Just came back from Uro/Surgeon's office

After enduring another very painful filled weekend, saw my uro/surgeon this morning.  Based on what's going on, he removed catheter #11, the foley catheter.  It was  causing all the back to back spasms and stabbing pains.  He left the SP suprapubic cath in, since it is working so well.  When he removed the foley, he was so slow and careful, wouldnt let his nurse help, he slowly deflated the balloon  (in stead of the quick shock it usually produces, and ever so slowly removed the cath.  Never really hurt, just felt creepy coming out.  He was deeply concerned about causing me any more pain.

The plan now, is to leave the SP cath, which isn't hurting, isn't infected (for now), for 2 weeks then have me come back in.  At the next meeting, he will heavily sedate me, the  go up with a scope again and see what condition my bladder neck is in, and if needed, do a soft dialation, put in a foley catheter, and removed the SP.

He said if I am still in too much pain down there in 2 weeks, he will simply replace the SP cath with a fresh one.  He said again that the radiation was almost too much for the area, and feels its responsible at this point for all the set back, extended cath times, and incredible periods of pain.

Even though the foley is out, it hurts just the same, it may take a few days for that to heal some, he said it might even bleed some more, but not to worry.  Stay off my feet as much as possible, keep taking the pain meds as needed.

Hopefully things will improve in 2 weeks, I hope, because the past 2 have been weeks of pure hell.  Been averaging 2-4 dozen a day painful spasms, and even a greater number of those sharp, burning ,stabbing pains through the penis itself.  I hope even later today I will feel better.

So my journey continues onward, still don't know where its going.  Right this second, glad to be back to one caths instead of two.

David in SC

 

David there is not much that I can say that I havent said before. Hope your pain eases asap and that better days are ahead for you.

Michael

Hi David,

So Sorry that you still have to deal with all that pain and discomfort. I'm just glad that your Doctor seams to be sympathetic, patient and gentle and understands all the things you had to endure thus far. I can only wish and hope that soon you will fell much better and that you can get back to a more normal life.

All the best to you my friend.

Magaboo

Magaboo, that's all I am asking for, some sense of normalcy in my life once more.

Thanks Ed, today was another step in a strange and twisted journey, one that I never knew would exist.

David, my body is starting to dislike the cath also, hopefully tomorrow its out. I know those sharp penis pains well as they are common with my ic. All the best thoughts to you brother, Tim

 

David,

Sorry to hear that you are still in so much pain and that the radiation did so much damage.

I hope you heal soon and get out of pain.  I just started my 4th week of radiation and so far things have been good I hope they stay that way and that this thing works on killing those cancer cells.

Hang in there.

Jerry1

David, not much to be said or comfort to offer, except hang in there and tough it out. I'll be thinking about you...

Thanks James, did tell my dr. that it seems to be an endless process to get me through this ,but we honestly work with one or two weeks at a time.

Thanks and hugs back to Bronson and Steve.

As an update, so far today since I have been home, still real sore ,still having spasms, but less severe, and the pain med seems to be holding its own. The dr. offered me more of something stronger, but I turned it down for now and will stick to the loratabs. I have learned to be around them on a regular basis without the constipating issues. I take 2 stool softeners every other day, and it seems to keep me regulated enough not to be a problem.

My dr. real fear, is that in the next two weeks, the opening he did in the Jan. 199th surgery will try to close up without a cath in the middle of it, but I needed some relief regardless, was about to go out of my mind. Now if I am can catch a break, I might be, and I say that caustiously at this point, be cath free by mid March. That would be something at this point after all these months.

David, seems your doctor is really good and care about you. i am sorry that you had painful weeks after your last surgery. hope next one would bring some improvement on your recovery.

good luck and best wishes for you!

Jennifer

David,

  I'm sorry that you having to deal with so much pain, maybe this will bring some relief without creating any other problems.

Take care    Neal

Thank you, Neal. It's already been an improvement, the rest of today. Hoping to get a better night sleep and a better day tommorow

Thank you John.

David,

Hope things improve for you very quickly. You are in our thoughts and prayers.

jan

Hang in there is such a trite phrase, but it's the best I can do. Wish I could help more!

Mel