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Three weeks after open radical retropubic prostatectomy, JP still draining over 400 cc per Day
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Jide
New Member
Joined : Dec 2015
Posts : 1
Posted 12/7/2015 12:49 AM (GMT 0)
I had my surgery on November 16, 2015. Tomorrow would be three weeks. I am still wearing Foley catheter as well as JP drain. I am tired of these two tubes. My concern is that the JP is still draining over 400ccs per day. Per my surgeon, both tubes would be removed when the JP drains < 30CC in 24 hours. It seems this will never happen. Is it normal for JP to stay on this long and still drain this much fluid? Has anyone had a similar experience?
Thanks
__
Age - 54
PSA - 4.6
Biopsy - malignant prostate cancer
Surgery - 11/16/2015
Outlook - Positive
JoeInBucks
Regular Member
Joined : Aug 2015
Posts : 44
Posted 12/7/2015 1:09 AM (GMT 0)
I don't think three weeks is typical for either although I'm not sure what JP refers to.
My drain was out the day after surgery and the catheter 9 days after although my surgery was robotic. I think that time frame is pretty standard. Probably should ask the surgeon why the drain is needed for so long and why removal of the catheter is depended on the drain.
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 12/7/2015 1:34 AM (GMT 0)
No it's not. I am no expert in this, but I think I remember reading that how much draining of Fluid can be affected by how many lymph nodes were removed. I had 9 removed and the drain was in for about
30 hours before they finally took it out and sent me home.
3 weeks for sure isn't typical. F it's bothering you, I would press the surgeon for an e plantation.
Same on the catheter. I think unless it was taken out and you had problems necessitating it being re inserted, 3 weeks is a long time.
Break60
Veteran Member
Joined : Jun 2013
Posts : 1870
Posted 12/7/2015 2:13 AM (GMT 0)
Wow! If you're referring to the drain installed near the incision mine was out before I left the hospital which was around 60 hours after surgery. Cath was out 13 days after surgery. I had ten nodes removed. You seem to be bleeding way more than usual. Your Operation report should explain why there was and still is so much blood. And of course the surgeon should explain it to you in person.
Bob
MDNative
Regular Member
Joined : Nov 2015
Posts : 183
Posted 12/7/2015 2:56 AM (GMT 0)
Wow, Jide. I also had
open RP and my drain was removed the day after surgery, before I left the hospital (about
20 hours after surgery), and I don't think it even had to be emptied once while I was there. 11 lymph nodes removed. My catheter was removed 9 days post-surgery. I BET those things are getting on your last nerve by now! I didn't realize that both tubes are dependent on the other. Is this true?
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/7/2015 3:04 AM (GMT 0)
Its not blood he is draining it is lymph fluid. there is no doubt lymph nodes were disected. Look, my pratt drained for 5 weeks post op. Without going into the details your surgeon will know what to do. Consult with him on this issue and ask directly what the plan is. My surgeon was on it... I trusted him. he took care of it the drainage turned off like a faucet.. I was on my way home. Its too complicated to go into what he did. If you are really interested I have responded to this situation at least 3 times and the responses are in the archives. I have no idea , nor do I want to know.. how to find something in the archives. My advice, trust your surgeon and/or press him on the situation. Im not sure why this isn't done more often by posters, rather than ask bunch of folks whasup on the internet. Sorry Jide...Bozo is grumpy... While you are at it ask your surgeon whats the odds you will get lymphoceles. Google that word. oh the happy faces will be along shortly tho, with less information. vent over...bring in the clowns...oh they're already here...Honk Honk!
