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Smaller penis after prostatectomy??

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Posted 3/7/2013 4:26 AM (GMT 0)
I don't think penile shrinkage is restricted to just after a prostatectomy, I have been on HT for 32 months now and my penis has shrunk dramatically, both in length and girth. On the rare occaisons I sort of get an erection I would estimate that my penis is 50mm (at least) shorter than pre PC treatment.

My urologist said I was imagining things. This is something that you don't imagine about yourself, not that I have ever bothered to take the vital statistics, you just know how big or small you used to be. I know I was lucky and was well endowed. And yes it does mess up with your mind and emotions.

I am sure this is a side effect which the doctors don't bother talking about, I would much rather be told the full story and not be in for a surprise down the track. mad

Posted 3/7/2013 5:38 AM (GMT 0)
didn't happen to me and many others have said it didn't happen to them. I posted an article about it too that identified that lack of use was one of the reasons people perceived themselves to have shortened knobs.
Posted 3/7/2013 1:31 PM (GMT 0)
Vixen65, Im single . Tell your sisters. LOL !

Don
Posted 6/10/2013 6:57 AM (GMT 0)

I had a daVinci radical prostatectomy May 6, 2013.  Surgery seems to have gone well and I have learned the cancer was confined to the prostate gland.  My first followup with my urologist is still a couple weeks away.  Seems "leakage" hasn't changed any and is pronounced when walking or standing.  No problem when sitting or laying down.  Definitely lost some size.  The occasional pain I felt in my penis initially is much less frequent now.  I appreciate all the opinions and information shared here.  I am trying not to get too concerned about the leaking and also as of now, no ability to get an erection.  It appears I need to practice patience, but Walgreens doesn't have drug for that.  I am much more knowledgable of my lung cancer than I am my prostate cancer.  Whatever my fears and concerns, I see some of you have the same ones and are living with them.  That is comforting. 

Gray Knight

65 yrs old

PSA pre-surgery 5.6

Gleason = 7 (3+4) 

Posted 6/10/2013 7:17 AM (GMT 0)
As previously mentioned I defintiely had shrinkage post surgery. But there is an additional aspect i am now noticing.
I've been having to use pads again for about 9 months and the pads sure squash little Alf.
There can thus defintely be a size problem when I pee. It's like the tortoise has hidden in his shell so I really have to pull things out befroe I start peeing, often I start peeing before things are out far enough and have endd up peeing isde my clothes.
Also when sitting the problem can be that little Alf is too small to go under and I pee over the top of the seat and wet my knees. He can also be crafty and make me pee between the underside of the seat and the edge of the bowl so I think I have peed in the bowl but then find I have peed throug the gap onto the floor or my pants/underpands/trousers.

Alf
Posted 6/10/2013 11:04 AM (GMT 0)
serious response here,

has anyone tried stretching little willie?

i checked out stuff called "jelqing". seems strange but i think it has helped maintain willie's stature.
Posted 6/10/2013 12:34 PM (GMT 0)

JB71 said...
I wish it was a myth but I was never 'huge' to begin with. Now 29 months after surgery I still have not had an erection nor do I seem to care to have one. I'm still incontinent and no longer use urinals because the little fellow seems to work best (better) when sitting, that is as in, 'not peeing down my pant legs' because I simply can't pull it out far enough, it's that short.

As a consolation, at the age of 73, I do have fond memories of my much younger days and pre-prostate problems. LOL

This is so me! Every word of it. I too never had a lot to begin, at least in a flaccid state. Have definitely lost some and told my wife that if this keeps going, I'm going to end up with a vagina. I too use toilets as standing up makes a mess.
Posted 6/10/2013 1:27 PM (GMT 0)
It may be unusual to have a female post about this but I do have an answer to Gasman's inquiry. My husband is doing ED rehab with Trimix and that has helped in restoring size. My husband developed mild curvature (pryronies) which his ED specialist had him treat with a stretching device. The stretcher worked to straighten out his curvature but did not, as far as I can tell, restore any additional size. The Trimix did make a difference though.
Posted 6/10/2013 1:52 PM (GMT 0)
Gray Knight,

I copied your post to a new thread -

https://www.healingwell.com/community/default.aspx?f=35&m=2758970&g=2758970#m2758970

Posted 6/10/2013 3:51 PM (GMT 0)
I used a pump regularly for rehab purposes early and it really seemed to help with both healing and size issues. With the pump, Cialis, and regular practice I have pretty much made a full recovery, which is great because I lost some of my nerves on one side. I feel very fortunate to have had a great surgeon and a very good looking wife yeah
Posted 6/10/2013 7:42 PM (GMT 0)
My husband was never given the opportunity for PT for his ED.  I don't know when that all started but, he had his surgery in 2008, they were not able to spare any nerves for whatever reason.  Anyway, he now has an implant and though the doctor told him he couldn't add lenght he did use the "largest" on available and added girth.  Either way the implant works wonderfully and never goes down until you release the pump.

