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I'm 36 years old and was diagnosed yesterday.

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Posted 4/28/2011 4:24 AM (GMT 0)
I like Worried Guy's advice. I was training for an ultra-marathon when I found out I had advanced PC. I kept running/training right up to my robotic surgery and added lot more stomach crunches. I think it helped, probably my head mostly. Be a warrior and beat this crap. I know that you will win. <bobr>
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Age: 54
Routine Physical on 10-20-2010 DRE Normal
PSA 4.3, up from 0.6 5 years prior
PSA 0.6 on 10-25-2005
PSA 0.4 on 7-30-2004
PSA 0.5 on 5-9-2002
Followup with Urologist on 11/10/2010 after elevated PSA; DRE noted slight bump
November 30th, 2010 had prostate biopsy.
December 9th, 2010, Biopsy results 3 of 12 cores positive.
LLB: Gleason's 4+3=7, 11 MM Tumor Length/15MM Core Length (73%)
LLM: Gleason's 4+4=8, 12 MM Tumor Length/15MM Core Length (75%)
LM: 0.1 MM Tumor Length (1%)0.1 MM Tumor Length
Urologist recommended robotic removal using da Vinci method.
RALP Surgery 12/27/2010 Released: 12/30/2010
Thunderbird Banner Hospital, Glendale, AZ
Post-Surgery Pathology: GS 4+5=9
Pathologic Staging: pT3a, N0, MX; location: Left Side; Volume: 10%
Margins: Left posterior inked margin focally involved
Extraprostatic Extension: Observed
Seminal vesicles: Not observed
Lymphatic/Vascular Invasion: Not observed
Catheter: Removed 15-days after surgery
Post-OP Followup on 1/11/2011; Catheter/Staples removed
Adjuvant IMRT 8 Weeks Post-OP.
No exercise for 4 Weeks Post-OP.
Radiation Oncologist Initial Consultation on 1/18/2011
Calypso Procedure on 2/17/2011; PSA <0.1; Bone Scan Clear
341 Testosterone
CT Simulation on 2/24/2011.
Calypso ART in progress - 40 treatments ending 3/3/2011
Posted 4/28/2011 11:04 AM (GMT 0)
 

If you stay Gleason 6 and organ confined and have your prostate removed by surgery your chance of cure is very good.  Read these articles.

http://prostatecancerinfolink.net/2009/09/22/surgical-outcomes-for-patients-with-organ-confined-gleason-6-prostate-cancer/

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2603620/

With your low PSA and Gleason score a bone scan is not necessary.  If you research the web there are many studies showing that the chances of finding anything are very small.  You just don't need the extra radiation at this point.

I was 42 when I was dx.  I had a PSA of 2.4 when I was 38, so I am sure I had PCa at 36 as well.  Mine evidently did not progress much in the 4 years since I was 38.  Find a surgeon that has done a lot of RP.  I flew to Johns Hopkins from Columbus, OH just to get an experienced surgeon.  The travel was not that big of a deal.

 

Posted 4/28/2011 9:21 PM (GMT 0)
Hello Arch - welcome to the club nobody wants to belong to!

Very sorry to hear about the loss of your father, my condolences.

I too am recently diagnosed, at age 42. Just completed my consultation w/my uro after the bone scan and CT (which both showed neg). I have very similar findings to yourself, but my PSA is a bit higher at 5.8.

I don't know what else to say that hasn't been mentioned already. There is certainly a LOT of material online about treatment options and methods. I'm in the process of exploring everything from DaVinci RP, to radiation and proton therapy. At this point I haven't made up my mind about what I'd like to do yet. I can certainly relate to the feelings you're going through.

If you need someone to chat with, feel free to reach out directly, and of course the members of this board are great supporters as well.

Best wishes,

Brian
Posted 5/2/2011 6:03 PM (GMT 0)
This forum provided me with a wealth of information, and I've been digesting it for days.

As an update - I've decided to have Robotic Surgery and am in the process of vet'g surgeons. I've found the surgeon I want, but he is "out of plan" for my insurance so I'm working through that issue.

Tomorrow is my complete Bone CT. I know that based upon my scores this seems excessive, but the urologist is being thorough based upon my family history - and my extreme lower back pain.

I read another entire PC book over the weekend, and am still trying to get the recommended reading material at my local library.

I've been sick with a hay-fever / flu / cold / sinus infection - something awful - but plan on starting an intense exercise regimen as soon as I'm well. I'm in "good" shape (for a 36 year old office worker), but want to be in "great" shape when they operate. I thank everyone that has encouraged me to prepare my body.

I've also been working on Kegel exercises. Did anyone else experience pain from these (before surgery)?

Post Edited (Architect) : 5/2/2011 12:06:52 PM (GMT-6)

Posted 5/2/2011 6:13 PM (GMT 0)
architect-
-you may be overdoing the kegels?
- my doctor's recommendation was 100 kegels a day -> 5 times a time - 20 reps
- like a standing pelvic thrust ( like in the ROCKY HORROR SHOW movie/musical - "the time warp dance".

