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Surgery on Friday July 29th.
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Prostate Cancer
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PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6432
Posted 7/27/2016 3:51 AM (GMT 0)
Sean,
Most guys who are having surgery get to skip the hormone therapy. The two main uses for HT are 1) suppressing the progression of cancer that has spread too widely to be cured by surgery or radiation, and 2) as an adjunct to other treatments (generally some sort of radiation) to sensitize the cancer cells and make the treatments more effective. The majority of the men who get surgery are either low or low-intermediate risk (Gleason 6=3+3 or 7=3+4) and such men generally don't need hormones to treat their cancer. I don't recall you telling us your Gleason score so I am guessing, but if I am right you probably won't have to put up with hormone therapy.
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 7/27/2016 1:01 PM (GMT 0)
Gleeson score was a 7.
Thanks for info (again)!
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 7/27/2016 1:56 PM (GMT 0)
Another question for all those who have had surgery.....has sex life been hugely affected?
Thanks!
Graytech
Regular Member
Joined : Nov 2014
Posts : 304
Posted 7/27/2016 2:11 PM (GMT 0)
The short answer is YES.
1-1/2" shorter, loss of girth, mild peyronies (curvature) and still take daily Cialis. For some the climax is as good or better post surgery. For me it's not even close, sometimes wonder if it's worth the effort and sometimes it's OK.
As others have described, pre-surgery it's all right there and lasts a few seconds. Post surgery it's more of an all over your body kinda of thing, much like I would imagine a woman experiences it. Lasts much longer, 15 - 20 seconds normally. I have even had a climax that lasted at least a minute or more. Not kidding although my wife thought I was. It's like the prostate nerves are now attached to my spine or something. The climax actually starts in my feet and travels up my legs.
I suggest you do all you can before Friday.
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 7/27/2016 2:13 PM (GMT 0)
thx
English Alf
Veteran Member
Joined : Oct 2009
Posts : 2237
Posted 7/27/2016 3:11 PM (GMT 0)
Good Luck on the 29th.
I had my surgery on 29th July 2009!
The key thing I was told with pain was that I was not meant to have any so that if I had some I had to tell the docs or nurses so they could give me something to make it go away, same goes for anything like nausea. (I was given some strong meds just once, and they also gave me an additional medication at that time to protect my stomach, they should know if you need anything like that, but as ever If in Doubt Then Ask!
Yes, you will get a pathology report after surgery with all sorts of data in it, but donlt imagine that that means you get it right after you come round from surgery as it takes a while to do all the tests. I was given my report one week later when they took the catheter out.
Key thing with the path report is to ask the uro about
every last little thing you dont understand. They deal with the abbreviations, Latin words etc every day, but this will be your first time. For me they actually drew on a diagram where the cancer had been found to help explain in normal language!
One other little thing. I found it handy on the journey home to have a small pillow I could hold against my abdomen.
All the best
Alf
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 7/27/2016 3:15 PM (GMT 0)
Thank you! Will remember the pillow!
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6432
Posted 7/27/2016 4:13 PM (GMT 0)
Sean,
The sexual side effects are sort of all over the map so it's hard to say for sure how much your sex life will be impacted. Since all of your plumbing for producing semen will be gone the best you can hope for after surgery will be dry orgasms. That's all you get to know for sure. After that it's all statistics and those are all over the map. The most encouraging statistics are generally those collected by American surgeons and the most dire are those collected by European public health organizations. The truth is probably somewhere in between, but here's what seems to be typical from my experiences talking to guys here on the forum.
Most men will experience nearly complete erectile dysfunction for a period of a few months to a few years starting within two months of surgery. If the doctor is able to spare both erectile nerves then the man will gradually recover. Even with good nerve sparing the nerves tend to be traumatized by the operation and often erectile function will get worse for several months before it starts to get better. During this period there are ways for a man to obtain an erection and it is desirable for him to do so since the health of penile tissues depends on a man having several erections a week. In a normally potent man his erections during R.E.M. sleep suffice to keep him in good shape but, since the nerve damage prevents these sleeping erections it is important to find another way to keep the tissues oxygenated and the stretchy bits stretched. Usually, PDE5i drugs such as Viagra, Cialis, or Levitra will help but in some cases penile injections are indicated. (Easier than they sound, by the way.) As I said, usually a man will gradually recover, allowing him to cut back on the doses of his pills or injections, sometimes in as little as six months and usually within two years, although we do get reports here of men continuing to improve into their fourth year. You should talk to your surgeon about
his procedures for penile rehabilitation after surgery. Let him know you plan to be eager to comply. If nothing else, it gives a man something to
do
while he waits for the little guy to wake back up.
