Advanced PD signs?

I hope that someone can help me. I am a 75-year-old man diagnosed with PD 10 years ago. Until about a year and a half ago the only manifestation of my PD was very slow walking and am occasional tremor in my right hand. Since then my disease has gone through a number of different phases. I have recently been re-
diagnosed as having advanced PD. For the past month my mornings are characterized by slow walking. Around 3 p.m. my slowness changes to hardly moving at all. After about an hour of this my PD takes a new and devastating form. My entire body shakes violently [in fact my hands are shaking so much that I'm forced to type this with only the index finger of my right hand.] Additionally my feet "freeze" to the floor and my hands "freeze" into claw-like shapes and I have strong cramping. My vision is often blurred. I often have serious memory problems and recently I have difficulty with getting words out of my mouth. I also have violent tremors in my lips and my mouth. When I experience these severe motor fluctuations I have great problems in swallowing for fear of choking.
I hate to have so many complaints, but my legs often feel like they won't support me and this is particularly scary because although my legs feel very weak I find that I can walk VERY FAST and I sometimes have to prevent myself from running.

I always use my cane and am frequently using my PD walker. I was also diagnosed with Gastroparesis about 2 years ago and have lost nearly 90 pounds
since that diagnosis. I thought I had it under control when I started taking Domperidone but I think it has returned because of my stomach pain when I am in my violent tremors times.

Luckily I do not experience hallucinations or nightmares although I did have the latter about 2 years ago. I find that I have become very forgetful recently.
My current meds are: 18.5 Sinemet [averaging about 2 every other hour from 6 a.m. until 11 p.m. ; 8 Comtan [1 every 2 hours from 9 a.m. til 9 p.m.; 2 Lorazepam [each 0.5 mg--1 at noon and 1at bedtime]; 1 Exelon; 1 mg og Zoloft [9 a.m.]; 1 Omneprazole; 1 Dexilant [both in the morning]; 3 Domperidone [1 before each meal.

Finally, I was recently cleared of any urinary tract infection.

And finally I get to my question: are some, or all of these symptoms that one might find in end-stage PD? I don't fear the truth but things are hapening so rapidly that I have become suspicious and want to prepare myself and my family.
One final thing to mention is that I have an enormous buildup of phlegm that is quite hard to clear.

I have my next neurology at Rush University PD Movement Disorders on 29 August and wonder if I should get an earlier appointment.

Thank you ever so much for your patience in reading my long letter but things are moving so fast that I'm very concerned. I apologize for the typos but I have been at this letter for nearly 3 hours and have reached the point of exhaustion.

Sincerely yours and my heartfelt thanks,

ives

Dear Violet Rose,

Thank you for your response. I am encouraged by many of the things you wrote about the persistence and patience of your father. I wish him, and your family, well in his fight.

In many ways, I am very lucky--one is that I have a little dog who insists that I walk with him twice a day--not very fast walks, but we do get out about 20 minutes each time. I continue to be amazed at his intuitiveness (if that's the correct word). He knows that something is wrong with me and he becomes very protective when I'm really having problems.

Thank you again for your encouragement.

ives

Hi Ives,

You are an inspirtation to most of us.

My father is fighting advance stage Alzheimer's and diagnosed with Parkinson some 6 months ago.

I would not really like to advise on the stage of your PD, because opinions vary from doctor to doctor and "patient to patient".
But regarding phlegm formation, I can advise you to get mouthwash done.If Phlegm is coming out of mouth, it is relatively better because otherwise it can cause chest congestion.My father had tremendous chest congestion and Phlegm was so thick that it used to get deposited in mouth and chest.Now to clear mouth deposit he gets mouthwash done from a technical nurse as it can't be removed on own, doctor has advised him medicinal gels as well so that it does not turn into fungal infection and spreads.Also, I would advise you to take Phsyiotherapy session once a day.It would help in walking,overall health and reducing chest congestion.

I believe you have a long way to go, just that you need to take more care and precaution.

More later

Regards