Back From Emergency Visit to Dr. - Catheter #6 in place

Gee, what a day from hades.  Doctor's office did take me in at 1330, didn't have to wait long, got bumped ahead of everyone in waiting room.  As soon as the "scope" was inserted all the way, he immediately said that the opening was almost completely scarred shut.  He was shocked since he did the corrective surgery in January.  Then the real pain started, he tried to dialate it open by inserting progressively larger rods up the old weiner.  When he got to 18 ga., it kind of got stuck, couldn't get it in further or out.  The assisting nurse was told to get ready to call the hospital to setup an emergency operation.  They continued working on me, and got the rod out, and after a prolonged painful attempt, managed to get a working catheter into me.  I actually admire his skill and grace at handling a dangerous situation, and I know sometimes, in an emergency, a doctor knows he is hurting you in order to help you.  They were very sensitive to my pain level, but managed to get it done right in the end.  At times I felt pain easily in the 9-10 range, and not just for a few seconds at a time either.  The one nurse was having to hold my feet in the stirups at times because my legs were shaking so bad.

I am home safely now.  Getting ready to take a Loratab.  They got me on strong antibotics, there was no evidence of any UTI, never had one before.  The cath will be in place for two full weeks.  There are 3 options that are being considered.  One, to remove the cath and see if the dialation holds, and watch me for the day in case a cath has to go back in (being 4 blocks away, thats doable), second, to dialate some more at his office, but this time under sedation, third - to rescope and if it looks like its already scarring back in two weeks, may have to do another corrective surgery at the hospita under GA.

After the pain I have been through today and the past 5 days of increasing blockage, this cathater seems like a blessing.  I am flowing fine, can drink anything I want, and might actually get a full nights sleep for the first time in 6 months.  That's the positive spin.

He did say that there was no way our local ER would have handled this right, and probably would have seriously damaged me inside with a bad attempt.  I believe him.

He got updated with my plans with radiation and the Rad. Oncl., and thinks it is wise to wait a while, and he said my blockage issue would only worsen under radiation, and that needed to be fixed first.

Sorry for so long a post, but it's been one wild, scary and painful day.  That is the latest in my never ending saga of PC.

David  "Sore Weiner" in SC

Wow! Now we can all exhale. Well, at least now you know more what you are up against and have your doctor’s attention. I wish that the doctor had just tapped you on the knee to released the urine and told you it was all in your head.

Your journey has certainly been hard and all we can say is that we stand with you to hold your hand or pat your back.

Finally some relief...

David you are a real trooper with these unsavory results. I do have a friend whose husband has been on self-catheterisation for three years. I would hate to see you on that plan...though he seems to be doing well. This has been a tough ride for you, but your attitude is outstanding, I must say.

keep up that great attitude...hang in there, buddy!

Tony

Finally, If I had your cell number I would have called. Been checking all afternoon to see how it went.

Good news is, you have some relief. Not so gppd news is the next couple of weeks and then seeing what has happened. Scar tissue is a nasty bugger in some people. Seems like they ought to able to put some kind of stint or other device that would hold it open permanently.

Get some rest, take some pain meds, and try to get your mind off this nightmare for a while. Keep in touch.

David, It is amazing what you have been put through since your Dx. I hope this was the last painful episode that you have to go through. I'm glad that at least you are able to get a good night sleep. Hang in there.

Thank you Ed, right now, not convinced its ever going to end

James, all I will say, is that PC is so unlike any other medical crisis I have ever had in my life, including prior cancers, surgeries, and radiation treatment. It really doesn't follow any rules or normalcy. I would love to give up at this point, but the alternative sucks too! lol.

Squire:

So sorry you had to go thru this....what a terrible experience!  I kept crossing my legs while I read your post, especially the part about the wiener reaming!  I really hope you get a fix for this. 

Obviously we'll all be pulling for you and I know you will keep us up to date.

Hoping for the best,

Tud

Keep fighting the demon! Get some rest. Take care of yourself my friend we are all thinking about you.

Mal, thank you.

Tud, thanks to you, rather no one be "pulling" for me right now, too sore, lol. Still trying to figure out how it could scar over so much in the six months since the corrective surgery. Dr. still thinks caution is important in dealing with it, because he stresses how easy it would be to have me end up with perm. incontinence, not a good thing.

thanks to, to jersey and corvette, your support is most welcomed, i assure you

you too magaboo, i thought they did fix it for good in january, but i guess not.

thanks to all my brothers here, i feel the care.

doing much better than i was even 4 hours ago, the first pain tablet has taken most of the edge off the hurt.

david "less sore" in sc

Just a curiosity. Is the scarring at the bladder neck, or at the pelvic floor ? If it is in the bladder, then I'm not sure how that could cause incontinence, Obviously, if it is at the pelvic sphincter, we have different issue.

Still praying for you David.

Barry, thank you for your kind words too

good life, you may be confusing my saga with another person, I am not incontinent, haven't been for 5 months, 100% dry. I am dealing with urinary blockages, and it is right at the bladder neck where they rejoined the urethra, but thanks for caring.

ted I agree with you, never know what twists and turns one may find on this PC path and life in general. a week ago, would have never expected this to have happened, but it did, and I am honestly dealing with it the best I can.

Thank you Jake, I need every one of those prayers, can't have too many.

David, Great to hear you're flowing again, and you're right about a cath letting you have a good sleep. But it's just horrible that you have to do this for three weeks and that it was so painful. You're on my prayer list tonight, that's for sure!

Sheldon AKA Sleepless