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Back Pain/Inflexibility

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Parkinson's Disease
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Posted 9/9/2008 3:01 PM (GMT 0)
I have had PD for ten years and have done very well...thankfully.  I take my meds, as well as a number of others for diabetes, high blood pressure, etc.  (I have what I believe to be one of the largest daily pill holders known to man/womankind.) At 62 and ten years in, I feel fortunate, but still have days I want to hide under a table or desk, assume the fetal position, and suck my thumb.  I allow a bit of serious wallowing, but not for long, and then it is time to get up and get on with life.

 

My question to those of you in the forum is: Do you experience low back pain/inflexibility when you get out of bed in the morning?  I can't find any resources about these other than vague ones related to inflexibility.  Also, when I sit and watch tv or chat and when I ride/drive for even fifteen minutes, I have a little difficulty getting up and even more getting out of the car.

 

I am aware that it "could" be my age contributing to this and also know I need to get into some sort of exercise class and/or walk.  It seems somewhat like that thing about "the cure will kill you."  It is very hard to do anything physical when it hurts, but doing something physical does seem to help.

 

Thoughts? Ideas? Comments? Suggestions?

Posted 9/9/2008 11:47 PM (GMT 0)
Hello JudeD -

I was diag in 2001 and I also have experienced pain in my lower back, especially after sitting for a while. Took a while to straighten up. Had to pour myself out of a car. Bending over for me was especially difficult. such as picking something up off the floor or unloading the dishwasher. And getting out of bed was a monumental task. My pain and stiffness was also in my knees - after they were in a sitting position for a while it took forever it seemed to straighten them.

What I want to share with you the thing that really helped me was a couple of months ago my pd med was increased to a higher dosage and it made such a difference. I also was attributing this pain and stiffness to "getting older", but I now believe itt is just part of living with Mr. P. Since increasing my med I still have some stiffness in my back getting out of bed, but nothing like it was. Another thing I do before getting out of bed is to stretch in as many different directions as I can as far as I can. And that really helps me. Yes, it hurts some, but it is worth it. Right now I am doing very well.

You might want to discuss your meds with your neurolog. and see what he thinks.

A friend that I had not seen in a month came to see me this week and she commented in amazement that I "just popped right up off of the sofa".

I hope this helps in some way - in re-reading your comments, I know exactly what you are talking about.
Posted 9/10/2008 7:57 AM (GMT 0)
JudeD,

I've been diagnosed for 12 years and am doing pretty well. My main symptom is muscle rigidity, dyskinesias in my legs, and intense upper and lower back pain. I have a kiphosis (humping of upper back) which makes worse any of the rigidity pain/cramps with the PD. I now get a massage every other week which really helps break the pain cycle and also do gentle yoga class several times a week which also helps. I still find that sitting for even a short period starts the back spasms, as does having to stand for a time. Like standing over the sink to do dishes or cook is painful and I often need to stop and lay horizontal on my couch for 10 mins and then get up again. Many of my friends say it's just old age (I am 59) but i think it is different.
Posted 9/17/2008 9:37 PM (GMT 0)
JudeD--
I've just been dianosed w/PD. I had back problems for years prior. Always varying degrees of painful. They could never find what was wrong. Xrays and MRIs always showed almost a perfect back. I then began to suspect PD.
Posted 8/29/2009 9:08 PM (GMT 0)
Pain is how my PD started. It took the Dr 2 1/2 yrs to dianosed my with PD. I also have pain in my lower back. My walking is limited due to pain also. I can't sit for more that 20 min before I need to get up and walk around my house. I am taking at this time, Tramadol, Muscles relaxer, and Methadone. Some days I hurt so bad the pills do not work. My left leg gives me the most pain. I too have trouble getting out of bed in the morning. I have to pull myself up using the head board.
Posted 10/4/2009 9:55 PM (GMT 0)
i am a new diagnose pd pt..i am taking stalavo for tremers,but i am also having severe low back pain in the am,and as i get tired,tylynol doesnt seem to work,any ideas?? thanks turn rolleyes
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