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Posted 3/22/2015 1:50 PM (GMT 0)
Just when I was feeling that I'm considered totally continent.
By my DRs definition (no pads, I asked him before the surgery) I am and have been for 6 weeks.

And the last week I've had nothing more than a few squirts here and there,maybe once or twice a day. What's more since almost the beginning, I've been totally dry at night.

So I was shocked when I woke up last night at about 3AM, in the middle of pissing myself. My briefs were pretty soaked. I was able to stand up and stop it immediately. Went to the bathroom and finished peeing normally.
WHat the hell?? Why would this happen all of a sudden, for no reason. I didn't drink excessively when I went for dinner last night, and had no alcohol just a club soda.

Once again, very frustrated. I had been feeling like, if not for the. PSA anxiety, I would not even realize I had surgery
Posted 3/22/2015 2:05 PM (GMT 0)
Do you recall if you were dreaming about pissing? Seriously, it's happened to me, pre surgery!

Cheers, Doug
Posted 3/22/2015 2:17 PM (GMT 0)
Nope Doug, don't recall dreaming about it. The night beofre though I had a dream about needing to go bad, and not being able to find a bathroom. But I'm sure that's not related.
Posted 3/22/2015 7:08 PM (GMT 0)
That is one thing I do worry about a little, and it does happen: dreaming about taking a piss. The dreams have happened but no bad results yet, but scary when I realize it is happening. So far at 13 months out, the worst has been about 3 weeks out when I woke up with a pretty good wet spot on my underwear. At this point I can not even remember if I had already quit sleeping in pads by then, or if I had a pad and managed for the tip to sneak out side of the boundary. But whichever, it has not happened since.

Let's face it, once they start cutting down there, various problems with various timing can arise. Well, except for one thing which never arises, no problem in that area anymore!
Posted 3/22/2015 7:14 PM (GMT 0)
Billy, seems strange though, after being pretty much continent, and especially dry at night even before I was fully continent, to suddenly have an episode while sleeping. And this was bigger than what I would call a wet spot. It was / is very distressing.
Posted 3/22/2015 9:13 PM (GMT 0)
I've had that happen twice in the three plus years since surgery and both times were after a day of strenuous exercise. Once after riding 50 miles on my bicycle and the other after hiking 8 hours up and down a mountain in Alaska. My muscles were just plain worn out and tired. I wouldn't worry too much unless it begins to happen with some regularity. I still do kegels daily since I know this can be an "age" issue even without surgery.

Tom
Posted 3/22/2015 10:06 PM (GMT 0)
Reltnie, thanks. The only tHing I did yestrday was a 2.5 mile walk, vs my usual 2. Other than that it was just a normal day, supermarket, out to dinner etc.

Wonder if I should cut YHE Kegels to 3 sets of 10 a day, instead of 4.
Posted 3/22/2015 11:52 PM (GMT 0)
This is obviously a "from the outside looking in" perspective, but I see you doing great.

Frustration notwithstanding...
Posted 3/23/2015 12:40 AM (GMT 0)
ThanksIsland.i usually think I'm doing great too. Then crap like this happens
Posted 3/23/2015 3:17 PM (GMT 0)
Just more of the constant reminder of what has happened to you. These will come around in various forms for a long time to come. As for pee-ing oneself, about 6 months out from surgery I also wet myself while sleeping (twice). Then one day while talking to a neighbor while out walking I completely soaked my shorts without even noticing it. I wouldn't have known right away but noticed him looking down there during our conversation. All pretty dry now, but who knows for sure and for how long.
There are quite a few SE's from this surgery, and they just keep on coming. A gold standard, I don't think so, a form of treatment, yes..
Posted 3/23/2015 3:25 PM (GMT 0)
Pratoman, I hope you won't let this one incident trouble you too much. Our brains do weird things while we sleep, and hopefully this was just a "hiccup" in an otherwise successful recovery toward full continence.

Sleeping changes the way our bodies and minds interact. For example, I just read the other day that we don't sneeze while sleeping. The brain turns off the sneeze mechanism.

I'll bet your body will soon learn to not let itself relax to the point that the urge to urinate overpowers the will not to. Keep up the good progress, and don't let the occasional setback get you down.
Posted 3/23/2015 3:39 PM (GMT 0)
I dream about needing to pee all the time. Seems like I'm always trying to pee in a closet..

I wake and go to the bathroom.....

Odds this is what you did - you just didn't wake up.
Posted 3/23/2015 4:08 PM (GMT 0)
Hang in there Prato, SE's with all of the treatments, you know that - and um, BTW, last time I checked you're not even 3 months post surgery yet - ARE YOU?

