Pilot Study 14-C-0140, A Pilot Study of 18F-DCFBC PET/CT in Prostate Cancer--I got into the study

I just got off the phone with the NIH. I qualify for the study and will be receiving the scans. In addition, because I qualify for Group 3 of the study I will be receiving an F18 Sodium Fluoride PET scan of the bones.

They anticipate that I will be receiving the scans in December because of their schedule in getting the contrast agent. This works for me as I see my Onco on November 14th, get a full blood workup and receive my next Lupron shot. A few days before the meeting I will also be having CT and PET scans here in Orlando.

I will have a bunch of comparison information by the time we finish with the NIH scans.

This arm of the study also calls for me to receive both scans again at 6 months.

I can't ask for much more information than that upon which to make my decisions going forward with treatment. The fact that I am on Lupron and will continue to be has no bearing on my acceptance into the trial.

I also received a call from my Onco's office confirming that they are setting an appointment for me with the local Dr. that administers the Provenge treatments here in Orlando.

WE ARE OUR OWN BEST ADVOCATES IN DEALING WITH THIS CRAP. You can't just sit around and wait for others to do stuff for you. Their wheels drag on to slow for me.

The information that all of us receive here at HW, from the folks that put in the time to find it, is invaluable. It is up to each of us to do something with that info when it fits into our scenario.

So thank each of you that continues to provide us with this info. Over the years you have certainly assisted me greatly in my journey.

The "Bonus Days" just keep rolling in. But sometimes you have to grab them or provide assistance to get them.

Sonny

Wow, great news Sonny! And as you said - "WE ARE OUR OWN BEST ADVOCATES IN DEALING WITH THIS CRAP. You can't just sit around and wait for others to do stuff for you. Their wheels drag on to slow for me."

Do we need the medical professionals - of course! Are they "god-like" and perfect - NO.

"LIKE" WE ARE OUR OWN BEST ADVOCATES

Continued best to you bro, please continue to keep us posted - not only 'cause we care about you, but as TA stated you are also helping so many others!

Sonny
- congrats on getting into the study
- here's to the results you want - which benefit all of us !

Every day is a bonus especially if we are our own best advocates.

hugs,
Bronson

Thanks for the update and good news, Sonny. Your continued pushing the boundaries for your treatment plans benefit us all.

Sonny,

Awesome that you got in...good for you.

You mentioned that you will also be getting a F18 Pet/CT as well.  You've had several of these types of scans in the past, correct?  (just had one myself last Wednesday)

You've also had the C11 scan as well?  Is radiation an option if these scans find anything?

All very interesting and informative...thanks for sharing.

Jerry

Sounds like a plan, Sonny. Good for you on researching and taking action.

Sorry for all the questions...I usually just get the f18 pet/ct scan. Curious, did the previous f18s ever show those spots you mention? Or just the c11? (Even though the f18 is for bone involvement, to some degree soft tissue can show as well.

Thanks

Sonny3 said...
So far the only thing that has been identified is the few nasty nodes that I am aware of. The area is too wide to radiate them. Sonny

You'll be swimming in images soon!

Is it not possible to target specific lymph nodes? My IGRT by IMRT worked on nodal areas at least, with something like a 7mm or 10mm margin (can't recall specifically). The 50.4 Gy I had to pelvic lymph nodes wasn't a wide field exposure of my entire abdomen. They located the nodes from the CT scan and shaped the treatment field to include all of them.

Jerry