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20 months and still dribble.

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Posted 2/20/2015 11:12 PM (GMT 0)
It has been 20 months since the surgery and my urologist last week informed me that my psa is still undetectable Well on one hand I am blessed with keeping the beast at bay, while on the other hand I still dribble. I am happy on one hand but discouraged on the other. ED issues and a dull ache is the norm. Sorry to complain, just one of those days.
Posted 2/20/2015 11:16 PM (GMT 0)
I feel for you Pww, what does your Dr say? Have you tried biofeedback?
But congrats on the PSA, try to think of the glass as half full, with undetectable PSA
Posted 2/21/2015 3:13 PM (GMT 0)
Interested in this thread, I still have minor dribbles after peeing and when and getting up off the couch

If it wasn't for that I would be pad free
Posted 2/21/2015 8:08 PM (GMT 0)
The Urologist informed me that I am the first one to have this type of ache after surgery performed by him. He said that the ache is not from cancer and ED issues are common. My leaky tap issues are more of a dribble ,though working out or shoveling in this Great White North can also increase the flow. I guess it is what it is, I get to kiss my wife good night, tell my sons and grandchildren I love them ,,, and never ever take my life for granted.
Posted 2/21/2015 11:35 PM (GMT 0)
Pww,

I had my RALP in April of 2012. I still dribble occasionally. Mostly when I stand up quickly, or try to lift a heavy object. I still wear an ultralight pad every day; just to feel safe. I've gotten to the point where it is just a habit to put the pad in my underwear every morning. I still sleep on a waterproof pad, because of the occasional leak; especially when my bladder gets overfull.

Considering that I have a G8 pathology report, I am just glad to only have to deal with that. Some men recover quickly. Others of us take longer; or never completely recover. I feel your disappointment; but it is still better than the alternatives. And your PSA report is a good thing. After nearly 3 years, I just had to deal with my PSA being detectable - maybe. Now I'm back to the waiting game (another PSA in March) - a common theme with this beast.

Hang in there, and enjoy whatever pluses you get!

-Bob
Posted 2/22/2015 12:12 AM (GMT 0)
I'll be five years post op in September this year. PSA 0, but I still dribble. I hate it but its the norm now. Still wear a pad 98%of the time. Have to shoot up for a usable erection. Have excepted that to.
The real thing that irks me is that I lost 2in off my penis. Only 3-1\2 now. I feel bad for my wife. She says it does not bother her, but I'm sure it does. But I guess we have to concentrate on the good things. I'm still here and life is still good, just a few small bumps now and than.
Posted 2/22/2015 10:57 PM (GMT 0)
Pratoman

How does biofeedback work, I am looking for anything that might help.
Posted 2/23/2015 12:18 AM (GMT 0)
I'm 13 months from surgery now and I wear a Depends Shield all the time. I leak when I cough, sneeze, twist in my chair too quickly, and of course a slow dribble when up on my feet for a long time - like when I play golf. I just try to empty my bladder every couple of hours if given the opportunity. Keeps the shield dry enough to last through the day. I change it before going to sleep at night just so I am sleeping in a "dry environment." I don't think I've made any progress since about month 7 or 8. This may be as good as it gets for me. I'm going to France in June for 3 weeks. I was hoping when we made the reservations back in Nov that I might be completely dry by June. It doesn't look like that will happen. But I am so happy to be alive and kickin"!
Posted 2/23/2015 12:19 AM (GMT 0)
Pww, I've never used biofeedback, but know other members have, with success.

Here is a link to the website of a urology practice that I found, with a good explanation of biofeedback...

www.towerurology.com/treatment-options-post-prostatectomy-incontinence/
Posted 2/23/2015 4:04 AM (GMT 0)
Biofeedback might help. However if you think you have done a good job of Kegel exercises since surgery and it's been over 1.5 years, you might want to consider surgical help in the form of either a Sling or artificial sphincter(AUS). Search/google for both of those terms here and on the net.
Posted 2/23/2015 6:54 AM (GMT 0)
Guys,
I agree with BillyBob (above).
If you've been doing kegels for more than a year and your leaking is bothering you and affecting your life, Get it fixed. Start weighing your pee pads so you can determine how much you are leaking every day. You will need that data to decide upon a treatment option.
If you leak less than 200 ml, 7 oz, per day and have residual control a sling will likely fix you up.
In the meantime, try pushing up on your perineum after you finish going. Reach around behind you or to one side of your scrotum and lift up. Practice this while peeing in the shower. You will be surprised at how much squirts out after you thought you were finished.
Caution: Don't do this in public! That kind of action can have you arrested as a sex offender in 17 states. :-)

Jeff (Been there. Done that. Got the sling.)
Posted 2/23/2015 9:31 PM (GMT 0)
As a side question, does anyone ache as a result of the surgery. I would honestly say I started to have this issue right after my surgery. I have a lot to be thankful for and please do not take this as complaining.
Posted 2/24/2015 2:52 PM (GMT 0)
As Pratoman said on 2/20, about the dull ache, I'd ask my Doc specifically about that.....

I haven't heard anyone else complaining about that specific .....
Posted 2/24/2015 9:11 PM (GMT 0)
Thursday is the day to ask the family GP what is going on. The urologist said it is not cancer based on the numbers but then what is it.
Posted 2/25/2015 12:30 AM (GMT 0)
I'm about 20 months too and still dribble. However I feel I've had some improvement by using a techneque mentioned by a member here of stopping midstream when peeing. I do it 3 or 4 times each time I go and feel there has been improvement, so much so that I now generally have confidence to walk around without a pad on.
Posted 2/25/2015 2:27 AM (GMT 0)
Pww,

I still dribble (spot) at least once a week... just a little spot. It does not bother me too much. I'm dry most of the time. I dont do Kegels, they work against me.... my Uro suggested I took a brake from Kegels for a month and during my brake things resolved itself.

I've listed my journey in my profile (see my story)

ED is on the improve -- I don’t know why, but in the last 6 weeks things have been almost normal to pre-RRP times.

Hang in there and ENJOY those ZEROS

.
Posted 2/27/2015 12:49 AM (GMT 0)
I did PT to include bio feed back for about five months and it helped but I came to a road block and never got better. Used two types of bio feed back one was electrodes attached at various spots to check how well you are recruiting your pelvic floor muscles, the second was a device that was place where the sun doesn't shine, use lube first, and it was a stimulator to help work the muscles in the pelvic floor to help build these muscles, kegels tell blue in the face and still leaking good day 3 pads, and activity 6-8 pads a day...come up on 500 days post pop, enough already time for another surgery, waiting for my referral from my PCM to URO to get things fixed!
Posted 2/28/2015 5:28 PM (GMT 0)
After 20 months I'd look into an artificial Sphincter valve or sling surgery, I elected sling surgery after 18 months and still leaking. It was a year if testing, cytodynamics and urodynamics and then I had the sling installed after 2 1/2 years of leakage. VOILA ...dry! Have not leaked a drop since, it was a life changer, you don't have to just settle for having beat the C. Research your options, you'll know when you've had enough of the leakage and if you're ready for a change.

Ron
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