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update on onclogy vist last mo.

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Posted 11/18/2014 4:18 AM (GMT 0)
my last mos oncology vist went as I exp,, my psa levels had tripled, and after beening off Lupron for 8 mos they put me back on shots on oct 28/ as I have diebeties my right eye is bad and a operation is set up for in feb/15 left eye is bad to, have had a bone scan / and ct scan last wk, a endoscope test /barium swallow test ct test off my insides,,, can"t swallow food gets caught in throat, dr show me the film where on my 3,4,5,and 6 verbr in my neck have grown and are pushing against tra and windpipe, don"t know what s going to happen their? at least my back fracter is healing up, so on wenday have a appmt with oncology to see how my psa is doing after being put back on the shot? don"t mind my spelling ,as I can"t see for crap, now ive been feeling like not eating, cause it makes me feel naus,, hope everyone has a good holiday, kenny
Posted 11/18/2014 12:57 PM (GMT 0)
Kenny, So sorry to see you're going through such a rough time. My heart goes out to you. I hope the HT gives that PSA a good kick in the butt and your other issues can be addressed. Hang in there, I know some of the guys will be on here to give you some advice.
Susan
Posted 11/18/2014 4:08 PM (GMT 0)
Sorry to hear you're not doing so well,
Here's hoping some better days are just around the corner.

Andrew
Posted 11/18/2014 7:50 PM (GMT 0)
thanks a lot guys,Im just hoping that the Lupron started working to bring down my psa,, Ive on pain meds for back , it works good tomorrow is oncology dr appmoint, hoping for good news,, yeah

Post Edited (kenny123) : 11/19/2014 11:24:22 PM (GMT-7)

Posted 11/18/2014 8:55 PM (GMT 0)
Hi Kenny,

Has your oncologist considered adding Casodex and Avodart to your Lupron? If you are responding to Lupron, chances are adding Casodex and Avodart will make your HT even more effective.

My dad's PSA also experienced a very rapid increase last two months, with lymph mets, one of which is messing with his kidney function. He was on an HT holiday since Feb. 2012, so now we threw Casodex, Avodart and Lupron at it, hoping for another durable remission.

Many of the PC oncologist specialists (Snuffy Meyers, Strum, etc.) swear by triple hormone blockade, so it might be something to consider as well.
Posted 11/18/2014 9:27 PM (GMT 0)
I will see him tomorrorw ,and go over test results thanks Kenny will [post a follow up
Posted 11/18/2014 11:43 PM (GMT 0)
Kenny,
When were you diagnosed. How long have you been fighting the beast. When you start feeling better ( you will start feeling better ) post a signature on your profile. Prayers going out to you. Todd
Posted 11/19/2014 1:43 AM (GMT 0)
todd DX-2009 AGE 62 1ST MO OF RETIREMENT
PSA12 GLEASON[4+4-8 2010 R.P/ BIO 14 CORE 6MOS FAILED R.P./PSA3/2011 STARTED IMB RAD GOT 69 GRAYS/ LASTED 6 MOS/ 2011 STARTED H.T 24 MOS OF LUPRON GOT PSA DOWN TO .002 /OFF LUPRON LAST 8 M0S FROM MARCH TO NOV 2014 / STARTED BACK ON LUPRON 10/07/14 WENT PSA WAS AT 5/ KENNY

Post Edited (kenny123) : 11/18/2014 7:17:09 PM (GMT-7)

Posted 11/19/2014 3:26 AM (GMT 0)
Dang man. 1st month of retirement. That sucks. I want to retire some day. Lots of bullets in the gun my friend. I would not risk going off of the H/t again. I am on Zytiga now. It's good stuff. Psa down to an undetectable level. Hang in there bro
Posted 11/20/2014 6:22 AM (GMT 0)
well today seen my oncology dr at Hillman cancer center,all my tests and bone scans , were ok, but my psa went up from 5 to 8 in 1mo, my dr said the psa is not as inportment,as no cancer showing up in your scans,, so plan now is scans every 3 mos Lupron shots, and he put me on casodex, said it would buy me some more time? made me feel like very sad and depressed, and set up a throat surgery dr to see about bones growing against my windpipe, worst thing I get was get off H.treatment went psa was at lowest .02 [ best thing I did was read todds blog made me feel like there was some hope, until next up date in 3 mos , god bless
Posted 11/20/2014 2:08 PM (GMT 0)
Kenny, glad to see you're back on HT and now taking Casodex. Next your throat issues...you're moving forward and that's a positive step. We'll be looking for your update soon.
So glad you read Todd's blog because there is hope and his open, honest writing helps you to see & feel that!
All the best to you,
Susan
Posted 11/23/2014 4:18 AM (GMT 0)
glad to find so many good people, and info, on this website, may all have a blessed holiday,, kenny
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