I'm hoping that someone will share their experiences w/ PD from both an emotional and physical aspect and perhaps provide me with some information on different drugs and therapies that have been tried.
My MIL has suffered from a benign tremor in her head and right side for years. about two years ago, her health began to downward spiral. Her tremors consistently became more severe, spreading throughout her arms, legs, hands and feet and her emotional health was compromised by several deaths in the family as well as general emotional stress. She suffered a "near" nervous breakdown and would go days without getting out of the bed.
She went to two neurologists and saw her internist on quite a few occasions and finally, this past November was given about as formal of a PD diagnosis as she could get. Naturally, the diagnosis has been very difficult for our family.
My mother in law, I know for sure has been prescribed by one neurologist Sinemet and I believe she's also been prescribed Levadopa or a drug very similar. She has refused to take either, stating that her neurologist claims that both drugs can cause negative and irriversable health problems as well as make her terribly ill with nausea, fatigue and headache while she takes them. This has been incredibly disheartening and confusing news to me. For one, I was under the impression that these drugs can improve the quality of life of a PD patient. I'm wondering if ANYONE can share their personal experiences with either of these drugs and perhaps provide me with statistical information or a directive as to where I can find some sort of statistical information on the percentage of people who do experience such side effects.
She finally accepted and started on the drug Requip, per her neurologist's orders. She took the drug for four weeks and weaned herself off of it. She said that it makes her incredibly shakey and ill and refuses to continue. That of course, is her choice but she's terribly discouraged. The discouragement and resulting depression only fuels her PD and I feel helpless watching her deteriorate so quickly. She's not even sixty years old and her condition has quickly progressed within such a short time span.
I'm just having a very difficult time accepting that this is it...there's no hope. There has to be hope. And I'm searching for this hope anywhere I can find it because if I can give her anything...I want to give her hope that she CAN live a life of quality and that as a family, we can get through this. I'm just desperately trying to find out as much as I can and learn as much from others and their personal experiences as I can so that I can be a healthy support unit for her. I love her very much and want her to enjoy her life and her grandchildren for years and years to come.
Thank you very much.