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Posted 9/8/2015 4:35 PM (GMT 0)
Had my blood draw this morning. My first test since moving to 6 month intervals....finger crossed.

pat
Posted 9/8/2015 6:26 PM (GMT 0)
Just got the results from my first post-RALP PSA test. <0.01 Yay!! I'm feeling pretty good. Seven weeks out from surgery and I am dry. Hit golf balls for the first time today with no leakage. If only there was some progress on the ED front.
Posted 9/9/2015 12:04 AM (GMT 0)
Some great reports, congrats ,

@VAWolf, 7 weeks out of surgery, completely dry, that's terrific. Be patient it's way early n the ED front.
Posted 9/9/2015 1:53 PM (GMT 0)
Had my blood draw last Thursday. Got results today .01 Relieved. I'm still a happy member of the ZERO club.

Rick
Posted 9/9/2015 2:48 PM (GMT 0)
Though I was hoping Testosterone would start to increase without any PSA increase now that I am on IHT since April, all my Sept tests were favorable.

PSA < 0.02
CTC = 0 (Circulating tumor cell test)
DHT <5
T <20
PAP = 0.9 (prostatic acid phosphatase)
alkaline phosphatase = 55
Vitamin D, 25-OH = 59
AST = 21
ALT = 24

Red Blood Cell count (4.15) , Hemoglobin (12.5) and Hematocrit (37.9) continue to show slight anemia ever since I had the Provenge treatments, but white blood cell count (5.6) is now back within range for first time since Nov 3, 2014 final Provenge infusion.
Posted 9/10/2015 12:23 PM (GMT 0)
Received my PSA results on Tuesday, <0.1 which is good. Not doing the USPSA and maybe should be?

Dx at 49
PSA 2.6,3.1, and 3.8 from Aug 2013- Feb 2014
Biopsy 2-14-2014 2 of 12 cores positive 20% and 50% Gleason 3+3 T1c
RALP at Mayo 3-17-2014
Pathology: PT2c, Gleason 6, Both lobes involved 2 tumors 2cmx2cmx1cm front right and rear left
56.5g, confined to prostate neg margins and vesicles.
99% continent but still fighting ED with Trimix and 20mg Cialis.
At times very frustrated with my new normal.
Posted 9/10/2015 12:46 PM (GMT 0)
Great results guys.

Bville, tough call, USPSA makes people often needlessly nervous. I am doint the US, but i think if i was a G6, i would ask my surgeon to not do it, just do a regular PSA.
Posted 9/11/2015 2:03 AM (GMT 0)
Results back - still undetectable :)

Half way to the 5 year mark - six months at a time.

Thanks for all the support.

pat
Posted 9/11/2015 4:04 PM (GMT 0)
Hello Everyone,
I just had my Sept Labs done and came in with another zero. My last 3 month Lupron shot was March 5th so the side effects are fading for the most part (except hot flashes). My T level is up to a low normal of 242. My oncologist said the next 6 months will be important to watch the PSA level and make sure it doesn't rise. Thanks
Posted 9/11/2015 4:30 PM (GMT 0)
Had blood drawn yesterday and had another Eligard shot. ( only 3 left HOORAY). PSA and Testosterone were both undetectable. Like those zeros. Am surviving the hot flashes.

Good Luck everybody.

Carl
Posted 9/13/2015 1:36 AM (GMT 0)
Dad's PSA came back at 0.10 this month. Good news, continuing a slow decline over last 4 months while on Xtandi (+ Lupron, etc.). PSA has crept down from 0.7 to 0.1, so we're very happy.

Xtandi symptoms have been very severe: extreme fatigue, very low appetite (and loss of weight), random spikes in blood pressure, plus vision problems (sparkles of light, and blurriness). Apparently, these symptoms occur in a small minority of Xtandi patients, and are due to the way the drug is affecting the brain (Xtandi can enter the brain). Should such symptoms be encountered (and it was emphasized that these are indeed very rare), Xtandi must be immediately discontinued, since it could lead to permanent damage (this is being investigated by the manufacturer as one of the rare very serious side effects that are newly emerging, as more and more patients are put on the drug).

So, overall, a great month, very grateful that Xtandi contributed to fighting back the cancer, but my dad won't be missing it at all :)

Will shift to Zytiga (which does not enter the brain) and hope that it kills any remaining cells and resolved his bone involvement spots.

