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Posted 1/3/2012 6:08 AM (GMT 0)
 I see alot of members that take injections for ed. I was just wondering what is the process that determine when its time to give the injections a try. Im still on the free 30 trail of cialas. Since i  havent had a problem with getting a "hard on" i only take them when im in the mood.My problem is maintaining It long enough for peneration.Once the foreplay stops,willy goes back to sleep. My question is. Is it still to early to be thinking bout sxxx ? (surgery Nov 2011 ) 2. Should i ask my doctor for a stronger dose of ed pill.3.If it hurts when you have a full erection, does that mean you may not be completely healed.When did you say enough is enough and decided on the needle.

   VIEW IMAGE  Incontinence is still a big problem for me. Drip,drip,drip, wet,drip wet all the time. My doc said 3mouths if im lucky. Well  Im not feeling very lucky. I went back the work last week and got a two day samply of what its going to be like at work,and it sucks! All the employees wasnt at work because of the holidays ,so i was able to sneak in the ladys bathroom to use a stall to change my pads. I went through 3 pads and one depend in a 8 hour shift. WOW! Thats not working for me.Once all the employees are back, the girls restroom is not an option.Sorry, I Just wanted to vent.On a more positive note, congrats to tatoo ,tony ,and biker for becoming new members of the zero club and tony for good health.

Posted 1/3/2012 7:15 AM (GMT 0)
Daily Cialis comes as 2.5 or 5 mg. Check with your doc about boosting it if it works. My doc suggested trying a 10mg or 20mg total, then backing off the daily for a few days after.

The "daily" dose is just that - expected to be taken every day to create a base level in the system.

Pain should be discussed with the doc as well. It can take months to heal internally.

The ED meds and Trimx (or other injectables) all have their place in rehab, but all need to be decided together with the doc. I'm on daily Cialis still, but take a "break" on days that I want to try a different one, or do a shot (I'm told not to mix them).

I was an 8 pad a day case for just at three months, then it settled down some. At 5 months I was able to stop using the pant, and suddenly down to 2 pads a day. Are you doing the daily Kegels?

Posted 1/3/2012 1:00 PM (GMT 0)
Hey Bogerman,

Still very early.  Healing can go on for a couple of years.

You may want to look at the book by Dr. John Mulhall of Memorial Sloan Kettering entitled, "Saving Your Sex Life." It addresses treatment for ED in PCa patients and what you should be doing now.  It discusses pills, shots, etc.

Posted 1/3/2012 2:24 PM (GMT 0)
Bogerman,

It really sucks having a wet willie most of the time. You are very early in the game. I must say that it is a good sign that Jr is responding to the pills this early on. RCS is on targer about getting the book "Saving Your Sex Life"

I am sure others are going to be jumping in with more comments. Best of luck with healing. Hang in there you will get better.

Cajun jeff
Posted 1/3/2012 2:42 PM (GMT 0)
You might to talk to HR and see about some type of bathroom accomodation .. i.e. putting a door on the men's room stall.
Posted 1/3/2012 8:36 PM (GMT 0)
bogerman-
- you are still very much in the early stages of healing - 8 weeks?-

- 14 weeks post-op was when I finally started to gain control over my leaking - so you may start seeing improvements in February
- sounds terrible, but having a guideline (the 14 weeks bit) gave me hope that things would get better ( getting out of the car would cause a massive leak - often resulting in having to drive home again to change clothing)
-at week 14 I was looking into eternal catheters ( the condom style funnel, etc) but by week 16 I was able to go out for a day and not have to change my pad until the end of the day and did not have any accidents while out of the house
-do keep up with your kegels ( 5 times a day - 20 reps - you can do an easy standing version - like "the time warp" dance from "Rocky Horror Picture Show".
-hopefully your workplace has a men's washroom (with stalls) somewhere so you don't have to sneak into the women's washroom.

-also, regarding cialis and arousal - you are healing up there too - if it is responding to the meds now- it shows the nerve bundle(s) is responsive, and improvement will take time - keep in mind, the biggest s.e.x. organ is the brain, so try to condition any penile rehabilitation as "fun" and not a test...

