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question: oncologist or urologist
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Prostate Cancer
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jon kennell
New Member
Joined : Mar 2010
Posts : 1
Posted 10/9/2012 11:01 PM (GMT 0)
Apologies--I've been reading this great, invaluable source for over 2 years but have never posted before.
I went to my radiation oncologist last week for first PSA check following SRT. When he told me that I needed to come back in 4 months, I asked him if I was under his care or my urologist's. He said I could see either of them (him or my urologist.) This left me sort of confused. I don't want to alienate the urologist or the oncologist, since I'm living in a small town and pretty much dependent upon them for care. What do you think?
_________
Gleason 9 (4+5)
PSA prior to surgery 2.4
PSA after surgery 6/10 <.008
PSA 5/11 <.008
PSA 12/11 <.008
PSA 5/12 =.022
SRT begins 7/12
PSA 10/12 =.021
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 10/9/2012 11:05 PM (GMT 0)
in most cases, unless you have complications from the radiation, you are through with them after your first post srt reading. your reading is great, btw.
i had loads of complications after radiation, but i was returned to the care of my urologist.
welcome to hw, btw
david in sc
GOP
Veteran Member
Joined : Dec 2010
Posts : 657
Posted 10/9/2012 11:43 PM (GMT 0)
Mine was the opposite. After my brachy, I see my oncologist once a year and have a psa test done at a local hospital (results sent to the oncologist) at the halfway point between visits. I haven't seen 'my' urologist since he told me that I needed surgery nearly three years ago. Pretty sure that he doesn't want to see me any more than I want to see him. That was just the natural evolution of things. In fact, I was told not to come back if I chose the brachy path. Fine with me. Maybe that is why I have a bit of an attitude with the 'cutters'. And I do have that attitude with no apologies.
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 10/9/2012 11:53 PM (GMT 0)
The system I am in had me go to the RO for my IMRT treatments but long term I am being followed by urology. They said I'd be referred back to RO if needed but that is unlikely.
BB_Fan
Veteran Member
Joined : Jan 2010
Posts : 1026
Posted 10/9/2012 11:57 PM (GMT 0)
The last time that I saw my uro was just before I started SRT. I didn't have continence or ED issues, so I had no need to go back. I had no issues or complications from SRT so I now see a medical oncologist annually.
JNF
Veteran Member
Joined : Dec 2010
Posts : 5986
Posted 10/10/2012 12:02 AM (GMT 0)
It depends on where you expect your treatment to go. I agree that once the radiation is done, the rad-onc is no longer considered to be the primary doctor. At that point I think it reverts to the urologist or the med-onc. If it looks like the initial treatment has been successful, one could stay with the urologist indefinately. However, if there is a recurrance or it is expected that the primary therapy wasn't curative, then the med-onc becomes primary.
I see my urologist quarterly, my rad-onc annually, and my med-onc semiannually. At the present time, I consider my urologist to be my primary physician. However, if my PSA starts to rise, indicating I have become hormone refractory, my med-onc becomes primary. All my docs understand that and are working well together. Btw, my urologist only does prostate work, so he is the most specific specialist on the team.
James C.
Veteran Member
Joined : Aug 2007
Posts : 4465
Posted 10/10/2012 12:51 AM (GMT 0)
yeah, what jnf said in his first paragraph, that's what my doc's have told me would occur.
Oh, welcome to HW, you longtime lurker you. doesn't it feel almost legit to be out in the light and not lurking in the shadows?
Bohemond
Veteran Member
Joined : Apr 2012
Posts : 1473
Posted 10/10/2012 2:36 AM (GMT 0)
I had
open RP surgery 10 years ago and SRT 2 1/2 years ago. I had 6 months follow-ups with my RO --I had some minor complications from the SRT (bleeding) which gradually got better. When I saw him last January we agreed that I'd see him again in a year unless there were complications. I still see my Uro every six months and consider him my primary doctor for my PCa. But also want to have the opinion of my RO if there are further complications going forward. This is, in part, because the RO has a slightly different perspective - is a fan of Casodex and putting off Lupron until Casodex is no longer working on it's own.
I saw my Uro last week and told him I would be seeing my RO in January. My Uro is fine with that and told me he'd send a message to both my RO and my Primary Care doc to update them on my status. All three docs are affiliated with the same medical center, though they are not all in the same group practice.
So, as far as I can tell, they are all happy to work together and exchange notes--which is made easier because they all have access to the same computer system.
Down the road if I have further complications I will consider whose advice I want to follow. There was also a medical oncologist I saw 10 years ago before I decided to go ahead with surgery. She, I, and my wife discussed various treatment options and she also gave good guidance -- e.g., reminding me that Dr. Patrick Walsh, whose book I mentioned to her (and whose book I highly recommend) is a surgeon, as is my Uro, and I might want to keep in mind that they see things from a surgical point of view. She wasn't by any means recommending against surgery, but was reminding me that I need to recognize the point of view of my various doctors and take it into account.
That said, I opted for surgery and believe I made the right decision. If I need further treatment in the future, I may look her up (she's now at a different teaching hospital nearby) and ask her for a consult.
So, there are no simple answers. Ultimately it comes down to our own choices as patients to decide what course we choose to follow. But so far in my case, I've found that all of my doctors are willing and happy to play nice together.
Devasted1
Regular Member
Joined : Feb 2011
Posts : 498
Posted 10/10/2012 3:28 AM (GMT 0)
I would vote to hire a medical oncologist (M0) if you are so lucky to have one close by. If not, have your uro take over. I have all of my clinical visits, exams, psa tests, bone scans, etc. etc. that come with this darn disease sent to my entire team.
My MO is acting as the quarterback for my care. There are differences of opinions going on. My MO tells me to start adjuvant IMRT and HT. The radiologist oncologists is saying why should I abuse your body right now if you are non-detectable. The Urologists is saying the same as the R.O.
I just think you need someone in charge and based on all the advice I received here on HW, i found myself an amazing M.O. to take the lead. I just now need to follow his advice:)
Best wishes on your PCa journey.
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 10/10/2012 5:32 AM (GMT 0)
Talk to them both. Tell them you are unsure of the protocol. Let them work it out
douglas in oklahoma
New Member
Joined : Sep 2012
Posts : 18
Posted 10/11/2012 5:46 PM (GMT 0)
I have nothing but good to say 'bout my URO. He gave me the best options in May of 2011. I had No insurance and the shots were $1,300.oo a month for chemical castration. My prostate was wall to wall (i will at some point post the actual numbers) and I had numerous bone Met. with a PSA of 600.47. SO off came my boys. This should have helped; but as it turns out: I have Castration Restistant Prostate Cancer. I have gone through a hospital and oncologist i did not care for; & now i am with an Internist/oncologist & i am happy and lucky to be were i am. All of that to say___who knows? It is trail & error thing__ finding the right doctor, like it is with them and treatment. So i have my prostate, but not my testes; so i can pee fine, but sex is non-existant. My PSA was over 1,500. in Late August, and Zytiga was started on Aug 8th. Now my PSA is @ 92 and next week i will find out if the sucker continues to drop. I feel really normal/strong___which of course is scary. NO pain. NOw if this fails___what next? Anyone on: Xtandi? happy in oklahoma with the oncologist i got....I aint no classic case, that at least is for sure...
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