the shakes.....she says it is her right arm and inside her body. She is unsure of how to describe it. She bobs her head a lot (i have noticed it is more and faster since January 2010). she was on xanax but I weaned her off because I don't think she needs them (she is just fine without). everyday she has about one hour to two hours where she feels weak (flu like symptoms) but if someone talks to her about anything. She forgets a lot, I got her a slurrpie from 7-11 and when she was talking to a friend on the phone she could not remember what it was called. She recently hallucinated that there was a man in her house and called the police, a neighbor, and my father who lives next door. They talked and she came to the realization that is was just a dream. She is a person who loves to shop and be on the go....now she barely leaves the house. I have gotten her out more often but not for long because then she starts to get a weak spell. She walks with a cane but kinda walks sideways at times, and she shuffles her feet all the time.

I will be taking her to er pd doctors in a couple of weeks, what are some things i should ask him. i want to get some advice to better handle things when it gets worse.

Any advice would be greatly appreciated!!!! :)


thanks a bunch
"BaileyRenee"

Welcome to the Parkinson's Forum here on Healing Well.  I was diagnosed with PD when I was in my late 40's and then rediagnosed with Atypical PD or better known as MSA (Multiple System Atropy)  when my symptoms spiralled out of control rapidly and I maxed out on my medications within two years.  I have experienced tremors, gait problems, muscle rigidity and stiffness, swallowing problems, eye movements problems and a wide variety of other problems.  Please let me know what type of information you are looking for and we will all try and answer your questions.  There are usually not many people interested in chatting about PD on this site.  There are several other sites that have more open chats.  On site the meets regularly is Judith's Edge of the Forest. You can google it for the exate website address.