Most of us with this diagnosis are in the age range where we (hopefully) have investments and retirement plans. Those have asset al
locations usually based on long-term projections of life span and so on, risk tolerance, assuming we'll retire at 65 or whatever.
With a serious diagnosis, that horizon may, or may not, move much closer. The frustrating part is no one seems to be able to project an individual's timeline with any accuracy. I can't talk to anyone about this, since they say, "Oh come now, knock that off. There's no concern at all, so just forget about it.". Well, with locally advanced high risk, etc., there is some concern.
Have any of you reviewed your investment strategies to change risk tolerance, for instance? We may have less time available to make up for a setback, so maybe would be more conservative than usual for our age. That sort of thing.
At this point, I'm not sure I'm taking retirement at 65, or even 62, as a given.