AMS 800 and Virtue Sling Journey

Best of luck with your new toy. Get ready to be dry!

Well folks it's been about five hours since I have had my 800 activated and I think I have a keeper here. I peed twice since activation and all worked well. I sat down both times cause I'm a little unsure of myself with this new toy. I have to get a little more used to it. I don't know if I will have enough of a stream to relieve myself standing up without dribbling down my leg.

This is the second best thing I have ever done in my whole life, I am tickled pink with it.

I had my AMS 800 activated 2 weeks ago and it works fine, not using pads. However, I've been unable to de-activate, which my doc advised doing at nights. Is this VERY hard to do or just me?

Good to hear you are progressing so well.

I have never deactivated my AUS. Doctors have differing opinions about this. Mine said don't worry about it. I did it in the Doctors office one time but have never since then and know other guys who don't as well.

You are off to a nice dry life. I still wear a light ladies pad and get a little leakage when I sit or strain. Don't be surprised if you get a little leakage occasionally, It's easy to partially activate the AUS. You may have read about this on the threads.

TallGuy, I hadn't heard about partial activation. Tell me more about it.

What an informative site. Thank you neoman for getting me here from BCAN. Both have interesting info but for the AMS 800 this helps a lot. I too, like neoman, started out with bladder cancer and while removing bladder, prostrate was removed as well. Since 8/8/11 have been fighting the "wetness" issue and surgeon said lets move forward and install a AMS800. Modern medicine. Isn't it great. Was scheduled for March 4, but, if you can believe, part was not available. Now scheduled for March 18th. You guys have given me a lot to digest, but mostly, the knowledge that there is light at the end of the tunnel. Thanks to you all, and will keep you posted once we get started on this raod to recovery.

Nothing to worry about hpotter50.  Once you get your AMS 800 activated down the road you will be like a new man.  I am one month post-activation and I couldn't feel any better about myself......this is one of the best things I have ever done in my lifetime.

Alrighty guys. AMS800 installed March 18th and so far so good. Catheter had to be removed first night due to blockage but other than that, normal pain, swelling and leakage. Taking it easy for this 1st week and letting everything heal as needed. Not sure if sling is a need or not, but after 1st night was pretty bloody and wet so removed and not put back. Have my 2 week followup April 2. Will keep you posted as we progress. Thanks for all your knowledge that you have shared out here. It has been a blessing. Thanks

Herman

I had the AMS800 implanted a little over a year ago.  I have never deactivated at night.  There are times when I have a little leakage (sitting wrong, too much alcohol etc).  I still have some numbness in my testicles a year later.  My Uro says it will probably not go away.  I wonder if he screwed up. I also developed a significant curvature since the surgery.  Anybody develop those symptoms? Otherwise I am happy being dry.

I feel alot better knowing that I am not the only one.  Thanks for the reply.

Hpotter,

I bought a Iron Man Timex  here I set the timer to go off every 4 hours. Some times I cannot make it to 4 hours, sometimes longer. When my neo starts to max out, I feel some discomfort on my kidneys or on the cuff. Or I start to leak.

Since you have a neobladder, it produces "Mucas". Some times when the mucas settles down around the cuff area, I think it is "slippery" enough or it is heavier than urine,  it will cause your neo to leak out. Sometimes a lot even when you neobladder is not really full. I have had leakaged where the bulk of it was mucas. Something normal bladder guys do not deal with.

I do not try to make it to four hours usually. If I am close to a bathroom, I take advantage of it. It does not help to lay on my back. I still can leak at the four hour area. Laying on my side is better but not fool proof.

I wear two layers of shorts. One tight fitting for my pad. It has to be somewhat tight or the boy moves around to much and then the pad is no good.

Then I wear a boxer type.

Two reasons;

1. I tuck my tee shirt in to the boxer (so I will not get it wet being with the pad)
2. another layer of defense in the likly hood of a leak. You will leak. You will leak daily.

I then also wear another pair of basketball shorts over all that at night. Another line of defense. Then I do not use a bed pad at night though I probably should.

To void, I use a stall like anyone else, unzip and I learned to lift up the leg of the shorts to access everthing, the pump in the scrotum and pee from that position. I learned I can controll everthing easier and do not get my pants wet from the process. When you pump the pump, you will have to experiance how much for how long.

I pump a few times then wait till it stops, then pump again to see if If there is more. Remember you can zip up and still the cuff is open. If you were constricted somehow, and zipped up, you could continue to void heavily at the wrong time. That is why I do it from under the leg of the shorts. More control and less restriction.

Hope that helps you in your planning

Again, Briefs, Boxers, good pads (w/out wings), Iron Man Timex.

NEO

 

hpotter50,

So happy for you!! yeah!! I drink a lot of water and have not been able to go 5.5 hours very much. Also when on my side I use a pillow between my legs and sometimes I roll over on my belly and that puts pressure on the neo-bladder and it will push out the urine.. You just will have to experiance it.

Let us know how things are working for you!!

Neo