Good luck.
Joe in Nice
Regular Member
Joined : Apr 2016
Posts : 28
Posted 7/27/2016 6:20 PM (GMT 0)
Courage! It really isn't anywhere nearly as bad as your imagination. I had no pain to speak of. I'm in France where the standard treatment is very high dose Paracetamol. Worked a charm.
For me the problem was that I didn't get on with the catheter. Ask for something to help with bladder spasms. And if you have them, be still - it goes away. Once the catheter was out, I had clean sailing.
Will think of you on Friday - knowing you'll be nervous, but will also be fine.
Joe
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 7/27/2016 6:22 PM (GMT 0)
Thanks Joe.
halbert
Veteran Member
Joined : Dec 2014
Posts : 6043
Posted 7/27/2016 11:57 PM (GMT 0)
I count myself among the fortunate. I had a partial night time erection about
3 weeks post surgery. It woke me up because little willie was pointed 'down' and caught in the thick pad I was wearing to catch the leaks. After that, wife and I played one day and I got hard enough to be useful. Never looked back after that.
I do take 2.5 mg cialis daily, which also helps the blood flow down there and keeps the continence good.
Most docs will put you on daily cialis or viagra starting shortly after the catheter comes out. If he doesn't being it up, ask for a scrip. Some insurance will pay for it, others won't. Good luck with that fight. I'll repeat what my surgeon told me: If you get a partial, then don't be afraid to try to put it where it belongs. There is something quite special about
a woman's musculature that really helps rehab a penis.
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 7/28/2016 12:20 AM (GMT 0)
Thanks Mr. Halbert - sure hope I can emulate you!
klondiker
Regular Member
Joined : Feb 2009
Posts : 43
Posted 7/28/2016 3:07 AM (GMT 0)
Sean, be sure to post and update us on your recovery. I experienced some bladder spasms which were a little concerning but they subsided. After that the catheter was great for my bottomless cup of coffee, never had to get up. When you are catheter free, walk and walk some more. Good luck.
Graytech
Regular Member
Joined : Nov 2014
Posts : 304
Posted 8/1/2016 5:13 PM (GMT 0)
Sean - Curious how your surgery went on Friday? How are you coming along with the catheter?
Have you been able to get up and move around at all?
Hoping you have a speedy recovery - Jon
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 8/15/2016 4:49 PM (GMT 0)
Hi,
First post since radical prostatectomy on July 29th.
My prostate weighed 105g. Gleason score on removal determined as 6 (3+3). Primary tumor : pT2a. Regional lymph nodes pN0.
Tumor Quant: 0.6cm in greatest dimension. x2 lymph nodes tested, negative for metastatic carcinoma
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 8/15/2016 6:05 PM (GMT 0)
That a good report.
hope you're recovering well,
Andrew
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 8/15/2016 6:36 PM (GMT 0)
Thanks Andrew!
JackH
Veteran Member
Joined : Oct 2013
Posts : 2037
Posted 8/15/2016 7:31 PM (GMT 0)
good luck with your recovery
Newton451
Veteran Member
Joined : Feb 2016
Posts : 553
Posted 8/15/2016 9:16 PM (GMT 0)
Good to have that behind you now. Hope you recover quickly.
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 8/15/2016 9:38 PM (GMT 0)
Thank you, Sir!
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 8/15/2016 11:13 PM (GMT 0)
A downgrade to G6! Can't ask for better than that. Great, Sean
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 8/16/2016 11:44 AM (GMT 0)
Thank you! Yup..only we folks can understand this!
Mack54
Regular Member
Joined : Mar 2016
Posts : 90
Posted 8/16/2016 4:07 PM (GMT 0)
Sean, Great to hear from you and that all went well. Good luck with your recovery, can only wish it goes as well as mine. Hope your 2 month psa test in great too and you join the zero club!
Mack
Seankc
Regular Member
Joined : Jul 2016
Posts : 51
Posted 8/16/2016 6:51 PM (GMT 0)
Thanks, Mack!
JimBear
Regular Member
Joined : Apr 2015
Posts : 132
Posted 8/16/2016 8:37 PM (GMT 0)
Great news Mack! Here's hoping for a speedy recovery and lots of zero's in your future!
Jim
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