DX @ 49

Biopsy Gleason 7; post surgical Gleason 5+4 = 9

Radiation 16 weeks

HRT 1 year

 

Posted 6/11/2013 1:03 AM (GMT 0)
..My spud is a dud..
..I see shrinkage, unless I shake it a bit, then it looks normal for about a minute then back to the new normal:(
..about ED, it just kind of hangs there lifeless. In the shower I poke him a bit and he just does nothing like a dead limb. It is more sad than I can put into words. I was a healthy man and this is devastating to me. I do take 5 mg of cialis daily for now and I feel a tingle but that's it..
..hey here's a toast to better days........Nick........
Posted 6/11/2013 3:08 AM (GMT 0)
Nick,

Sorry about your "spud", but in reality you are barely a month out of surgery, a very complex surgery. You are still in the early healing stage, so I can only say, patience my friend, on the "spud" part. Hopefully it will start to come alive for you as the weeks continue in your recovery. Hope you start seeing some improvements.

david
Posted 6/11/2013 3:29 AM (GMT 0)
Mine is shorter. Doc said 1/2'' max would be lost...he lied.
Posted 6/11/2013 6:17 AM (GMT 0)
I would not think that it was a good idea to try any sort of stretching till you were sure everything inside was healed.

Alf
Posted 6/11/2013 1:08 PM (GMT 0)
..Yes Purgatory I see your point with patience, my wife says the same bless her soul. I am hopeful but darn the mental effects of just looking at him lifeless pulls the wind from my sails to say the least. I will keep trying to stay positive, I must..

..Yes Alf I still feel sore and though me and the wife did fool around a bit a few times, I also feel it is to soon to stretch.. Ouch..

..It is amazing how some just bounce back in the continence and ED department, and others get stuck in the mud. I know there are a lot of different individual variables..
..........Thank You........Nick........
Posted 6/11/2013 1:19 PM (GMT 0)
Hey Nick

There's a famous quote that goes something like:
"From a tiny appleseed a mighty tree doth grow."

I'm betting in 6 months there'll be applewood in your house.

Jeff
Posted 6/11/2013 1:26 PM (GMT 0)

Worried Guy said...
Hey Nick

There's a famous quote that goes something like:
"From a tiny appleseed a mighty tree doth grow."

I'm betting in 6 months there'll be applewood in your house.

Jeff

..Amazing simply amazing, I am going to write that down and put it on my refrigerator to read and inspire every day..
..That quote refreshed me..

..only hope I can cause of my stats and the follow up adjunctive treatments that might be in my near future, I am concerned but with all the good help around here I owe it to stay positive..
....Thank You.........Nick........
Posted 6/11/2013 1:50 PM (GMT 0)
I'm right there in the mud with you, Appleseed. If things don't improve I'm going to have to get in touch with my feminine side. And still leaking a lot. How about you?
Posted 6/11/2013 3:48 PM (GMT 0)
..donft,
..I'm dry at night while sleeping though I wake up ever 2hrs to pee. While sitting I am usually dry till I stand then I must go pee right away. While walking I'm a mess. I am walking 1 to 2 miles a day and doing some push-ups but then I leak a lot too. I cut back on fluid intake but two nights ago had some burning/pressure issues in my spud to the tip. So I thought maybe a UTI or to many minerals and not enough water intake, oh no so I cut back on supplements and drank more water, it seems to of helped for now. Good days Bad days and a dead pecker too..

A great quote from the Dr Walsh book.. "Health is a crown upon the well man’s head, but only the sick man can see it.” I know about this quote now...
..feel better don, we can do it brother, it hurts but we must do it..
...........Nick............
Posted 6/11/2013 3:52 PM (GMT 0)
Appleseed, I'm exactly the same, except for the burning. And now when I get into bed, for some reason, despite bearing down, there's a leak. A good day is 6-7 pads. I won't even go into a bad day. Since you had your DaVinci 3 days after me, I'm figuring we'll both be in that 2/3 of the bad 1/3 that didn't recover at 3 months. And we'll both get better about the same time. Let me know when things improve. A urethra is a terrible thing to waste!
Posted 6/11/2013 4:07 PM (GMT 0)

donft said...
Appleseed, I'm exactly the same, except for the burning. And now when I get into bed, for some reason, despite bearing down, there's a leak. A good day is 6-7 pads. I won't even go into a bad day. Since you had your DaVinci 3 days after me, I'm figuring we'll both be in that 2/3 of the bad 1/3 that didn't recover at 3 months. And we'll both get better about the same time. Let me know when things improve. A urethra is a terrible thing to waste!

My surgery was on May 8th not March 8th. I am 5 weeks post op so I still have some time till 3 months. I hope to improve a bit by then but we know there are no guarantees. Sorry if you misunderstood me. Regardless we are still in the same spot continence wise right now..
.........Nick......
Posted 6/11/2013 4:56 PM (GMT 0)
My incontinence issue continues to improve. Most days less than a half ounce. I use two pads a day. It is strange but I leak more overnight than I do in the daytime when I am more active. It used to be the other way around. I still play hide and seek with my penis. I agree with some other posts...now it is more comfortable and less messy to squat and pee. Have not seen much improvement despite daily doses of Cialis and the pump.
Posted 6/11/2013 5:00 PM (GMT 0)

tdnjam said...
I still play hide and seek with my penis.

Thank you for that one. Made my day L*AO
Posted 6/11/2013 5:35 PM (GMT 0)
Guys, Appleseed and donft.
I was in that (un)lucky club -- the 1/3 of the 1/3. No matter how wet bad it gets, know that you can get it fixed.

Same with ED. If you want it bad enough, you can get that done, too. Some brave guys here did both surgeries at once. Yikes! That way they maxed out their deductible and got the ED surgery for free.
After the surgery one guy said "It's like being 18 again - only without the stupid!"

My point is: no matter how depressing you think it is -- Don't take the bridge! It will get better. IWGB! IWGB! Say it: IWGB!

(If you're going to take the bridge, make sure to send me all your firearms and ammo first. We'll shoot them off during the next GFMPH event.) :-)
Jeff
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