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"6 Things Men need to know about prostate cancer"

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Posted 4/27/2015 4:19 PM (GMT 0)
Good article I happened upon today. I didn't see that it had been posted.

www.fredhutch.org/en/news/center-news/2015/04/what-to-know-about-prostate-cancer.html


'“Doctors woefully underestimate patients’ problems with side effects from treatment for prostate cancer,” said Gore, citing research showing that men’s cancer specialists are not aware just how much their patients are bothered by incontinence, a frequent need to urinate, sexual dysfunction, and other quality-of-life issues commonly caused by treatments for prostate cancer.'

Linked inside this article is a treatment decision tool that has a lot of good information for those looking at their treatment options:
www.effectivehealthcare.ahrq.gov/ehc/decisionaids/prostate-cancer/
Posted 4/27/2015 5:22 PM (GMT 0)
GOOD STUFF, Eric.

My stage 4 endometriosis, which IMO is somewhat akin to PC, is terminal to my QOL. 

I was castrated @ 33, robbed of my lifelong desire to be a mother. I was left with vaginal pain so severe, intercourse was impossible.  I was thrown into surgically induced menopause, which was HELL on earth for 3+ years. I was treated with multiple series of Lupron, which proved ineffective for "slowing" my disease.  It was also a death warrant for my bone health.

I'm 2 decades down the road, off in the proverbial ditch.  I suffer with severe arthritis, in need of TKRs.  I have abdominal adhesions so severe, my bladder and bowels cannot properly function.  I'm told by 8 specialists across 3 states to seek Pain Management.  I'm trying...for 15 months now.  I can't tolerate opiates so far because of GI issues.

I'm told by my PM doc that "There are new medications that can change your life...if only you can afford them".  I can't, without risking everything my husband and I have worked for 35 years.  I won't.  Who CAN afford these new "boutique meds" created by big pharma?

Quality...nada   Life...nada    Existing...yep   Façade of health...always

Thanks for sharing, Eric.

~Dixie

Posted 4/27/2015 5:45 PM (GMT 0)
Ichabod,

The link you provided was quite good.  It had something from everyone across the entire spectrum of PC cases...everything from those seeking to reduce their risk for PC (diet) to those seeking clinical trials for advanced treatments.

I did have trouble with the link as you posted it.  I'll try re-posting it here in case others also have issues:

https://www.fredhutch.org/en/news/center-news/2015/04/what-to-know-about-prostate-cancer.html

 

Posted 4/27/2015 5:52 PM (GMT 0)
for some reason, my browser is adding this into the link: <strong></strong>
Likely a bug in Firefox. Also, it looks like the site might be down at the moment - I was able to view earlier after correcting the URL, but now it's not loading.

Andrew
Posted 4/28/2015 2:48 PM (GMT 0)
Yeah, I tried multiple times to repost the url, but it keeps adding "<strong></strong>" if you clip that out of the url, it should load.
Posted 4/28/2015 10:12 PM (GMT 0)
Dixie6,

My wife had severe endometriosis too. When she was around 20 she had exploratory surgery and removed a lot of the endometrial tissues in her abdomen. She tried Depo-Provera injections and other drugs but nothing helped. For years she would have excruciating cramps and periods. Before she was 30 years old she underwent a complete hysterectomy. She said that was the best thing she ever done.
Posted 4/28/2015 10:29 PM (GMT 0)
Thank you so much for sharing that, although I'm sorry your wife had to suffer with this disease.  It is a mystery to most, including GYNs.  I think the statistics claim that perhaps 100 out of 52,000 GYNs are capable of diagnosing/treating endometriosis, once it attaches throughout the abdominal cavity.

I can only attest to my experience, which I have been made to feel is the exception and not the rule.  I also had TAH/BSO 21 years ago, when the lesions of disease blocked my common bile duct.  My liver failed and I nearly died.  Oh, that was after the first 2 laps and Lupron.

I awakened with NG tubes for days, to hear my cancer surgeon say "I did the best I could to remove all of the disease.  It was like a shotgun blast to the gut...everywhere, on every organ. I did the best I could, but cannot promise no regrowth.  Yours is a difficult case."

I was prescribed Megace and forbidden to EVER take HRT.  Women differ, as do men.  Surgery works to excise the disease from some...others, not so much.  Your wife was fortunate her surgery provided relief.

~Dixie  

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