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Parkinson's Disease
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Posted 10/4/2004 11:00 AM (GMT 0)

Hello,

Over the last year I have experienced twitches, no particular spot, seems to random. Over the last month ive noticed a wierd red spotted rash that comes and goes (within hours) on my hands by my thumb and index fingers. My twitches have been alot more apparent the last few weeks with the addition of aches, alway randon no set location. Also a couple times right when I fall asleep I have awaken seemingly startled jump up kinda thing like someone dropped a bomb. Also I can feel my stomache have spasms (I have Crohn's disease) now when I feel my left side of my stomache move sometimes now this feeling goes down my leg as well. As well my lower ye lid became sore yesterday for no apparent reason it was if it was bruised or something and but looked fine if I touched ia certain part if felt bruised. Like the rash it lasted a few hours an has now pretty much subsided... I have an appt with my doctor to mention these new problems just curious if anyone knows if this sounds likem parkinsons.. dont worry I am seeking medical attention ! Ive been told in the past these twitches are anxiety but have never had any tests and now with the aches.... and rash...I wonder. To me something seems wrong, but I am a very anxious person, but can symptoms of anxiety manifest when there doesnt even appear to be any anxiety present

Posted 11/19/2004 1:04 AM (GMT 0)
Sounds sort of similar to my experience. Everyone in my family has lyme disease and had a devil of a time getting diagnosed. We thought my daughter had kidney disease; thought I was getting old. But that didn't completely explain all the symptoms. I had lots of twitches in hands and face, sore heels and feet, aching legs and knees, shooting hip pain, flashing lights and floaters in my eyes (and eye pain and burning) balance problems (tripping over my own feet) and exhaustion. That's not the whole list and it didn't happen all at the same time. Symptoms come and go. We were tested LOTS of times with the ELISA lyme test which was always negative. My daughter finally tested positive on the Western Blot test and started treatment last year. That's when I figured out that I must have the same thing. I tested positive through IgeneX lab in California and then through other tests. We never had a positive ELISA test (which is what most of the doctors use).

My father had Parkinsons, my mother was diagnosed with Parkinsons and myesthenia gravis. It turns out that 1/4 of their neighbors (where I grew up ) have been diagnosed with lyme disease. Lyme can cause Parkinson's symptoms. Looking back at my mother's symptoms, we all strongly feel that she probably had lyme. My suggestion is to be thoroughly tested through IgeneX or another very reputable lyme lab (I think there is one in PA). My experience has been that most doctors rely only on the ELISA test to defintively say that you do not have lyme...although the CDC has stated that lyme is a clinical diagnosis (not one to be made only by tests).

The following is a very good web site with lists of symptoms, testing and treatment.
http://www.lymepa.org/Basics2004v4_3.pdf

Just have an open mind...I didn't and now my daughter has been bedridden for over 2 years and is just starting to improve. I don't want anyone to be in my position and regret not having looked into lyme years ago as a possible cause for my family's illnesses.
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