HealingWell
Search Close Search
☰

Gleason 9, T4,N3,M0- concerned about husband...

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/6/2014 4:09 PM (GMT 0)
Hi, we are fairly new on this journey. diagnoses in signature. Am extra concerned this morning. My husband has been feeling pretty normal so far. He started on Casodex early December due to rising PSA. But, this last week he has been extra run down. He still makes himself get up and work out every morning. I've noticed he has slowed down, resting a lot . This morning he is complaining about "just not feeling good" a little nauseated, weak, etc. kinda like pulling teeth to get him to tell me how he's feeling. He has also been complaining of pelvic pain. Just aggravating pain he says, "comes and goes". I have noticed he's going to pee more often. We have an appt. on Jan. 16th with Onco. For blood work and Degeralax shot. Is this typical SE with adding Casodex, or are my concerns warranted? Should we just wait for appt. next week, or call the Dr.? This morning he was dragging, left to work an hour later. I guess looking for suggestions for ideas to make him feel better and not get the best of him this soon in the journey.
Posted 1/6/2014 4:20 PM (GMT 0)
This could be related to his medication, but also this is the peak of flu season. So don't overlook the possibility that your husband may have something completely unrelated to PCa or his treatment. Just a thought.

Jim
Posted 1/6/2014 5:13 PM (GMT 0)
Hi there. I am certainly no expert but can tell you our experiences. My husband is tired and has a general overall achy feeling. He finds that his upper legs hurt. He ususally ends up having a nap at some point during the day

He was still having trouble peeing too but they doubled his FloMax and that has helped. I didn't see FloMax in your signature so you may want to ask about that

Nancy
Posted 1/6/2014 5:21 PM (GMT 0)
Jim, yes I will watch out for the flu did not think of that.
Although no fever, sore throat, vomiting, etc.

Nancy, yes he does take Flomax daily, maybe need to increase. I guess since he has an appt. next week, we can address the concerns then. Since his PSA was coming up so fast. They said if this appt. they will discuss next treatment plan. Nancy has your husband had any other treatment ? Chemo, radiation, xtigo, provenge or any talk of it?
Posted 1/6/2014 6:04 PM (GMT 0)
We have just recently added Casodex. PSA test in early February to see if it is doing he job. If not, I expect next steps will be discussed then. Not looking forward to that discussion very much......

Nancy
Posted 1/6/2014 8:44 PM (GMT 0)
Barb,

It could be a lot of things, many of them having nothing to do with prostate cancer. Here are a few that occur to me: There are some colds that make you feel tired, achy and run down with few of the usual symptoms of cough or runny nose. He could have a urinary tract infection. Those can give flu-like symptoms and that would explain his pelvic discomfort. Casodex tends to make me crampy and uncomfortable if I take it on an empty stomach. My hormones made me tired and useless starting a couple months in. With me it was coupled with depression and anti-depressants helped, but some guys experience it as fatigue. There are things that help with that, too. Also, the hormone therapy makes some men anemic. You can also make sure they are tracking his vitamin D levels. Some guys get deficient this time of year and that can make them feel poorly.
Posted 1/6/2014 11:05 PM (GMT 0)
Thank you all, I assume it's side effects from the meds. Hormones gone, yes his last blood work did show anemic in Nov, and Dec. actually he was taking too much Vit,D, levels in Early Dec. were considered over dose level, so he backed off. Probably need to make sure he is back to taking some again just not too much. Just not used to him being run down. I told him today we need to be monitoring his blood pressure also. Thank you again.
Nancy, sounds like our paths are very similar. I will be following your husbands treatment plan also. Prayers for him and yourself.
Posted 1/10/2014 2:15 AM (GMT 0)
Barb1,

Hormone deprivation is really nasty on the body and the mind. By drying up his testosterone, it dries up his energy, sense of well being, drive, etc.

I read on another PCa forum that American Ginseng is good for energy for those of blessed with prostate cancer. After a surgery in December, 2012, hormone deprivation and 8 weeks of intensive daily radiation, it has wiped me out. I feel like I should be back to normal but I am not. I met with my internist and he changed some meds which has helped a little bit.

So I am trying Ginseng in the morning and evening. Time will tell. I may have wasted money, but it is worth a try. Best wishes to the both of you. With cancer, when I start to feel awful, the first thought and it is completely normal is that it is cancer related. Sometimes we get lucky when it isn't cancer related and there is hope for improvement. Best wishes for your husband's energy t get back to the good old days.
✚ New Topic ✚ Reply