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Probable implant in my future...and radiation is also likely

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Posted 8/26/2008 2:26 AM (GMT 0)
Hello HW folks.

 

Do not check in here as regularly as I once did, but do check in some.  Hope all are doing well.

 

My incontinence is still with me, but is G-R-A-D-U-A-L-L-Y disappearing.  A few dribbles a day has turned into a very few dribbles a day, so in the grand scheme of things, I cannot complain.

 

ED is still with me.  Vacuum pump still in use for therapy.  Injections used for therapy and happy times too....lol...but the hit and miss nature of things and inconvenience are not fun.

 

If no BIG improvement on the ED front after 18 months (less than 9 months from now), I plan to have an implant, assuming my overall health allows.

 

Have spoken with two implant patients in my area and am having lunch Tuesday with one of them.  Gaining knowledge from others in the same boat is priceless.

 

All the best to each and every one of you.

 

DanMan
Posted 8/26/2008 12:02 PM (GMT 0)
hey Danman, hang in there with the ED issues. 9 months is a long time to have things improve! you may not need an implant. it is good to hear from you again. kat
Posted 8/26/2008 1:41 PM (GMT 0)

Thanks, Kat.

I have not given up hope on the ED front, but accepting the fact that I might need an implant gives me something to look forward to instead of constantly fretting over what I am dealing with today.

In the meantime, I take my Viagra 3 times a week, use the vacuum pump and inject.

DanMan

Posted 8/26/2008 11:38 PM (GMT 0)

Hi Danman, nice to hear from you again. Seems like you're making good progress and the important thing is not to give up too soon. Even with nerve sparing, it can take two years to recover, and I have heard reports of recovery taking as long as four years.

Like you, I'm using the VED and injections. No Viagra or similar. Having sorted out my technique, I am now having 100% success with the injections. So even if I have to inject the rest of my (active!) days, I don't see an implant in my future.

I hang out in other forums and those who have had implants all speak highly of them. So they are certainly an option for those who have given up hope of a natural recovery. Enjoy the Tuesday lunch, and please do let's know what you discover.

Posted 8/27/2008 3:41 AM (GMT 0)

Danman Bob,

Great to have enjoyed lunch with you today!  I hope I answered your questions to your satisfaction.  I clarified I am at the learning stage of the implant, having just been activated.  At this point, I am pleased with with them both (AUS & IPP), but am expecting them to get better with use and over time. 

As I mentioned, no need to hurry, but perhaps you can have hope in the event nothing acceptable to you works.  With this disease (and all diseases) we all must have hope that things can and will get better in time. My purpose in being so frank is to help others who may be considering the options I took.

Gene214 

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