Feeling a little lost

jjsum

New Member

Joined : Oct 2019

Posts : 1

Posted 10/18/2019 12:51 PM (GMT 0)

Hi - diagnosed with PD 2016, but think I've had it since 2011. I'm feeling like I am carrying this weight of having PD by myself. My husband seems reluctant to be as involved in my new PD life as I had hoped. Anyone have this problem?

straydog

Forum Moderator

Joined : Feb 2003

Posts : 19850

Posted 10/19/2019 5:43 PM (GMT 0)

Hello JJsum, I am sorry that you are feeling down. While I do not have Parkinson's, I have seen various posts here of members search for local support groups in their area. They took comfort in speaking with others that understood how they felt. Do a google search in your area & see what you can find.

Take care.

lizzy4451

Forum Moderator

Joined : Jun 2005

Posts : 476

Posted 10/20/2019 5:36 AM (GMT 0)

Jjsum,
Welcome to Healing Well,
I am having a similar situation regarding my husband. Because of my PD it's highly unlikely that I can do some of the things we thought we would do in the future. I don't think he has accepted that yet.

Do you know anyone else with PD where you live? If so, maybe you could meet for coffee or ice cream. I STRONGLY agree that it would be great if you could find a support group. Nobody understands what you're experiencing better than someone going through the same thing. Alternatively you might look for a PD dance class or non-contact boxing for PD.
lizzy4451

✚ New Topic ✚ Reply