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CATHETER REMOVED 4/27/16

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Posted 4/28/2016 3:10 PM (GMT 0)
Had cath. removed yesterday at 10AM- 2 pads soaked by bed time - Today, from 6AM till 11AM one pad only a little moist - hope I am on my way to a pad free life -

Pathology report not yet received ----

Bobby
Posted 4/28/2016 3:29 PM (GMT 0)
Do the kegals…make sure correctly…don't overdo them…baby steps few forward some back your in the right direction. Pathology 's in the mail tee hee
Posted 4/29/2016 12:32 AM (GMT 0)
BobbyMac,
I am almost six weeks out of surgery, so five from cath removal. My Dr. told me after I had experienced good days of control, that I should expect some not so good days too. He was correct. I don't want you to be surprised, as it is to be expected. But it sounds very positive for you as with me. I think we may very well be on the way to early recovery, but there are no guarantees. Even have signs of life in other important places too. Thanks be to God for all.
Best wishes and blessings.
Mack54
Posted 4/29/2016 12:42 AM (GMT 0)
Bobby, That sounds great, hope you have a full recovery.
Posted 4/29/2016 1:01 AM (GMT 0)
It couldn't hurt to squeak the wheel with your surgeon re pathology..ask for the surgical notes also.. . He's no different from us cep tin he works for you. I had my pathology before catheter came out but it was in 2 weeks.. Have you had any consults with your surgeon at all post op?
Posted 4/29/2016 10:16 AM (GMT 0)
I was disappointed - after a fairly dry morning the afternoon was plenty wet. I thought I was on my way to being dry, but that is questionable.
Meeting with MD next Wednesday to go over pathology report. I asked secretary to have doctor release it so I can view in my account, but so far not here.
Initially, secretary said doctor would call me to discuss, but then said doctor wanted face to face. Not sure, but could be mean unfavorable report?
Posted 4/29/2016 12:20 PM (GMT 0)
Bobby, as has been said before, your recovery regarding continence won't be linear. You'll have good days and bad days. So be prepared for that. A bad afternoon, or even a bad day or two doesn't mean you won't be fully continent within a few weeks, or 6 -8 weeks, everyone is different. Patience is a valuable asset in this part of the game.youll get there.
I weight my pads for the first 4 weeks and kept a log, so I could track my progress week to week rather than day to day. It helped my peace of mind .

Also expect more leakage when you are active, like walking etc. maybe more in the afternoons as your muscles may be tired.
Hang in there it gets better
Posted 4/29/2016 1:04 PM (GMT 0)
Hey Bobby
Give it time, mornings will be better than evenings for a long time. You just had major surgery and the method that you used to keep continent has been partially removed. I was soaking pads for a month but slowly and surely it got better. One thing I tried that didn't work was slowing down drinking water. Made the problem worse.

Be patient, know that you will get very frustrated from time to time but believe me and others, it does get better, Walking and doing kegals really does help

Take care

Pat
Posted 4/29/2016 3:40 PM (GMT 0)
The face to face could also mean that he has been very busy..senses your anxiety…wants to tell you what we all want you to hear…and see a solid…if not "perfect" report.. the incontinence will not last imo..Listen to the Pratoman on this one…You are corsican brothers...
Posted 4/30/2016 1:57 PM (GMT 0)
Like other brothers on here have said it will get better with time. I was the same mornings were fine and afternoons I would soak a pad. I was wearing a pad to bed until about two weeks ago more out of fear than anything else I think. Now I just wear a shield to work and take it out when I get home. Just get used to taking a couple of showers a day for a little while and guess what you won't get in trouble for peeing in there lol. Trust me patience is a virtue on this part of the recovery. Have a great day!
Posted 4/30/2016 2:07 PM (GMT 0)
You're going to be fine. It will take awhile.

and likely the doctor is just following normal procedure and his staff being a bit confused. Don't read too much into it.

Andrew
Posted 4/30/2016 5:53 PM (GMT 0)
Bobby, as Prato said.... mine wasnt "linear" either. However, it was darn good. By that, I mean the first week I was leaking when I got up from hard surfaces, and soaking a small pad overnight. By week two it was soaking a pad overnight every few nights. By week three it was pretty much kicked in the a@@. Then about a month later .... six or seven weeks post cath removal and no pads for awhile.... I woke up soaked. I had a bit to drink that night, and some here will tell you that can play a part, but have been totally dry since. Now i'm back to where I was pre-surgery, drinking has no impact at night. The only long term difference I can tell is it seems the length of time I can hold it from when I first get that feeling "I'm gonna have to go soon" is shorter. Before I could hold it a good half hour or longer. Now its maybe 15 or 20 minutes. You'll be fine, but have patience, and absolutely keep doing the kegels.
Posted 4/30/2016 9:48 PM (GMT 0)
I'm two weeks post catheter and finding that "groin area soreness" is slowing things down (kegals, ED therapy). My activity tracker shows 5000 steps each day. Leak every time when standing up and at times, in bed at night. But confident things will improve soon.
age: 66, T2c

Post Edited (shudderingThud) : 4/30/2016 3:56:08 PM (GMT-6)

Posted 4/30/2016 9:56 PM (GMT 0)
I was dry at night by the end of week 3. I still wore thin shields 24/7 for a while, I think I started going without around week 6. What I finally decided was that pre-surgery, I dripped a bit every time I urinated. After surgery, I dripped a bit at more random times. The volume and periodicity felt about the same (but less predictable), so I called it good.

What has really 'fixed' it, at least so it appears, is that I've started swimming at a serious level...not at Michael Phelps levels, to be sure, but I'm swimming laps 5-6 times a week, and as my abs have been tightening up, my leakage has become essentially zero. Not that everyone would have that same experience, what I can say is that getting my core stronger has helped.
Posted 5/1/2016 9:22 PM (GMT 0)
My husband had continence/confidence issues for about 8 weeks. He gradually became continent but was always afraid of an accident. He wore shields for about 4 months, whether he needed them or not but now a year out, never uses them. He does however have the occasional leak in the middle of the night. Its never a lot, but enough to wake him. We are a year out from RALP and he's doing great. ED is a tiny problem (no pun intended) as the soldier is beginning to rally on his own. We were told ED would take up to 18 months to fix itself (if it ever did), so everything that we were told has come to pass. This forum has good advice and inspiration.
Posted 5/2/2016 2:41 PM (GMT 0)
Bobby Mac,

How did you do this weekend?

J
Posted 5/2/2016 11:07 PM (GMT 0)
The weekend went okay - did a bit more walking - still sore abdomen, especially when I bend down.
Used one pad each day, but could have used two, I suppose - none at night, but put a towel sized pad down on the bed - not much leaking when I sleep on my back, but pad not completely dry.
What bothers me is that I still get up 4 -5 times at night to urinate, same as I did before surgery. I was hoping surgery would have corrected voiding issue ===
Pathology report discussion with surgeon, on Wednesday -

Bobby Mac
Posted 5/3/2016 12:06 AM (GMT 0)
Bobby, you're not even 2 weeks out. You'll get there. The 'almost dry at night' is great. You need to train your bladder to hold more than it has in the past.
Posted 5/3/2016 4:35 AM (GMT 0)
There is still a lot of junk in the urinary track…Do mention it to doctor…really do… possibility of a stricture…forming…scar tissue at the the site of the anastomosis. Please Bobbie Mac be bold with your medico and or his minions… who cares what they think???? I had frequent urination..not 3-4 nitely..but it was tough to squeeze it out.. for a while… so it is not abnormal….
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