Uncle with PD

WorriedUCer

Regular Member

Joined : Jul 2014

Posts : 384

Posted 6/25/2018 10:30 AM (GMT 0)

Hi everyone,
My dad’s brother has had PD for 5 or so years. His wife recently left him and he is having a tough time of it. I have been visiting him and chatting with him on the phone but I would like a greater understanding of his illness so I can be more understanding and accommodating of his condition when I see him. For example, I recently invited him to a barbecue and I found out later that he had some difficulty getting there as he drove to my parents the night before and has trouble driving at night. Things like that I would like to be mindful of. For example, he has a nature reserve behind his house, is suggesting we go for a walk suitable or is that hard for someone with PD? Do they struggle with the heat more than most people? Are there some foods that are not good? Any help would be greatly appreciated.

GeorgiaGigi

New Member

Joined : Mar 2017

Posts : 1

Posted 6/26/2018 1:33 AM (GMT 0)

Hi Worried, are you still online?
I'm a Newbie but have had Early Onset PD for 17 years. Night driving bothers me. I have a balance problem and have taken quite a few falls. It's probably unlevel in the nature reserve, so that might pose a problem. Heat also bothers me. I have no problems with food, but my grandmother had PD and she even had to have her meds crushed. She choked easily. You are being very kind to your Uncle, and I know he enjoys your company. Hope this helps.

lizzy4451

Forum Moderator

Joined : Jun 2005

Posts : 476

Posted 6/29/2018 2:42 AM (GMT 0)

WorriedUCer, welcome to Healing Well.

One thing that might help you understand your uncle would be by reading some reliable information. One of the PD national organizations is the Parkinson Foundation at www.parkinson.org The 'Understanding Parkinson's' selection might be helpful.

I hope you find something worthwhile on the Parkinson Foundation site. There also is a HelpLine indicated on the site. I'm pretty sure they will mail you literature, if you prefer.

Hope this helps,
lizzy4451

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