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Resonable expectations

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Parkinson's Disease
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Posted 9/21/2010 9:48 AM (GMT 0)
I am a newly diagnosed 48 female.  I know everyone is different.  My husband hears 30 years good health i hear end stage in 15.  What should i expect?
Posted 9/23/2010 2:02 AM (GMT 0)
s1111
A lot depends on what you do and what meds you take. I have had PD for three years but was only diagnosed one year ago. The first neurologist that I saw started me on sinemet. It did not stop the tremors. Added artane. It stopped the tremors. After reading about the short and long term side effects of sinemet I was not happy. Read about a new drug called Azilect. It treats the symptoms and has been shown to slow the progression of the disease. My neuro would not prescribe it. HE SAID IT IS TOO EXPENSIVE! Went to another neuro who is also a movement disorder specialist. In my research I found out that that is important. He agreed with me about the sinemet. He said that it is not the best med to start. He prescribed Azilect. It stops the symptoms. Artane is still necessary to stop the tremors. I have not seen any progression since I started taking it. It is expensive. Full price is about $850 for three months. I AM WORTH IT! Talk to your neurologist.

Dan
Posted 9/23/2010 2:14 AM (GMT 0)
s1111
I forgot to add that exercise is important. The PD affects my left hand and arm. I walk a lot but my main exercise is ping pong. I have a table that allows you to put one side down and the other side up to play back. I started last November. I am right handed. In December I was playing and the ball came back to my left side. I switched the paddle to my left hand and returned the ball. I have never held a padddle in my left hand. I did not do it on purpose. I just did it. I am now as good or better left handed. The brain does strange things to compensate.

Stay positive, exercise and get the right neuro and drugs.

Dan
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