Need help again guys!

New problem here guys started yesterday morning noticing some blood in urine whilst haveing a bowel movement.

Went back to see Uro on Thursday & they tried to irrigate the bladder with a Foley but they were getting quite a bit of bright red blood so they advised I wear the Foley at least through the weekend.

On Friday everything seemed to clear up pretty much yellow, but just woke up & tried to have a bowel movement and urine is coming out red again.

I know this is not a good sign but the Uro seemed to think i t was some irritation from self cathing the last six weeks.

Could it also be a sign that the PCa is worsening & that its spreading to the bladder and/or rectal area or possible a UTI infection?

Midi,
I'm not a Uro but it does seem plausible that you have irritation or an injury. 4-6 times per day you have been shoving something in a place that was not meant to have things inserted. Maybe you nicked something. Bright red usually means an injury.
After our surgery every one of us peed bright red the first few days then it changed color to a disgusting mix of chunks and bits in our cath bags. We were told to expect it.
The foley will give you relief until you decide what really needs to be done. It is uncomfortable and inconvenient but stable. One fewer thing to worry about

Jeff
By the way, thanks for checking in. You have a lot of guys worried about you.

This is one frustrating poster. I personally am boycotting this thread, before I say something I shouldnt. MIDI is so wrapped in all the "possibilities" of this disease, that he can't focus on the realities of it, HighPSA, advanced cancer, which has metastazied, does anyone know how to spell this word. This is complicated by a Uro, who thinks a turp, is a first line treatment for PCA. I hope you get your emotional and worried personality together and start to focus on what you have rather than what you might end up having or you could very well end up having that.


MEDICAL ONCOLOGIST SPECIALTY PROSTATE CANCER

I think the last few comments are off the mark.  I've read this whole thread, and the suggestions given to midi are somewhat contradictory, and often a bit off the mark.  This is the internet, folks.  It's inappropriate for someone to blindly take the advice of strangers who post on the internet.  Posters here can give suggestions and ideas, but shouldn't be trying to direct someone's treatment.  We aren't professionals.  It seems like midi has a aggressive form of prostate cancer with lymph node and bone mets.  He has a lot of pain because he needs to self cath to pass urine, and he has bone pain.  He's also confused and frightened by his situation.  Reasonable suggestions would be to get palative care so he can urinate, if possible to avoid difficult surgical treatments if they won't help, and get on appropriate systemic treatment, like hormonal treatment.  His condition cannot be cured by surgery or radiation.  His urologist has made the correct diagnosis.  It's not entirely clear what his urologist's treatment plan is, although a TUR has been mentioned. 

Seeing an oncologist, getting a second opinion are all reasonable suggestions.  Telling him that there is an excellent chance that systemic treatment supervised by a oncologist can beat this disease back for a number of years will help him to accept his situation and go on and get the right treatment.  Scolding him because he doesn't jump up and immediately follow suggestions posted here, or bashing his doctor, is not helpful.

I will - soon!

Midi, most cancer centers will let you set-up an appointment on line or by phone. You can also find the best center near you using US news and world report survey data. Although there are many other sources, just google. I set-up appointment af Dana Farber and Memorial Sloan Kettering myself. Did't go to any of my local docs for approval or referral. If you tel them your current codition, I am sure you will get a quick appt. BB

Midi,

If there are any problems, you might find that the University of Arizona Cancer Center may take your insurance. If it's allowed under the website rules, here is their website:

http://azcc.arizona.edu/patients/clinic/gucancer

Midi, hope you're feeling better. Your post did not say when you are meeting the oncologist - I hope you come back soon and let us know how you are doing.

Sorry to hear about the job situation. I hope the doctor you'll be meeting with gives you relief - both physically and emotionally. I know this has been a real roller coaster of emotion for you - it's that way for most of us.

Hang tough.

Midi,

Good luck with your appointment. It is good to see you are headed in the right direction.

Dan

Midi,
That's not good, but not the end either. If you get a chance look at the yananow site. You will see that plenty of guys make it for a long while.
Your situation is well beyond my pay grade. Maybe others might chime in here.

Update your signature. Update your profile with an email address so others can reach you privately. And maybe start a new thread. You are now a lot smarter and can asked more focused questions.

I wish you well,
Jeff

Midi, I can't add anything constructive except to say that I am sorry you are facing this.

Just thinking out loud here: is it possible to use radiation to alleviate the issues with the bladder (e.g., shrink the tumor to help with urination)? I know that radiation is used as a spot treatment on bones to alleviate pain.

Cajun Jeff makes a good point, Midi ... starting a new thread here will make it easier for folks to find you and should generate alot more responses to help you through this.

As has been said before, we are here for you to provide whatever support we can.

Thanks for all the info guys!

Will start a new thread soon.

I was supposed to get an injection of Eligard today but the Doc messed up and they had not rec'vd the approval from the insurance company yet.

Hopefully will get next week.

Has anyone been on this one yet? Looks like it's the same as chemical castration!