Chill 'bro.
Posted 3/23/2015 4:15 PM (GMT 0)
Probably just an inexplicable ISOLATED event

Mel
Posted 3/23/2015 6:52 PM (GMT 0)
Thanks for the comments and reminders guys. I went to bed last night nervous as all hell, thinking that if it happens again, i will be suicidal. But it didnt, i woke up dry as a bone, although i did wake after 3 hours to pee. So hopefully as Mel said, a one off isolated incident.

@Yoop, you are right, I'll be three months on April 6th, so i am 2 weeks away.
Posted 3/23/2015 6:59 PM (GMT 0)
Prat:

Suicidal???

Or...you can buy stock in Depends

Mel
Posted 3/23/2015 7:01 PM (GMT 0)
You're right, second choice is better. Bad choice of words, i meant it as a figure of speech. Allow me some poetic license. ;-)
Posted 3/24/2015 12:46 AM (GMT 0)
club soda? You may be pushing the envelope. I like that in a human being!!
Posted 3/24/2015 12:33 PM (GMT 0)
I love to live on the edge ;-)
Posted 3/24/2015 5:43 PM (GMT 0)

Prato

 This has happened to me twice in the last few months. Both times happened at the end of a long week at work and I was exhausted. So I am hoping that was the problem. So now I wear a pad at night and jump up in the middle of the night to check myself. Then get up and go to the bathroom and make myself go. This happens as much as four times a night. I told my uro about this and he gave me a bladder control med to take once a day. I took it for about two weeks but had terrible bladder spasms so I quit taking them. I am dry doing the day and have very good control. I do leak when on top having sex so I get to be on the bottom now. Which is a good experience for me, it is her turn now to do the work. Lol  All of this reminds me of my childhood when I was a bed wetter. The only difference now is my dad isn't pulling me out of bed at 3 in the morning whipping my behind. Or getting me up in the dead of winter making me go outside to pee. Yep, I am that old, didn't have indoor plumping in the hills of WVa back then. So we are reverting back to our childhood, in diapers and no teeth. Lol But through all of this, I am blessed to be cancer free, I am living my life LARGE from here on out. I have the heart and mind of a 18yr old and the body of a 95 yr old. But I don't care, I AM LIVING LARGE!! Blessing to ya Bro, TC

Posted 3/24/2015 6:02 PM (GMT 0)
Pratoman,

Like Tom (Reltnie), I can on rare occasions get more leakage after strenuous exercise. I try to avoid liquids within 3 hours of sleep and almost never wake up to make my bladder gladder, although I often have a minuscule amount of dripping during the night.

As others have suggested, this is likely a rare event, a "black swan" that may not happen again. Take care and hang in there.

Tim
Posted 3/24/2015 11:57 PM (GMT 0)
Thanks. It is so weird how this thing is soooooo not linear.
Last two nights, no leakage. In fact last night I slept 6 straight hours, a new personal best post surgery, and woke completely dry. Walked to the bathroom and pissed my brains out.

Today all day till just after lunch (only drank half a. Glass of water at lunch) I was good, then after lunch, till end of day, I was leaking on and off. No logic.

At least when I do leak it's not so much that. Need to wear anything.
All in all I count my blessings and am trying to be patient,
Posted 3/25/2015 5:19 PM (GMT 0)
Pratoman,

I understand your frustration. One week I am totally dry, and then for a day or two, squirt, squirt, squirt...or, at least I think I am leaking, when sometimes it's just a spasm and nothing actually comes out. Don't let those isolated incidents get you down. Your body is still healing. This is something I am really struggling with right now. I feel good enough that I think I can do whatever I want to do, but the reality is I'm still healing. Try to take the long view.
Posted 3/25/2015 11:00 PM (GMT 0)
I had my surgery almost two years ago and was plugging along pretty well with the incontinence until a couple of months ago when I had a similar situation. I woke up in the middle of the night and caught myself having to cut off the stream. Even during the day I could tell that things were not as good as they had been.
Like you, I was frustrated thinking "what the hell, I thought I was past this".

Two months later and everything is back to normal if not better than ever. Be patient. Two steps forward and one step back but you still get there.

Jim
Posted 3/25/2015 11:14 PM (GMT 0)
Hey Prat...Self-affirmation, You're doing GREAT! Sometimes you have to find comfort in what you don't have.  If you can eat, sleep and poop...It's more than some of us have.  shocked I can only quote Rob Schneider from "Animal".  You know that my answer always comes from my funny bone, though riddled by Lupron.

Rent a funny movie or call a friend that makes you laugh.  Step AWAY from this for a couple of hours, okay?

Hugs~~Dixie

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