Welcome back David. Now it feels like HW again. I have to say when I would log in, I'd look here, even though I knew you wouldn't have a post here. Then to my surprise here you are. I'm glad you came back the place isn't the same w/o you.
I have to say that I'm frustrated on your behalf that you're not getting anywhere with your ongoing issues. I'll also say I'm frustrated with my ongoing issues and getting no where either. I'm so very ready to YELL, uncle and give. However, I know I made a promise to you that as long as you hang on tight I'll do the same.
I did get some bad news over the weekend. My Respirator Therapist's Grandson, who is 5 yrs old, passed away of brain cancer. They found his tumor on Feb 20, 2014 and he was gone July 26, 2014. That was with them removing the tumor from his brain. He also did proton radiation on the brain, and within 3 weeks the caner was back and all through out his little brain and spine.
He spent the last 30 days of his life unable to speak, swallow, move, or talk. He'd just follow everyone with his eyes. The seizures were the worst I'm told, so even though I feel like giving up, if this little guy held on as hard as he did I will too. It's just so hard when you have CP 24/7 365 days a year and it doesn't seem to let up.
I'm not sure how your pain is doing, but I know my has gotten worse by about
30% over the past 2 weeks. If you'd be so kind, would you email me and give me a full medical update please. Not sure how you feel about
sharing it here. I'd like to know how you're doing and what the current status is.
Welcome back and I'm truly happy
to see you back.
Hugs,
Barbara