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RRP 18 mo. ago, PSA now rising. Anyone had Salvage Proton Radiation who could answer some questions.

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Posted 7/10/2008 6:53 PM (GMT 0)

PSA rising, .02 to .08 in last 6 months.  Considering salvage Proton radiation at U of Fl. Proton Therapy Institute, Jacksonville.  Initial consulatation scheduled next week.  I have some questions for anyone who has taken treatment at that location.  I would like to talk with anyone who has had salvage radiation treatment - IMRT or Proton treatment after rising PSA after RRP surgery.  Thanks, Jerry

Posted 7/10/2008 8:16 PM (GMT 0)
Tom here been there done that : as seen by my BIO help if ya want it Chose Proton : as told by the Doctor; Radiation is radiation the outcome will be the same the methods can be different and the side effects. I felt Proton would be more direct as it were and was trying to nix the side effects this time , SO Far SO good went from 0.15-0.20 and was advised not to wait too long. Last PSA 0.09 it works Surgery 17months radiation 5months and counting !
Posted 7/10/2008 8:29 PM (GMT 0)
smilingoldcoot is undergoing proton treatment at UF now.
Posted 7/10/2008 8:38 PM (GMT 0)
As Danman Bob mentions, smilingoldcoot is undergoing treatment and he has an amazing website that documents his journey.
My father also completed salvage radiation and is on Lupron. His most recent PSA came back .02. He tolerated IMRT extremely well. He had a little upset stomach and fatigue, but managed really well.
Posted 7/11/2008 12:07 AM (GMT 0)

jerryg

I know virtually nothing about salvage radiation but I think the people here at UF Proton are the greatest.

my email is smilingoldcoot at hotmail.com if you want to email me.  I will even send you my phone number.  If I can assist you just ask.

Richard aka smilingoldcoot

Posted 7/11/2008 12:30 AM (GMT 0)
jerryg

I just finished salvage radiation 5 weeks ago after my PSA started to climb at my 10 month post surgery test. It went from 2 readings of <.1 to . 2 at 10 months to .3 at 12 months to .4 at 14 months. Started salvage radiation on April 14th completing 36 daily treatments on June 4th. I went through it just fine with small side effects and feel fine today. I am waiting for my first follow up PSA test which will not come until August in about 4 weeks.

Norskie
Posted 7/11/2008 2:48 AM (GMT 0)

Our story follows closely to Norski’s, rising psa after 10 months following  RP.  My husband is just completing three weeks of tomotherapy this Friday with little side effects.  Some fatigue, urethra burning off and on and stomach issues mostly minor.  He has 25 more treatments to go and doing well.

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