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Desperately Need Help - Spasms after robotic surgery
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Prostate Cancer
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DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 1:36 PM (GMT 0)
Hello All!
I'm normally a lurker, because most of my questions have been answered. My dad just had robotic prostate surgery and is still in the hospital. He's been suffering from these horrible spasms and the drugs they're giving him aren't doing anything.
Has anyone else been through this? I've been looking through the old threads and it seems people have had this AFTER the catheter is out, but not right after the surgery.
Thank you all for any help. This is the absolute best resource ever!!!
Tori
Steve n Dallas
Veteran Member
Joined : Mar 2008
Posts : 5399
Posted 10/9/2013 1:42 PM (GMT 0)
Welcome to the Site.
Where are the spasms? At the bladder?
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 1:48 PM (GMT 0)
Thanks!
Yes, and they come at least 16/17 seconds every minute and last for about
30 seconds, sometimes longer. They did an x-ray, but they haven't found out yet. I want my mom (who's at the hospital with him) to be ready to ask all questions.
Thank you!
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6432
Posted 10/9/2013 2:04 PM (GMT 0)
Assuming his spasms are bladder spasms they happen after a prostatectomy sometimes. Usually they can get them controlled after a few hours. Mine lasted three or four hours and then, when they had me high as a kite, they finally let up.
How long has it been since his surgery? They are often a bit stingy with the pain meds for the first couple of hours after surgery. They want to be sure the surgical anesthetics are gone before they bring in the big guns.
Keep us posted. We can't do much for you but we can help you fret.
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 2:16 PM (GMT 0)
The weird thing is that it's been almost 3 days. His surgery was on Monday and he's still in there with spasms. All his tests came back fine, everything's working the way it's supposed to. They're going to get physical therapists in and get him to do more walking and anti-spasm medication. Although, I don't know why they didn't give him that before. This whole ride is crazy. Thank you all for being here and being supportive. :) It's nice to have a place to come and freak out and you all understand.
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 10/9/2013 2:21 PM (GMT 0)
I have been dealing with bladder spasms for over 5 years now, have had literally many thousands of them. The most common med prescribed for them is Ditropan. A very inexpensive generic drug.
It would help a lot with mine, when I still had a working bladder. But it never eliminated them. Some doctors will prescribe flowmax for spasms, but I never found that to work at all.
Feel bad for your husband, as I know how much they can hurt. Hope they can find a quick fix for him, hopefully his situation will improve as he continues to heal, and not end up being a chronic situation like with me.
david
azsunshine2013
Regular Member
Joined : Sep 2013
Posts : 83
Posted 10/9/2013 2:21 PM (GMT 0)
My husband was given medication for the kind of spasms you are describing. It's pretty common after surgery, though maybe not as severe as your dad's.
I would ask for medication asap. My husband was prescribed: Oxybutynin 5mg (Ditropan)
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 2:23 PM (GMT 0)
Oh that's good to know, I'll tell my mom that. He was just given Ditropan and bacitracin for where the catheter is. Oh, my parents are in AZ too (I'm guessing that's where you are from your name!)
Thank you!!!
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 10/9/2013 2:23 PM (GMT 0)
Yes, same med I just mentioned.
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 2:25 PM (GMT 0)
Hi David,
Oh my goodness, for 5 years?! I'm so sorry you're going through that. Yep, he's on the ditropan.
Thanks for your help!
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 10/9/2013 2:34 PM (GMT 0)
Daddy's
One reason doctors can be stingy with Ditropan, if you use it long term, it can make your bladder "lazy", which is the last thing one would want when the catheter is removed and you are trying to regain continence. It relaxes the bladder walls, making them less inclined to spasm. 3-10 days is what I have been told by several doctors.
In my case, I was on my original catheter for 63 days. Then I had endless stricture problems, which kept me on 21 different catheters for a total of 1 1/2 years. It was a horrible time.
Finally, I had to have my bladder by-passed with an Urostomy surgery, and even though my bladder doesn't work and isn't even connected for 3 years now, I still have bladder spasms daily. I probably average 2-4 dozen per days, most last just a few seconds, but sometimes I have had them last 2 minutes or more. No med works for me anymore, as the meds are designed to work with a working bladder, not a disconnected bladder. Have tried every med known to man, and none work.
My oncologist finally told me, that I basically would have to continue to live with them, as there is no solution outside of a major, high risk surgery to remove a very radiation damaged bladder.
I have estimated that I have had over 10,000 of them since 2008. And that is a very conservative number.
David
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 2:38 PM (GMT 0)
Oh my goodness, David. That's awful. I can't imagine it. You are definitely a trouper!
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6432
Posted 10/9/2013 2:40 PM (GMT 0)
It should be pointed out here that David is the poster child for as-bad-as-they-come bladder problems and you can expect your dad to do much better. His doctors will get him sorted out. Hang in there.
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 2:42 PM (GMT 0)
Just heard from my mom -- he's already doing much better. Phew. Not a fan of a dramatic morning. Thank you all for being here and helping me. :)
Big Mac
Veteran Member
Joined : Jul 2012
Posts : 2036
Posted 10/9/2013 2:53 PM (GMT 0)
Glad your dad is getting better. I had spasms also a couple of days after surgery but they didn't last as long as your father. They are uncomfortable so I can understand your concern.
Bill from Florida
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 10/9/2013 3:24 PM (GMT 0)
Glad to hear he's improving already. It's very normal to experience a few post surgery, especially with a catheter in place. The bladder is sensing a "foreign object", and is trying to expel it, thus the spasms. Until the bladder completely calms down, even post catheter some spasms are possible, but they are not as usually as severe as the kind when the catheter is in place.
For most men, the meds indeed do help a lot to get through that phase of recovery.
David
azsunshine2013
Regular Member
Joined : Sep 2013
Posts : 83
Posted 10/9/2013 5:25 PM (GMT 0)
Glad he is better! yes, I am in sunny AZ.
foretexas
Regular Member
Joined : Aug 2013
Posts : 35
Posted 10/9/2013 8:55 PM (GMT 0)
That was the absolute worst pain I have ever had in my life, scared my wife enough to want to take me to the ER. I delt with bladder spasms while in the hospital and then for a week or two after the catheter was removed. HYOSCYAMINE SULFATE 0.125MG TABLETS took care of it.
DaddysGirl36
New Member
Joined : Oct 2013
Posts : 8
Posted 10/9/2013 8:58 PM (GMT 0)
Yeah, it's scared my mom too. Wow. Thank you, I've just let my mom know as it seems the ditropan isn't working that great for him now. Everyone's reaction to the surgery is so different! I mean, we thought he'd be fine, and he's in a lot of pain, like the rest of you were. But, I guess the thing to focus on is that the cancer will be gone and he'll get better.
Thank you ALL!!!
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 10/9/2013 10:31 PM (GMT 0)
For anyone that has ever experienced severe bladder spasms, there is no other pain quite like that. When I have my really bad ones, the ones that can last 2-3 minutes, feels like someone exploded a large firecracker inside my bladder, but with no way to relieve the pressure. Even worse with me, because my bladder neck is now permanently sealed shut by very thick scarring. Some will bring tears to my eyes, and drop me literally to my knees.
After dealing with this for 5 years, there's no ever getting use to it.
David
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