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KW's AUS Journey

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Posted 11/20/2008 11:19 PM (GMT 0)
Thanks, we are going back to Dr. Sandhu on the 11th to see what is going on....Di
Posted 12/4/2008 4:19 AM (GMT 0)
Hey Guys, I was wondering if any of you AUS guys have had anything like this come up? I sent the following to my Doctor and will let you know what he says. I just thougt I'd ask you all too! Otherwise the AUS is working as expected.


I have been having some shooting, stabbing type pains coming from the left side of the scrotum area where the tubes come from either the reservoir or the cuff. I would say at times it is about a 6 or 7 on a scale of 10. The pains are generally when I am standing or walking. It also seems like the pad has settled even lower in the scrotum than it was before. It seems like I can feel more of the tubing leading out of the top of the pad area?

Thanks,
KW
Posted 12/4/2008 7:19 AM (GMT 0)

Hi KW.  I've had nothing like that at all.  I can sense no change in the positioning of the components at all.  Hope that your doc has a reasonable explanation - am very interested in his response.

Cheers, Berb

Posted 12/4/2008 2:31 PM (GMT 0)

Kw, I've had nothing like that either, but be sure to let us know what the doc says about it.  Hope it's some kind of passing thing. 

Gene214

Posted 2/14/2009 2:35 AM (GMT 0)
    28 Months post RRP / 4 Months post AUS activation!!!!!!

 

    Hey Everyone,  I just wanted to send a update.  On the PCa front I just got the results of my last PSA test and it was 0.00.  My next PSA is in July.

    On the AUS front evrything is going as expected.  Just a few drips and dribbles that are kept in check with a womans panty liner.  Working the device has become second nature.  Everyonce in a while I have a few pinches and twinges of pain but Dr. Morey did not seem too alarmed.

    Thanks for all the support you have given me. 

    KW

   

Posted 2/14/2009 3:39 AM (GMT 0)

That's a good outcome KW.  Pretty much my story also.

All the best

Berb

Posted 2/14/2009 3:57 AM (GMT 0)

Verry good Kelly...looks like you got this monster licked as well as its side effects.  My very best to you and your family.

Salty 

Posted 2/14/2009 5:03 AM (GMT 0)
Hey KW,

Good for you!! Congrats on the zero and the success with the AUS. You fouhgt all the way and deserve the win.

See ya around,

Jim
Posted 2/14/2009 1:41 PM (GMT 0)
Congratulations KW! Great news on your zero..! The AUS is working much better for Pete also.. Diane
Posted 2/14/2009 1:57 PM (GMT 0)
Congrats on some more good news, really happy for you
Posted 2/14/2009 3:55 PM (GMT 0)

Thanks KW,

The same story with me (except I have no indication of pain anymore).  My, what a blessing... these devices.  I am surprised to still be meeting people with incontinence and impotence for long periods of time who are amazed at what I now have in my implants. 

Gene214

Posted 2/14/2009 9:09 PM (GMT 0)
Great news on the zero, wishing you a lifetime of them..
Posted 7/16/2009 2:57 AM (GMT 0)
Just Checking In!!!

I have not been on much lately but I still look for the "Leakers" here. I just wanted let the old timers here know I continue to have good luck with my AUS. Just minor drips and dribbles. I wear a womens liner every day. When playing golf I wear a regular mens pad.
I still keep getting 0.00's on my PSA test. Next one is in Jan. 2010.
I will keep lookin in on you all.
See ya,
KW
Posted 7/16/2009 4:09 AM (GMT 0)
Where have you been, Kelly?

It's always great to see you...I just realized my Yahoo was set to hide, so I haven't been seeing posts...

tony
Posted 7/16/2009 4:11 AM (GMT 0)
Hey KW,

Nice to see you again and so glad you're doing very well. tongue

Keep up the good work!

Kind regards,

Barry
Posted 7/16/2009 5:10 AM (GMT 0)

Hi KW,

Nice to hear that things are still good for you. 

My story... I had the AUS fitted just over 12 months ago.  For the first 6 months, I had minimal leakage and used 1 or 2 light liners a day, mostly to catch the drips caused by my own impatience in not waiting the 45-60 seconds for the device to re-arm itself.  In the last few months, I seem to have increased my pad usage, and now wear a small pad (a Poise pad with the one drop symbol on it) as opposed to a liner. 