-thanks for the kind words on zero club membership - my first post-op test was after 12 weeks - some docs only wait 6 weeks -
-here's to a good result for you when your time comes up - may other things come up - and other things get under control

- oh yes, no worry about the rants - PCa is rollercoaster of events, emotions and confusion - HW is a great place to rant and help keep yourself on an even keel.

hugs,
Bronson

p.s. regarding injections - if the penis hurts when erect it could be simply the fact that Mr.Willie has not be stretched that long for a while and has shrunk - if you don't use it , you'll lose it - phrase is true in this case - let yourself heal - do your kegels and penile rehabilitation - and don't worry about the hairy palms of your hands or needing to wear glasses ...
:-)

...
Posted 1/3/2012 9:54 PM (GMT 0)

Bogerman, my surgery was also last November and I'm still leaking quite a bit.  So maybe we're going through the normal time frame in the healing process.  

I've been dry at night since the first week the cath was removed. Probably a gravity thing. But I can go through 4 or 5 pads a day when I'm working all day. The worse leaking comes toward evening when I'm getting tired.  I'm thinking the lone bladder sphincter gets fatigued and doesn't close all the way.  I do Kegal exercises three times a day.  But improvement in my case is very slow.  

You're ahead of me in the ED department.  I only get a 25-50% errection with 50mg of Viagra, and even then, it lasts less than a minute or so.  It's certainly nothing to do any serious business.  I was told that it could take as long as a year to eighteen months to have a normal errection.  At that point if there is no improvement, the doctor told me injections or VED may be an option. 

In short, we're both in the same boat.  I hope you gain much improvement in the next few weeks.  Patience, patience, patience, that's easy to say........

Best regards, and good luck to both of us, h

Posted 1/3/2012 11:31 PM (GMT 0)
Thanks to all for your comments. Im still doing the kegels but for some reason I havent master it. If i do to many, it seem to make things worse. So far the only thing that work when the dripping start is to tighten my stomuch mucles and run for the nearest restroom and push and wait tell the dripping either to stop are slow down.Today at work ,I had to wait about three hour until the coast was clear enough to change a pad in a open still .We have no privicy at all. Although my pad was soaked ,I was surprized how much urine i had stored. I hope that thats a good sign.I put a call in to my uro for a stronger dose of ed pill. I not a doctor but im willing to bit that a stonger dose will keep willy solid for a while.I was thinking about 20mg dose of viagra anybody know what ed pills and dose work the best.Any advise would be helpful.
Posted 1/4/2012 1:44 AM (GMT 0)
Take it easy and give yourself some time. Enjoy what you can in the meantime.
Posted 1/4/2012 2:43 AM (GMT 0)
Bogerman – Regarding when to try injections: I’m seeing an ED rehab doctor who says patients who are not getting 6 out of 10 on the hardness scale should consider injections 4 to 6 weeks after surgery. His rehab program had me on a nightly low dose (25mg) of Viagra 2 weeks before surgery. Then after discharge from surgery I resumed the nightly 25mg. After the catheter was removed, I took 25mg 6 nights per week and 100mg once per week. The 100mg dose was taken in an effort to get an erection. Then I went back to see him 6 weeks post surgery, but I was only getting 5/10 so he started me on injections of Trimix. My instructions now are to inject 2 to 3 times per week. I am getting fantastic results now that I have the right dose for me. I routinely get a maximum of 9 or 10 and I’m 6+ for 25 to 45 minutes. For rehab you need to be 6+ for 10 to 15 minutes, 2 to 3 times per week; this brings fresh blood and oxygen into the penis which helps rehabilitate the erectile tissue.

As for the incontinence: make sure you do your kegels; I do 8 to 10 sets of 10 a day, 15 second duration for each kegel. If you’re having trouble doing them; stop your pee mid stream and then restart. That’s how you know your exercising the right muscle.

And you have to be patient, the healing takes time. Continence can take a year, and ED issues can take 18 months to 2 years to resolve.

Of course you should discuss these problems with your doctor, but I hope this helps.
Best of luck to you in your recovery.
Posted 1/4/2012 4:12 AM (GMT 0)
Thx tigerman,good advice and question that i can ask my uro I;ll keep doing the kegel ,but so far they are not working.
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