-keep remembering to breathe
hugs,
BRONSON
Posted 5/2/2011 6:17 PM (GMT 0)
Bronson, you always crack me up. The sense of humour of a true fellow Canadian.

Jack

Posted 5/2/2011 6:22 PM (GMT 0)
The pain is at the "back of my pelvic floor" and feels like I'm getting pinched hard on a spot that is already sore. I assumed this was normal?
Posted 5/2/2011 6:23 PM (GMT 0)
I've not been doing a lot of kegels because of the discomfort. I'd estimate 75 a day.
Posted 5/2/2011 6:27 PM (GMT 0)
I'm trying to get my head around Rocky Horror Picture Show men in fish net and heels as well as having prostate cancer at my age......TO MUCH INFORMATION.
Posted 5/2/2011 6:28 PM (GMT 0)
75 reps may be a lot (at least it was for me). My uro originally suggested 5 sets of 10 each, but it caused a lot of discomfort and made me leak worse. We finally settled at 3 sets of 10 each.
Posted 5/2/2011 6:29 PM (GMT 0)

Arch.

I remembered doing Kegels prior to my surgery and I echo what Bronson stated,  for me too many caused an ache in the inner groin area.  I  just did less each day 4 - 5 times a day 20 reps. Just imagine overworking any other muscle and the end results can be the same. Good kegelling!

Jack

Posted 5/2/2011 6:32 PM (GMT 0)
OhioState - my boss (the President of my A/E Firm) just returned from Taliesin West. He brought back with him a new found respect for FLW.

142 - I've been doing sets of 5 reps with a total estimated 75 reps in a day.

I've had a few complications from the biopsy (excessive bleeding, penile pain) and think it might be a little early for kegels.
Posted 5/2/2011 6:33 PM (GMT 0)
I have my Bone CT tomorrow, and plan on asking about the "kegel pain" while I'm there.
Posted 5/2/2011 7:07 PM (GMT 0)
Architect....your posts sound like me 3 months ago!

Not only did I have a pretty bad UTI, 3 days before my surgery, a second surgeon diagnosed a substantial inguinal hernia. That was the main source of the pain I was experiencing.

I don't know why, but hernia's together with PC are not uncommon.
Posted 5/2/2011 8:02 PM (GMT 0)
So sorry you have to be here and so sorry for the loss of your father. It sounds like they caught your PC early, which is great! I agree with all the other posts regarding selecting a great dr. Unfortunately or fortunately, you do have time to go through all the options and get multiple opinions. I definitely recommend getting a few. I also came across a guy on facebook that was diagnosed at 35. His page is Journey With Prostate Cancer and he might be worth reaching out to and connecting with. Let us know how we can continue to help and all the best to you in your treatment and recovery!

DD
Posted 5/2/2011 8:33 PM (GMT 0)
I had a hernia repair in the early/mid 1980's!
Posted 5/2/2011 8:37 PM (GMT 0)
Doting Daughter - thanks for the lead on the 35 year old. I'm going to look him up on FB.
Posted 5/2/2011 8:55 PM (GMT 0)
OhioState,

I fully understand, but what percentage of the population has had a hernia repaired? It cannot be a huge number. I was very young when I had the repair operation, and it was an "emergency procedure". I went to the doctor's office, and was in surgery later that night.

Interesting coincidence if nothing else at all.
Posted 5/2/2011 9:41 PM (GMT 0)
I didn't even know that females could get a hernia.

I'm sorely lacking knowledge about medical issues cry
Posted 5/2/2011 11:10 PM (GMT 0)
You are welcome. Let me know if you have trouble finding him. I also have a family history of PC. My grandfather and father both had it. I also have a brother that will be 36 in July and am thinking maybe 40 is too late for his first PSA. Early detection, as you know, is crucial.
BTW- Speaking of great workouts, my husband and I are in our fourth week of the Insanity workouts and they are the craziest...I mean best workouts ever. :)
Posted 5/3/2011 12:22 AM (GMT 0)
Architect,
If you want you can friend me at FB and I have Gabe's FB website and a few others there.

www.facebook.com/tony.crispino

i joined this club at age 44 with advanced prostate cancer...4 years later I am in remission...

Tony
Posted 5/14/2011 1:29 AM (GMT 0)

Architect,

Everyone has provide lots of good thoughts.  Educate your mind.  I can only add one important thing to your daily regiment and that is exercise.  The better shape you are in before any surgery or treatments is to phyically get your body in good shape it will speed up your recovery.  Do what you can after surgry or treatments, no matter if you think it is just a little, a little is good.  

I offer you my condolences regarding your father, and hope that you will heal from your loss.  "Life is good", just sometimes we get lessons we rather not have.

Best to you and your wife (she will be important in your healing, let her help.)

Steve   

Posted 5/14/2011 12:09 PM (GMT 0)
Dear Architect:

Stay with us here. There are some extraordinarily kind and compassionate people here who can help you through this. My husband had surgery in August, and a month earlier I popped in here for advice. I still return to check on my friends from time to time.

Stay with us,

Mimi in Wisconsin
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