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Pain all over the body

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Posted 10/4/2016 9:09 AM (GMT 0)
Hi . my dad started experiencing pain all over his body and mouth numbness.
He had his 2nd zometa injection last week.

His psa is up to 195 . no pain killer is working.
What could be done please.
Posted 10/4/2016 3:35 PM (GMT 0)
It very well could be the Zometa, and I would get with his Oncologist. After my Zometa infusion, I am usually down for the count for a day. Good luck.
Michael
Posted 10/4/2016 4:31 PM (GMT 0)
I am not an expert on such things and talking to his oncologist is always a good idea with potential side effects from his meds. My understanding is that he recently stopped his chemo. Docetaxil, wasn't it? His symptoms might also be a delayed side effect from that.

It might help us if you could describe his pain in a bit more detail. You say "all over his body": does that include his hands and feet? Does the pain seem to mostly affect his skin or is it deeper, like his muscles or bones? Does he describe it as an ache or does it tingle? Does it get better if he moves around?

The reason I am asking about his pain is that Zometa can cause a flu-like pain with achy muscles but that pain usually responds fairly well to pain relievers, while Docetaxin can sometimes cause a painful neuropathy that lingers after treatment and responds poorly to most pain meds. That neuropathy would tend to be worse in the feet and hands.

These are things to talk to his doctor(s) about and I am no expert, but perhaps some other members who have had similar problems could offer suggestions for things that helped.
Posted 10/4/2016 6:14 PM (GMT 0)
Peter is right, the cause of pain should be investigated and described. It could be temporary pain from ADT and Zometa. If it turns out that he is experiencing pain from bone mets, he needs to see a doctor who specializes or has experience in pain management. I say this, because I had once asked a friend, a family medical doctor, how much training with pain management she had, and she said, apart from some book chapters at the medical school, not much. "No pain killer is working" is just not acceptable.
Posted 10/4/2016 6:33 PM (GMT 0)
Thank you everyone for the quick response.
The pain my dad is describing as a depe pain in his hips and legs and goes up to his shoulders and jaw. He said that he can not feel his lower jaw. It s like when you go to the dentist and have anesthesia.

He has been on docetaxel for almost a year. And his psa keeped rising. Now his oncologist doesn't seem to have much help except starting a treatment plan whitch is metoxantrone,jevtana and zytiga and that will cost a lot of money as my dad jas no medical insurance.

My concern now is just to get him out of the pain until we find a way to start this treatement.
Posted 10/5/2016 2:30 PM (GMT 0)
Hi Laila,

Im very sorry to hear that your father is experiencing so much pain. As others have said, it should be investigated by a medical doctor and not left up to us to guess why it is occurring. You mentioned your father has no medical insurance. Is he a US citizen? If so, have you or he considered applying for medical insurance under the affordable care act? Also by my estimate, your father should be about sixty two years old by now. Again, if he is a resident of the US he may want to consider applying for disability. That could make him eligible for medicare. If he is not a citizen, then you may want to look at foundations that offer assistence for people that cannot afford the cost of medication. In addition, some medical clinics offer financial assistance for patients who are struggling with the cost of healthcare. Just something to consider. I hope that your father feels better soon. Take care.
Posted 10/5/2016 4:56 PM (GMT 0)
Almost,

I believe that in a previous thread she mentioned that her dad lives in Morocco but may also have some access to medical care in the UK.
Posted 10/5/2016 5:41 PM (GMT 0)
My dad is from morocco. I am in uk but don't think he can benefit from free NHS here in uk.
I have asked before in here if there is guys from uk and if there is any foundations that can help him but it seems no one knows.
Posted 10/5/2016 6:13 PM (GMT 0)
I had similar pain that you describe from my zometa infusions, pretty much travels around from legs up to shoulders and jaw. Flu like symptoms is a good description. I have had two infusions and the second one didn't hurt as bad as the first. I used 800mg Ibuprofen and it took the edge off. I wish him well. -JR
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