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Parkinson's Disease
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Posted 5/25/2007 9:50 PM (GMT 0)
Looking for advice, as what to do, because I am at my wit's end. 

 

I was doing quite nicely on Permax for about a year and a half , and then we all know what happened with that.  Also taking regular Sinmet with that.

 

My neurologist added rasagiline and Comtan to my regular Sinemet.  I seemed to get worse, and after about a week, he advised to stop the Comtan, sent me a script for Sinemet CR, but told me not to fill it.

 

In frustration, I went to  a different neurologist who added the Sinemet CR (1/2 pill 4X day), and paralodel (bromocriptine), starting at 1/2 pill for 5 days; then increase to 1 pill and now I am up to 1-1/2 pills of parladel 4X/day.  This is what I am on now:

 

6am                     10 am         2pm         6pm

2 Sinemet             1-1/2        1-1/2       1-1/2

1/2 Sinemet CR      1/2              1/2       1/2

1 Azilect (6 am only)

1-1/2 parladel    (6, 10, 2 6pm)

 

I am getting no relief and have been on this regimen for 3 weeks.

 

Does this sound normal to anyone? 

Has anyone heard of Zelapar (tablet dissolved in mouth Sinemet). 

 

I'm so frustrated and don't know what to do.

 

Thank you all.

 

JPaul

 

 

Posted 5/26/2007 12:37 AM (GMT 0)
JPaul,that is a long haul for no sinemet.Even with cr.At least it would be for me.I'm referring to the 6pm to 6am stretch.you might ask the neuro if you could cut that time period down say from 10 pm to 6 am.That would put you at less of a deficit in the am.With your timing I'd be playing catch up during the day.First check with your neuro.Best wishes Ed
Posted 5/26/2007 6:19 AM (GMT 0)
JPaul

What are your main symptoms?

pjh
Posted 5/27/2007 1:57 AM (GMT 0)
Hard to pinpoint - no sense of wellbeing whatsover - anxiety most of the time, stiffness, swaying, I look like I am drunk or drugged during the day; pain in legs, cramping of toes (curling under). 

Yekkimo - Thank you for your comments.  I will suggest to my neurologist (whoever the next one will be) to dose later at night in order to close up on the time.  However, it is strange that early morning before my first does I actually feel ok.  It's AFTER I dose that things start getting hairy and continue throughout the day. 

Posted 5/27/2007 1:25 PM (GMT 0)
you're taking a lot of medicines and in my own opinion this make your symptoms   worst. Ask your neurologist if you could eliminate some of this. In my experience taking a lot of med make me stiff and muscle cramps in the legs and the more I can't walk. I have PD for 16 years and still working full time. I'm managing my own medications, adjusting and eliminating of some medicines.
Posted 5/28/2007 10:06 PM (GMT 0)
To counteract the sleepiness one of my doctors (not the neurologist) has suggested that I take Provigil.  After reading about it on the internet I am not going to try it until I get more info about it.  I don't want to keep taking things to counteract the side effects of others.  After awhile you are Elvis, taking handfulls of pills.  As I tell my own clients though some meds are necessary and if they work right you just feel normal, and wouldn't we like to be there again?  Does anyone know anything about Provigil?  I will be checking with some other doctors this week also and will let you know what I find out.

Post Edited (gtmriviera) : 5/28/2007 4:45:40 PM (GMT-6)

Posted 6/3/2007 5:38 AM (GMT 0)
Provigil is medication to treat excessive sleepiness cause by sleep disorder such narcolepsy and apnea. It was prescribed to me before  because I'm taking Mirapex, but I never took it. Instead I kept myself active and busy that made me awake all day long.
Posted 6/3/2007 11:18 AM (GMT 0)
Yes.  I can see that.  Thanks for the info.
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