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Posted 2/12/2012 11:52 PM (GMT 0)
I was curious as to what treatments all Stage T2C patients opted for and how things turned out.

Myself, as per my bio, I'm on my last 3 months of Lupron and so far very happy with my choice of treatments, although at the time I had no clue what I was getting into.
Posted 2/13/2012 1:31 AM (GMT 0)
FoxRun,
Looks like you have some good numbers. Most likely HT is in myfuture after having surgery and SRT.
Michael
Posted 2/13/2012 4:10 AM (GMT 0)
I know exactly what your are feeling and thinking and I am a T3b, Gleason 9. Had a RRP and 4 Provenge Treatments. Nine months into the recovery somehow I have no detectable cancer. Because like you, I am a high risk, I get my PSA tested every two months (so I can never get it out of my mind and move one) I can only think about the day it returns and not celebrate and enjoy that it is non-detectable. I have tried to celebrate but I have this darn dark cloud that hangs over my head every single minute of every single day. I wished I could say I am a member of the zero club, but how can I since statistically I shouldn't be.

Somehow we just need to figure out how to enjoy the moment that we are non-detectable and when the ship hits the sand bar then we can deal with what is next. For me, when that comes, I have a standing walk-in appointment to start the Lupron for six weeks and then continue Lupron and IMRT until I get the final glow about me I have always wanted. When that fails i guess chemo will be the next drug of choice and then after that I get to make that choice of what lies ahead.

I hate this fing PCa. I really do hate it and it has changed my life, not for the better.

Good luck on your journey.
Posted 2/13/2012 12:08 PM (GMT 0)
I was a T2C post surgery pathology and so far my RALP has been successful. The tumor was G7 and 60% of my prostate but 100% organ confined. First 2 PSA tests have been undetectable. One thing about this terrible disease is  no two of us are alike and even with the same grading and staging it effects us differently.
Posted 2/13/2012 3:27 PM (GMT 0)
I was T2b, clinically, but with the 12/12 cores and high PSA I have always wondered whether a surgical pathology would have been worse. Based on the risk factors we hit it hard up front as you can see in my signature. I see my approach was very similar to FoxRun. As I expect to be on HT for at least two years, on the 7th or April I will have another six-month shot of either Lupron or Eligard. I am also on daily Jalyn (Avodart and Flomax) and will continue indefinately. So far I have been zeros on the PSA.

We don't think of celebrating, rather we know this is something to manage long term like diabetes. Too often people celebtrate when told "undetectible" without understanding what that means, only to be "detectible" at a later date. No false expectations for us. I say us as my wife is being treated for her second bout of breast cancer in 16 years.
Posted 2/13/2012 7:41 PM (GMT 0)
hi, Fox:

i too was a T2C.  had open RRP 3 years ago, then a PSA rise around a year and a half, with a round of SRT.  have been a "zero" ever since; hopefully can keep that going for a few years.  meantime, i am not without side effects (like ED), but am working around these, and basically: Life is Good !

bob

Posted 2/13/2012 8:42 PM (GMT 0)
Brachytherapy here ...
Posted 2/13/2012 9:59 PM (GMT 0)
I had open RRP in 07, and had zero's until spring 2010, when my PSA began t0 slowly climb. It took almost 2 years to get from .04 to .14, then drop back to the current .10. What does that tell me? Darn if I know, other than the usual suggestions of benign prostate bed tissue producing it, and a couple other theories.

As you read more stories of us pT2c's, you'll notice that few of us have followed the same results path. That's what's so aggravating with this disease, it is so personal and individual to each man.
Posted 2/15/2012 3:30 PM (GMT 0)

questionaboutit said...
Hi,

I don't want to hijack this thread but is it unusual for a G6 to be a T2c? Before I was 55, my PSA was always low, I had DRE's at least once a year, often two because I see two drs and they both insisted on copping a feel once a year at least. DREs had been perfect/ Suddenly, I turned 55 and my PSA skyrockets rapidly and I suddenly had a palpable tumor. I have never understood how things progressed so fast for a G6.

Thanks.

 

 

Yes it is.....who classed it as a G6?

Posted 2/15/2012 3:42 PM (GMT 0)
I am a T2C, Gleason 7.

I had open surgery - it failed within 9 months

I had SRT - it failed in less than 9 months

Current PSA as of December: 14.0 and rising

David in SC
Posted 2/15/2012 5:36 PM (GMT 0)
I'm a T2C also. Gleason 7 (3+4)

Had DaVinci and so far so good.
Posted 2/15/2012 10:00 PM (GMT 0)
T2c here, Gleason 3+4.

