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Parkinson's Disease
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Posted 6/26/2010 9:04 PM (GMT 0)
I just joined Healing Well and wanted to introduce myself. My name is Erin and I just recently made a big move in November to come and help care for my grandmother who has Parkinson's. Not long after I moved here my mom put my grandmother in home against my wishes to care for her myself along side my grandfather (her husband) Since she has been in the nursing home she has only gotten worse, has major symptoms of depression, hallucinations, dementia...etc

I currently have her come spend two nights with my grandfather every week and I am there to help take care her. From the research I have done I believe she is in her final stages of PD as she requires help with everything from eating to using the toilet. I wish I could care for her at home full time however I have a young daughter and two jobs and even after two nights I am exhausted.

I want my grandmother to have the best time she can in the short time she has left as well as seeing my grandfather heartbroken over her being moved is heartbreaking. Im wondering if anyone has any experience with putting a loved one with PD into a nursing home then moving them back home and how they adapted? Just having her home for those short couple of days makes her much happier and I find she is much more responsive, gets better rest and care than she does at her nursing home (we wont go into how I feel about them there ;) I know we are able to get some home support as well, I guess my main worry is that I wont be able to handle it although I want to do it more than anything and am just in need of some support and advice from those who have been through this.

I do work from home and my apartment building is right next to my grandfathers so I am only a minute away from them. My daughter is only 3 and she enjoys spending tome with her great grandparents but I worry it will effect her as well.

Anyhow, if anyone has any advice it would be much appreciated. Thank you. :)
Posted 6/27/2010 3:04 PM (GMT 0)
My father was a medic in Vietnam 62-63. He is 65 years old and living with Parkinson's disease for over 15 years now. Our family has seen what my father has gone through and it is difficult. He recently had deep brain stimulation. His private doctor said this surgery would help him walk close to normal and help his trembling body. It has been a couple of months since his three phase brain surgery and he is doing o.k. His restless leg syndrome went away. His doctor's are still trying to figure out how much medication to reduce while increasing sufficient "shock" to his brain. He is slowly getting better, but is still frustrated that his legs won't work for him. It's all a science and while he sees his Neurologist once a week, he has high hopes this surgery will help him regain his life back. He retired early from work and my mother has been home bound for years taking care of him. There is a great surgeron by the name of Dr. Dumas in Newport Beach, CA. that can perform these type of surgeries and many of the patients outcomes are teriffic. Some people start walking great just after surgery. My father's hand tremblers went away immediately. This surgery won't take Parkinson's disease away, but may help some who are desperate for any kind of relief like my father was. Hopefully the VA will follow through with their word on compensating these so deserved veterans of compensation.

Brayden
Posted 6/28/2010 4:32 AM (GMT 0)
Hi my husband is 60 years old and has had parkinson disease for about 6 years now and it is so very hard on me watching him and knowing that there is nothing I can do to make him better I help him all I can he is getting worst his speach his walking he has to walk with a walker i there any one out there that is going through the same thing as me I cry some times cause it is so hard watching him.
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