Peyronie's Disease Treatment Results

I got peyronnies disease some 10 years ago.  I took more vitamin E than you are for 3 years, no change. I never did anything else to try to cure it.  As the disease moves slowly up and back down the shank, it lead me to believe the vitamin E was working, but it wasn't. 

There was a period of 2 years where I didn't try to have sex, it was awful, it never hurt, but it was crippled, like a broken stick.  Then I got prostate cancer, but now I am fine, I still have peyronnies, but it is milder, just a lump, so I am capable of sex.  Thank goodness I was large in the beginning, because I am shorter now.

I've read that too much vit E causes prostate cancer, and I sure wonder if that's what caused mine.   I have no idea what caused my peyronnies, as I am a very healthy guy.  Was it depressing.

I hope you don't really have it, or that yours is gone before you know it.

Welcome to the Peyronie's Club! We are a small  group I guess given the number of postings. I too have Peyronies, mine developed after doing trimix injections for about six months. My urologist/surgeon wasn't very helpful at all on this issue, He said there wasn't much I could do about it. Isn't that great.  He did tell me to take Vitamin E, which I have. I also added l-arginine which I saw on a Peyronie's website somewhere.

     The other thing I did to try and help this problem is purchase a Quick Extender pro traction device. The device is recommended by the Chicago Urology Institute, a reputable clinic.  This is a light weight metal brace with springs on it that puts your penis in a stretched position when wearing it. Some guys use this device to make their penis longer, all I want it to do is make it straighter. You wear the brace and tilt your penis in the direction opposite the curve you have by pulling on the plastic tubes. I wear it all day long, taking it off only when sleeping, exercising, or going to the bathroom. I've worn it for over a month now. At first it does take some patience to get used to wearing it, it doesn't really hurt but is awkward at times when sitting and going into standing. I don't remember now that I'm wearing it most of the time. The doctors say you have to wear this thing 8 hours/day for up to 8 months to get rid of most of your curvature.

      The question is of course does it work? I dunno, my penis may be slightly straighter than it was a month ago. It certainly isn't curving more and more like it seemed to be before I started wearing the device. I do notice that when having sex with wife that my penis is easier to straighten for penetration than it was before so I think the scar tissue from the Peyronies Disease is looser. I will continue to wear it because, frankly what else can I do? Like you said the vitamins may or may not help. In theory this device should work, anyone who has seen those African girls with long necks from  the rings knows you can stretch tissue. I also only inject trimix once/wk now to minimize further scarring, using the lowest possible dose to get a penetrable erection. I supposse I should quit using the trimix altogether but then no sex at all would really suck. If after 2 years from surgery I haven't improved anymore I will seriously investigate getting a penile implant.

    

I have seen suggestions that Peyronie's can be caused by injections, but others have rubbished the idea. It seems to me that you might be able to correct curvature by injecting more on one side than another. The usual advice to to alternate injection sides. In my case, I have a very slight curvature to the left. Should I inject more on the left or the right side to try to correct this?

Also what is scarring like? In my case, I have a few little bumps near my usual injection sites, but they are not what I would normally regard as scars.

I had tried the vaccuum device a few times but never could really get it to work right. Even when I shaved. As to the PD  I don't feel any bumps on the side of the penis that curves. But there is definately a noticeable  permanent skin discoloration in a  narrow line from base to head on that side so that must be where the scarring is. I don't know if this was caused by having the VED too tight one time or from having some 4 hour erections from trimix when trying to get the dosage right. I've thought about just injecting my once/ wk trimix on the R side to prevent more curving to the left, but the american urological nursing association and California uro groups still recommend alternating each side with each injection. I am on my own with this problem since my uro/surgeon says he doesn't treat many PD guys, he recommended me to his partner. But I just don't have the time to go see him since I live out of the geographic area where I had the robot surgery, nobody did it locally. Ill keep wearing the quick extender device, I have no other ideas on this.........

Interesting post, after reading it I went and examined myself to see if I could find the muscular area you refer to. I could not. All I find is that strange discoloration in a line  on the L side of penis from base to top. Please keep posting if you find out anything new about this strange condition. This appears to be a rare and puzzling problem with few answers, and a condition nobody wants to talk about. Its hard enough to get anybody to want to hear about prostate cancer, nobody wants to hear about this. Please let us (me) know if you learn anything more, I am out here in the twilight zone for sure............

You were right hb, after reading your last post I went back one more time and with enough prodding and pressing I did find a muscular ridge 1/2 way down the L side of my penis. This ridge is actually visible under the skin if I bend my penis enough to the right. So there's the culprit. Let us know how you did with your program, I'll continue with vitamin E, arginine and traction device to see what happens for me..