Arthur
Posted 9/13/2015 3:45 AM (GMT 0)
Bob wasn't due for next PSA until Oct. 15 but going in early because we're losing insurance Oct. 1. Hoping we don't see another rise but w/ two consecutive rises I am not very hopeful. He'll be getting his test Tues. Sept.15th.
Posted 9/14/2015 5:37 AM (GMT 0)
Congratulations to all with the good news!

Ms.WorryWart, I am watching for better news. I like to keep up with those I've posted with. I hope you had a nice summer! Ron's vertigo is much better as is his tail bone. Prayers for your hubby.
Posted 9/14/2015 12:39 PM (GMT 0)
Am at 6 weeks off the Zytiga, and finally my liver is functioning again.

The Zytiga did knock my PSA down from 7 this spring to 2.5 6 weeks ago, and 2 this week.

Seeing the Onco this week. We will talk about Xtandi, since it has no liver SE listed. But the new notes here and on the Xtandi site for the SEs are a bit concerning.

The Lupron is now permanent, they tell me.
Posted 9/14/2015 1:42 PM (GMT 0)
Frank's PSA rose from 1.5 to 2.0 in 26 days...Xtandi is his next step.

Lisa
Posted 9/14/2015 2:44 PM (GMT 0)
Had my first post-op test on 9/9. Result <.003

-------------------------------------------------------
Age 54 as of 2015

PSA 2012=3.1, Feb 2013=2.76, Mar 2014=3.12, Jul 2014 3.5, Jan 2015=3.46
Bx and Dx Feb 2015 = 4 of 12 cores all G6 (5-25%)
RALP at USC on 6/8/15. Pathology: Gleason 6 5% of gland. ECE, Margins, LN, SV all negative
Posted 9/15/2015 2:45 AM (GMT 0)
Lab results received today. I am very happy to report a PSA < .01. Now over 4 years since SRT and HT. I think that my medical oncologist is going to cut me loose from annual appts soon.
Posted 9/16/2015 2:33 AM (GMT 0)
Same day results this time. Doc knew I was ticked. Up from .06 to .07 in two months. Still not concerned because under .1 Suggests prolaris test to see if it shows aggressive cancer to determine to start radiation earlier than the .2 Says too many times he's seen this on PSA that they can get to .1 hang out there for a while and then drop back down. Funny how what he sees in his patient contradicts what we see here. Prolaris off the table for now due to insurance drama. ~Miki
Posted 9/16/2015 2:56 AM (GMT 0)
Getting more nervous. See vampire Friday.

Mel
Posted 9/16/2015 6:26 PM (GMT 0)
Late August result here. Another undetectable on the ultrasensitive assay. This is now 4 years out. Since the uro is managing T replacement I still see him in 6 months.

Explorer
Posted 9/17/2015 2:37 AM (GMT 0)
Big sigh of relief, yesterdays test came back as <.01.

Now 11 months since last HT injection, so not sure to what extent that is still having an effect, but I'll take the result for what it is and relax for a while.

Seeing the Uro next week and will discuss the future of the suprapubic catheter.

Chas
Posted 9/17/2015 1:10 PM (GMT 0)
My PSA this month is 3.44, down slightly from 3.54 in August. This is my 13th month on Zytiga. Since the trend is flat or down, I am 'stable'. I asked the Onco about my testosterone level in July and he responded that he does not order that test. Did not say why but seemed to infer that he does not need it. Would that test be useful to me?

I am happy to see some good results coming in on this thread!
Posted 9/18/2015 7:31 PM (GMT 0)
Well, I saw the blood sucker yesterday and got my test results today.

As I told some close friends
It was time for another round of medical tests. Very stressful (I never get used to this).

But, fortunately, I got the best news possible:

UNDETECTABLE!

I may have to undergo these tests again in 2 months or so, but I am hopeful that I will soon be able to once again go on the intermittent phase (ie: off all medications).

(Incidentally, it looks like September was a VERY good month for many of us.)

Mel
Posted 9/18/2015 7:49 PM (GMT 0)
Mel - great news!!!

Here's hoping you get that holiday.
Andrew
Posted 9/18/2015 7:51 PM (GMT 0)
Congratulations compiler, undoubtedly our favorite word on this forum... undetectable. Congratulations to the rest of you great folks who received favorable results this month. My husband had blood drawn on Wednesday (a little earlier than usual to get on the same schedule as his urologist visits) and came back as <.02 again. Feeling blessed.
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