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Joint pain. Could it be Lupron?

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Posted 5/13/2012 2:46 AM (GMT 0)
I choise IMRT and Lurpron, Cassodox as my primary treatment. Completed RT last Oct. w/o real complications other then the norm. Same with the hormones until the last few weeks. Lately I've been having pain in my hands. Mainly thumb joints on both hands. Wife wants me to go to my GP but I think it's a S/E of the Lupron. Just wondering.
Posted 5/13/2012 3:06 AM (GMT 0)
Bert...I just wanted to say I got your email from Yano awhile back and it seems you and me are very similiar.

I also finised RT/IMRT in October and was on Lupron and now Elligard.  I just started to get joint pain in my knees, ankles and there are some days (maybe 1 day a week) where I feel like gumby....my body feels weak and tired and I just hang there.  Not sure why but I think its the HT.

I have started a new diet and am trying to get more exercise in and I hope that works.

Then again I spent 21 years in the Army carrying heavy loads and a lot of guys are beat up after they retire so I don't know...could be that.  Its not agaonizing pain but just sort of annoying and I find at night its hard to get comfortable and I keep shifting around.  Everything I read about HT will say that some will get the joint pain but it just took awhile I guess. 

Posted 5/13/2012 3:17 AM (GMT 0)
The automatic answer has to be "ask the doc" - it is their job to follow up on your treatment.
Posted 5/13/2012 3:18 AM (GMT 0)
Bert please keep us posted hope the pains let up soon. My guess is you have made it back home safe.

Cajun Jeff
Posted 5/14/2012 3:49 AM (GMT 0)
Very interesting post Bert. I have been on Lupron for 19 months +/- now, and my SE have become worse just in the last few months. I have had significant issues with my hands/fingers and developed trigger finger in almost half my fingers (both hands) in a short span of time.

Have also experienced other joint issues that seem odd except for the HT.

I have now had my last HT injection, and after a few months, my t levels should start creeping up again. I'm hoping the joint issues will resolve as well.

Most dr's don't believe that HT causes joint issues. I disagree.

Anyway, I wish you well with the rest of your treatment, and please keep us posted as to your progress.
K
Posted 5/14/2012 6:29 AM (GMT 0)
i think HT clearly causes joint issues.  i jammed three fingers on my left hand about six months before my first lupron shot and they got very stiff.  in the mornings i would have to flex my fingers and rub them to get them working halfway right.  my neck and shoulders became very stiff.  my shoulders actually hurt all the time from years of injury from weightlifting.  i could barely see over my shoulder when driving and had to turn half my body. my hips also got very stiff from cycling.  even though i did stretches i could hardly pick my feet up high enough in the shower to wash them.

ALL of the stiffness is now gone.  i was on lupron for nine month and had my last shot in september 2010.

ed

 

Posted 5/14/2012 4:14 PM (GMT 0)

F8 said...
I here ya, my 12 months of Lupron was up last week and I too have experienced joint stiffness, mostly in the morning. Then again we are getting older so who knows what's the root cause of our joint stiffness.

F8 said...
i think HT clearly causes joint issues.  i jammed three fingers on my left hand about six months before my first lupron shot and they got very stiff.  in the mornings i would have to flex my fingers and rub them to get them working halfway right.  my neck and shoulders became very stiff.  my shoulders actually hurt all the time from years of injury from weightlifting.  i could barely see over my shoulder when driving and had to turn half my body. my hips also got very stiff from cycling.  even though i did stretches i could hardly pick my feet up high enough in the shower to wash them.

ALL of the stiffness is now gone.  i was on lupron for nine month and had my last shot in september 2010.

ed

Posted 5/14/2012 4:22 PM (GMT 0)
Bert:  I did 24 months of HT and finished in July of 2011.  The first 18 months seemed to be a breeze but the last 6 a little tougher, some minor joint problems with both thumbs being the main culprits.  I've been off HT for over 9 months and everything seems to have returned to normal, my T level is back up and as that happened the SE's seemed to resolve also.  Stay active it helps!!!!!!!!

Good luck

David

Posted 5/14/2012 4:34 PM (GMT 0)

Bert:

I only did 6 months of Zoladex with my last injection a year ago February. Joint pain in the hips developed shortly after 3 months so there could be a correlation between the two. It got so bad that I had a difficult time bringing my legs up even in the shower and getting out of the car. A year later there is still some joint pain in the hips but it is much, much better than it was.  Exercise is the key.

Skate

Posted 5/14/2012 5:00 PM (GMT 0)
Bertb:

I am in the same boat, I recently have my 4th 6month Eligard shot and am coming off in October. I have had the same issues with joint pain in both hips, knees and my heels along and trigger thumb. The joint pain is bad, if I sit too long I stiffen up very quickly, however once I get moving I am fine. As far the Hands go, boy when i wake up in the morning they are stiff, I believe I have some arthritis in one of the hands. Last summer, July 2011, I went to a Hand Specialist because one of my thumbs had Trigger finger, the doctor took X-rays of the hands and gave me a shot of cortisone in the thumb, this fixed the trigger thumb within a week. In the meantime the doctor wanted me to do an EMG (ouch!!) and go back after the test. I did the test and at the same time the other thumb got the trigger finger too!! When I went to the doctor again I got another shot in the other thumb and was told I have severe Carpal Tunnel Syndrome and he would set up a surgery. I laughed and told him I would not get any surgery until AFTER I was on HT. I never went back to see him. Unfortunately, now the thumb is acting up again and I am going to see a different, more conservative doctor and hope he only wants to give me a shot for the thumb.

I don't post here much by read the forum daily. This journey with the HT side-effect is brutal, I tell everyone that I can deal with the Hot Flashes, but the joint pain and fatigue is tough.
Posted 5/16/2012 4:18 AM (GMT 0)
Thanks so very much for the information guys. It's greatly appreciated.
142 I did see my GP and he had no idea, just as I thought. I was tested for gout as well as arthritis and all negative. I mentioned the possibility of my HT causing it and he didn't disagree. But in the end my insurance still paid $150.00 for the visit! My next vist with my med. oncologist is in June. I'll talk to him about it then. Thanks again guys!
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