Posted 10/15/2015 8:55 PM (GMT 0)
Sue, I will continue to constrain my reply in this thread to your original post comments , or to questions you have raised in response to my earlier reply…
There are, indeed, “ incurable unstoppable [variants of] PC ” as you described in your reply to me.
But this describes a completely different disease than what I had…and it is completely different than what most men here (and everywhere) have. The fact that I am “ here another day, month, year ” has absolutely nothing to do with PSA screening or my treatment. I became aware that my prostate cells were (naturally) aging because of the PSA screening test, but my longevity was never at risk.
On the other hand, as I have stated, there is a small percentage of other cases for which there is no cure…it is indeed, to re-use your phrase, incurable & unstoppable. For these uncommon variants, “ buying time is the name of the game ,” quoting the man known as the father of urologic oncology, Dr. Willet Whitmore…one of your comments in your reply to me also acknowledges this perspective.
Yet we “brand” both of these two distinctly different cases with the same name: “prostate cancer.”
It’s crazy that both conditions go by the same name, and we do a terrible disservice to BOTH groups of men at both ends of the spectrum by calling this the same disease name.
As usual and as I have done here many times before, I wish to draw a very clear line in the sand to distinguish between “screening” (the mass, annual, population-based use of the PSA test) and “testing” of individuals, which includes baselining, based on actual risk (age, race, family history, and other factors) and possible, early, clinical indications of in individual patients (e.g., lower urinary tract symptoms). I believe that the PSA test is a clinically useful test when used appropriately but that its current use is very definitely associated with over-treatment—and arguably over-diagnosis—of clinically insignificant forms of prostate cancer.
With technology and knowledge available today, the medical community is capable and does (at least in limited environments) safely identify and separate those who need treatment from those who do not. This does not mean that everyone is “saved.” There are, as previously stated, “ incurable, unstoppable [variants of] PC ” for which there is (ultimately) nothing currently to do but seek to buy more time by throwing the list of this, that and the other drug at it. THIS is the area where we should be lobbying and focusing our energies for more research and development…in my mind, our society has chosen to waste our scarce and limited medical resources performing large numbers of “elective” procedures for favorable risk cases which do not affect longevity. (Even though I shouldn’t have to make this clarification, I do want to distinguish that my last statement clearly and specifically called out favorable risk cases.)
Anyone who wants to “do good” for PC should, in my view, look at supporting the efforts of the research activities and grants by the PCF, the Prostate Cancer Foundation. If one has a moment, take a look at the PCF research objectives, and in particular look at the impressive Young Investigator Awards program. This organization is focused in the important areas of improving longevity for men with PC, and I would point out that none of their efforts are focused on PSA screening. We should all strongly consider this when we decide where to expend our own energies.
http://www.pcf.org/site/c.leJRIROrEpH/b.5849009/k.5BFC/Research_Accomplishments.htm
Your original post said: "how many of the people posting here feel that they are alive because of active PC screening," and also "From posts I read I don't seem to hear that PSA screening didn't help them."
PSA screening did not help in a case like mine...and it would have been a hollow thread response/posting had I not explained this perspective. I could understand how your perspective, established through your late husband's experiences, might not take into consideration the set of men (which turns out to be a much larger set of men) with such a vastly different set of case characteristics...even though both are known as "prostate cancer."
Post Edited (JackH) : 10/15/2015 3:20:29 PM (GMT-6)