Where is the blood coming from?

I have the same symptoms. Sometimes the clots are enough to block the urethra and require a catheter. I suspect there could be a number of reasons. Mine was originally blamed on a urinary tract infection; an antibiotic cleared up the infection but the sporadic bleeding continued. The second diagnosis put the blame on tissue sloughing off when the tumor was shrinking. The current diagnosis says it's because the mass has escaped the capsule and invaded the bladder. The scans show obvious invasion of the bladder. (I'm having surgery next week to remove the prostate and bladder.) I haven't had radiation yet so can't speak to that.

In short, I think it's very difficult to diagnose. There's blood and the source can't be found for certain short of opening you up and seeing what's there. Note: I am not medically trained and this is just a layman's observations and opinion.

I have (per cystoscope) significant RT damage to bladder neck & urethra. They break open and bleed, especially during a difficult BM. Happens every couple of weeks. Scary, but has become ordinary.

You should ask your Dr. about hyperbaric oxygen treatment, insurance pays for it usually, the only problem is finding a place that does it. There are only six institutions that have facilities that I know of across the US, I was lucky enough to be close to one (Virginia Mason in Seattle) treatments last 1 1/2 to 2 hours each and it can take up to 40 treatments to get the bleeding to completely stop but its worth it if it works.

The pure oxygen rejuvenates the tissue in the uretha and bladder over time. Your only other option would be something known as VY Plasty, this is where they take tissue for instance out of the inside of your cheek and transplant it in place of the bad tissue in your uretha or bladder neck. I understand its a brutal surgery.

Look into the hyperbaric chamber (Google)

Good luck
David

No treatment is 100% safe.

when I had a flare up of radiation cystitis not one of my doctors even bothered examining me. they told me it's not something they treat unless it gets really bad. they also said it would go away and probably come back. the cystitis cleared up and I'm going on two years without a return.

ed

I am grateful to many fellow prostate cancer survivors with similar experiences for valuable information and advice. Now I know where it is coming from and so will not get panicky when it happens again. I am still waiting for the result of the cytology and hoping it would not bring any bad news. I realized the cystoscopy dislodged some of the radiation damaged tissues. However, the cystoscopy was important to rule out bladder cancer. I was also concerned about the blood in urine because of my chronic kidney disease which has been very stable over the last 15 years with my creatinine hovering around 2.0

thanks everybody.