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Posted 2/15/2015 10:27 AM (GMT 0)
Jerry, I've read your story and the many comments, and I disagree. When PSA comes back after years of ADT3 this is prove that ADT falls short of being an effective cure.. You may still wait for a while and see what's happening with PSA, but be assured that cancer will come back with a vengeance because some cancer cells that have survived the firestorm of ADT3 will continue to grow and will dominate the scene in 5, 10 years or later. And, lest you forget, the more aggressive and degenerated cancer cells have become the less PSA they will emit. So it would be logical to start thinking about a protocol that is different and stronger.. Reinardo
Posted 2/15/2015 3:11 PM (GMT 0)
Through off label prescriptions, diet and supplements, Myers is trying to encourage dormancy of the condition or remission for some period.
He has had success with some patients. I am hoping for continued remission in this case.
Posted 2/15/2015 3:23 PM (GMT 0)
Reinardo,

Thanks for the reminder..those thoughts are in the back of my head, but sometimes need to be front and center.

Someone in their 80s or 90s might view hormone therapy as a cure, but I have never. Even out of the gate after surgery and adj. radiation I decided not to go with adj hormone therapy because I wanted to know if we "got it all" without the cover of hormone therapy.

And yes I found out 15 months later when the PSA rose to .09 followed by 2 spots on the pelvic bone. At this point my attitude changed to..."if I'm going down, I'm going down swinging..". Decided to go see Dr. Myers...started ADT3, spot radiated those spots, and did all the side items that he generally prescribes (Avodart, Metformin, etc....). Stayed on ADT3 for about 15 months or so...followed by no hormone therapy for 2.5 years...In that time on vacation from hormone therapy my scans were good every 6 months and blood work every month was good, testosterone was normal for nearly all of that time. He also prescribed some out side the box drugs to lenghten my time in remission.

Needless to say my attitude is the same...just need to get away from the comfort of remission and start to get in the mindset of kicking this back again.

It's a bit challenging with me still being hormone sensitive and trying to get some of the newer drugs. I've tried several times to get Provenge and I just can't at this time. I will have a serious talk with Myers about early chemo...my challenge there is that the low volume met guys didn't show much improvement in the CHARRTED trial...but it seems to make logicial sense that earlier is better.

Any suggestions on what protocols you are thinking of?

Thanks,
Jerry

And I (and Dr. Myers) are not afraid to do things other than ADT3. Trust me, he has a lot up his sleave.
Posted 2/15/2015 4:35 PM (GMT 0)
I don't think that any of us view ADT3 as a cure for prostate cancer. It is one of the tools we use to try and induce a complete remission. Nor do I believe that the PCa cells that survive the "firestorm" of ADT3 predictably return as some sort of mutated warriors immune to conventional weaponry. These are simply cells that have found a different path and the key to maintaining a durable remission lies in locating and blocking these alternative paths. Charles Myers (a fifteen year PCa survivor) devoutly believes that by studying a patient's response to a multitude of treatment approaches he can individualize a plan to keep the remission locked and loaded. He also believes that we are on the threshold of breakthrough immunotherapy which will condition our body to do it's own detective work and implement the appropriate chemical defenses. The impact of Provenge in this field is still unclear but it grows more interesting as more field results are digested.

Jim
Posted 2/15/2015 4:51 PM (GMT 0)
Thanks robertc.

Honestly, being a g9 guy with mets I've been shocked that I've been able to enjoy any kind of remission for such a long time...it was a nice period of time to feel normal on several fronts, including giving my body a break and to be able to get stronger...

Thanks for your continued support all these years...I've always enjoyed comparing notes with you on the current and pipeline drugs and therapies...like most others, my hope is that the current drugs will last long enough for the pipeline hits to play a role and ultimately .. make this a chronic disease...I never needed a cure...Just want it to be a manageable disease...
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