I spoke to my urologist who suspects that some "thinning" of the urethra may be occurring.  This happens in some people due to atrophy of the tissue under the cuff.  If it reaches an unacceptable level (I'm far from that), then they can add an extra cuff beside the existing one.  In fact, prior to surgery, I asked the doc why he wasn't giving me a double cuff straight up, and he said that if I ever got this atrophy, there would still be room for them to add another cuff.  It is far from that at the moment.  He said there was some thought - not demonstrably proven - that turing the AUS off at night gives the tissue some respite and may prevent or slow down further atrophy.  So I've started doing that.  I still leak at night, but not a lot, so it's working out OK.

Berb

Posted 7/16/2009 1:34 PM (GMT 0)
Hi Kelly. 

I'm still doing great too with my AUS.  Still using the pati-liner, one per day.  Never a real pad.

 

Berb, I find it interesting what your doc said about the cuff.  My doc said just leave the aus on at all times, so mine's never been turned off in one year.  I don't even know how to do it, but if you don't mind, would you give instructions as to how to?

My psa seems to be rising.  Last take was up from .01 right after surgery to .07 now, but I've used now 3 different labs. I'll have another one this morning at a lab I've used before, so maybe this will give some indication.

Gene214

Posted 7/16/2009 8:50 PM (GMT 0)
Hi Gene.

Glad to hear all is good with the AUS. Hope you get some good results with the next PSA.

The following document can be downloaded and gives you instructions on deactivating and re-activating the AUS. When I had the operation, the nurse gave me a small card with these instructions to carry in mny wallet. I'm surprised you didn't receive one.
http://www.americanmedicalsystems.com/DAM_public/5107.pdf

Regards
Berb
Posted 7/18/2010 6:32 PM (GMT 0)
A blip!!!

 

   Just got my results from my last PSA and it was 0.24!?!?  Still basicly a 0 but I had been getting 0.00.  I am still on 6 month testing so I go back in Jan 2011.  Will see what happens next time.

   On the AUS front everything is still going good.  Just a light women's liner to catch drips and dribbles.  Have to use a regular guard for men when playing golf but one pad last all day.  No pains or problems with the AUS.  Will keep looking in on you guys.

Good Luck All.

KW

Posted 7/18/2010 10:46 PM (GMT 0)
Regarding the comments about deactivating the AUS at night my Doc does not recommend it. She says there is no research to prove that it extends life of the AUS. She noted that turning it off and on 360 days per year also causes wear and tear on the mechanism.....sounds logical. So I guess we should just all do what we think works best for us.

I am now on my tenth day after having the AUS implanted so four plus weeks til activation, can't wait.

Thanks guys for all I have learned from your comments. Feel like a kid with new toy under the tree, know what it is,  that I can't open yet. Just like my Red Rider BB gun 60 years ago. Perhaps I change my name to Red Rider.....you might shoot your "boys" off kid.

Posted 7/18/2010 10:50 PM (GMT 0)
I forgot to ask any of you AUS guys about alcohol. I really like a drink each evening before dinner and really enjoy wine....make my own. I realize that alcohol is a bladder stimulant and certainly affects my urinary frequency at night....get up to go more ofter with smaller amounts urinated.

What do you experience with the AUS. Do you control alcohol intake. Do you notice when you do or don't.

Red Rider and "the boys"...otherwise known as Tallman.

Posted 7/19/2010 1:54 AM (GMT 0)
I can drink as much of anything that I want. The only feeling you get with a full bladder is the same feeling you got before PCa. When you gotta go.....you gotta go!!!! But with the AUS, when you "open" the valve it will always flow freely. No more having to go really bad the have it just dribble out.
My Doc told me there is no need to deactivate the device. He also said turning it off and on all the time would just cause more wear on the parts.
See ya,
Kw
Posted 7/12/2011 3:21 AM (GMT 0)
Hello All, I'm a stranger to most of you here now! But, I was a regular about 5 years ago. 43 @ RRP Oct. 17, 2006. Had trouble getting dry. Had AUS Aug. 22, 2008. Just a light liner for daily use. All PSA's 0.0! Have links to my story in my signature.
Good luck all.
Posted 7/12/2011 3:29 AM (GMT 0)
Good to see you again old friend. Miss the chats and football games.

Are you still working at the base and all well?

Tony
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