Surgery 2006
rising PSA several months later
Salvage radiation 2007 (IMRT)

PSA less than 0.1 now for nearly 5 years. Side effects pretty minimal and mostly from surgery.
Posted 2/15/2012 10:41 PM (GMT 0)
Galileo,

What an amazing contrast between our two cases. Same Gleason (I was actually downgraded to a 3+4), both had surgery, both had SRT, yet you have been "clear" for almost 5 years. Helps proves the point about how erratic Gleason 7 cases can be.

david
Posted 2/15/2012 11:34 PM (GMT 0)
David, yes, that's true. Two people with similar pathology, similar treatments, yet vastly different outcomes. Hopefully I'm not too much of an evangelist for either of my two treatments.
Gleason 7 is sort of a fence straddler, I suppose.
Posted 2/16/2012 12:29 AM (GMT 0)
T2c, 3+4. Had da Vinci 3 weeks ago tomorrow. So I don't have any info on PSA results yet. 1mm of positive margin at the apex that they claim will be inconsequential because the cancer simply goes to the edge of the prostate and stops for lack of anywhere else to go. We shall see if that is true.
Posted 3/7/2014 5:51 PM (GMT 0)

Hi All,

I'm brand spankin' new here.  Currently recovering from surgery (1 week), so haven't had a 3 mo PSA check yet.  Got my post surgery pathology report today along with one catheter removal and approximately 20 - 25 staples. Moving slow, but on the mend. 

I am pleased with the outcome of my treatment decision to go with the Da Vinci Robotic Surgery.  After research online and being fortunate to live in an area (Northern Virginia) with advanced medical technology, I found a great surgeon, Dr. Simon Chung, Urology. 

I'll be back checking in as my recovery continues.  I've already found this site a wealth of information and appreciate living in a day and age where we have the world wide web.

Best to All!

Posted 3/7/2014 5:58 PM (GMT 0)
Hello TDubb,

I've started a new thread for you so folks can say hello.

Sorry you need to be here but glad you found us.

Here's that thread: www.healingwell.com/community/default.aspx?f=35&m=3013195&g=3013195#m3013195
Posted 4/14/2015 8:58 AM (GMT 0)
Newbie here
Age 56
Diagnosed Nov 14, biopsy 1 of 12 positive less than 20%
PSA 9
Scored 2Ta or 1Tc. ....Gleason 7 (3+4)
Robotic surgery 2/15
Total organ weight 39 grams
1.2 grams cancer no vesicles involved
bladder neck and all lymph nodes negative.
All margins negative
Scored 2Tc Gleason 7 (3+4).
1st ultra sensitive post surgery PSA <.03
Undetectable.
Both nerves spared but some incontinence issues
And ED.
hopefully PSA stays down and post-op issues resolved
Themselves.
Unnerving waiting for the next shoe to drop
mike

Post Edited (warancher) : 4/14/2015 3:05:42 AM (GMT-6)

Posted 4/14/2015 10:45 AM (GMT 0)
Also a T2C, Gleason 7 (4+3). Coming up on 2 years post surgery and all zero's so far.
Posted 4/14/2015 10:59 AM (GMT 0)
I was T1C pre-surgery, 3/12 positive cores all on one side, G6 on all cores. T2C post surgery, G3+4 in all 4 quadrants, no EPE, nodes and SV's clear. I'm 8 weeks post surgery today, first PSA at 3 weeks, 0.1. Next PSA at 3 months (mid-May).

At the moment, no indication that any future treatment will be required.
Posted 4/14/2015 1:38 PM (GMT 0)
I was clinical T2C and post surgery T3A. No other treatments. Undetectable PSA going on 4 years.
Posted 4/14/2015 2:07 PM (GMT 0)
I was T2c and had follow up SRT with 6 months Lupron. Last test .04. We'll find out more in May after my next PSA test.
Posted 4/14/2015 2:21 PM (GMT 0)

FoxRun said...
questionaboutit said...
Hi,

I don't want to hijack this thread but is it unusual for a G6 to be a T2c? Before I was 55, my PSA was always low, I had DRE's at least once a year, often two because I see two drs and they both insisted on copping a feel once a year at least. DREs had been perfect/ Suddenly, I turned 55 and my PSA skyrockets rapidly and I suddenly had a palpable tumor. I have never understood how things progressed so fast for a G6.

Thanks.




Yes it is.....who classed it as a G6?


My PSA's stayed under 6, in fact my highest was 5.4 I believe, when I was diagnosed T2c last July at age 47. That PSA was the one high one I had, with slow increases over previous two years from around 2.8, topping off in around 4.3 until that 5 showed up, and convinced me to do the biopsy. My biopsy results came back G6. I had Davinci RP on 10-8-14, path results remained G6, negative margins, 11% involvement.

Just had my six month, still holding at zero.
Posted 4/18/2015 4:44 PM (GMT 0)
I was diagnosed 5/2014 as T2C. No other treatments and psa's have come back undetectable since. However, 2/2015 ultrasensitive psa registered .009. Doc indicated he was not overly concerned "at this time" but ordered the Decipher test. Next apt. in June to review results and take next psa. I suspect that I'll be considering SRT in the near future. I appreciate all those that have contributed to this forum. The posting are informative and have provided me with some comfort, and laughs!
Posted 4/18/2015 4:50 PM (GMT 0)
Signature included (I hope)
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