Ps I had 29 nodes disected all negates for cancer. Ok Im felling guilty... lymphoceles are not unusual for folks that have had nodes removed and excessive pratt drainage of lymph fluid. I had 2 golf ball size lymphocels that presented with malaise...low grade fever. this happen about
2 months post op. They self resolved on their own and every thing was hunky dory. They do not always self resolved and a simple lancing and draining in house by a uro will take care of it. If some one warns of lymphedema on this site re node disection totally disregard it . That can happen in breast cancer cases, but DOES NOT happen in PCA node removal. BTW node removal is a major plus in the odds against having a BCR{check abbreviation list}{ I was won't to use the abbrev for abbreviation} just cuz... It effectively creates a fire wall against spread via the lymph system. So buck up you are going to be fine and will have the ups and downs of recover. Think of ups and downs in the way you see them on a heart monitor. Beats a flat line....
halbert
Veteran Member
Joined : Dec 2014
Posts : 6043
Posted 12/7/2015 3:17 AM (GMT 0)
This is definitely something to talk to the surgeon about
. And try not to be intimidated and push for answers. This sounds excessive to me...but I won't pretend to be an expert.
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/7/2015 3:40 AM (GMT 0)
It is NOT excessive , but routine when patients have many nodes removed. Ill bet the nodes in this case was high double didgets. The surgeon is 100% knowing about
the situation and has it in hand... He isn't sharing... and follow Halberts advice on intimidation. Press him on the lymphcels also... you may get them. Ok Jide with that enjoy the holidays...seriously you will be fine...
I love to go out on the limb with predictions...ya know # of nodes...percent of doctors awareness. its like catching a 8' foot reef wave at low tide from the lip. To all newbies, when in doubt check with docs before asking random guys on the internet.
White Bird
Regular Member
Joined : Jan 2012
Posts : 204
Posted 12/7/2015 12:34 PM (GMT 0)
I went 54 days with the JP. The surgeon was unconcerned and counseled patience. "It will stop eventually".
It did, but that was a long 54 days.
ntzguy
Regular Member
Joined : Dec 2015
Posts : 96
Posted 12/7/2015 1:36 PM (GMT 0)
I had 17 lymph nodes removed for dissection and had the JP pluged in for a week. My JP tubes leaked all the time at their incisions.
When I was concerned about
the amount drainage and leakage, I called my doctor who performed the surgery and he answered my questions. I agree, call your doctor for answers.
John_TX
Veteran Member
Joined : Jan 2015
Posts : 1245
Posted 12/7/2015 1:37 PM (GMT 0)
JP -
Jackson Pratt drain
. I had 44 lymph nodes dissected and my JP was removed about
20 hours later.
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 12/7/2015 3:07 PM (GMT 0)
Welcome to HW, sorry you need to be here.
It's concerning and do keep talking to your doctor about
that. However, we have heard of cases here where the drain and cath stayed in for long times.
Hang in there,
Andrew
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/13/2015 2:34 AM (GMT 0)
bump
Gunner34
Veteran Member
Joined : Jan 2014
Posts : 624
Posted 12/13/2015 6:27 AM (GMT 0)
My JP was removed before I left the hospital - 2&1/2 days after my
open RRP. I had 18 nodes removed.
3 weeks is a long time for a catheter. I "only" had mine for 15 days. It didn't come out a second too soon. I know others have had longer periods but we're all different. Remember we all have different levels of cancer on different anatomies so we will all heal differently. Trust your docs but make sure to tell them about
your concerns. You'll get it figured out. Good luck.
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/14/2015 11:33 PM (GMT 0)
bump in case rogydoux can't find
Teacher lady
Regular Member
Joined : Apr 2015
Posts : 125
Posted 12/16/2015 7:17 AM (GMT 0)
My husband's JP leak was the reason I found this forum. His leaked so excessively no surgical pad could contain the leaking for longer than 10 minutes. The tube was removed when he left the hospital and we were told it would only leak for a few days to a week. WRONG! It leaked for 30 days, a month from the date of the surgery! His doctor finally ordered an ostomy bag to collect and measure the drainage. It was nearly two liters per day! It gradually lessened and you could see the incision site was closing. It literally stopped overnight. Leaked on Saturday, no leak on Sunday. It was really annoying and frustrating to deal with!
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 7585
Posted 12/16/2015 4:18 PM (GMT 0)
I had bag attached to ankle.{ostomy?? mine was a small version of cather bag} That should have been done from the jump with your husband imo. No fuss no muss, just empty it out daily.
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