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Please help me find a good doc in Cincy, Ohio area

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Posted 11/5/2016 2:21 AM (GMT 0)
I'm new to this site and to this disease. Was just diagnosed with prostate cancer 2 wks ago. I'm in shock and disbelief and don't know where to begin. My PCP sent me to a urologist . I found out that my psa was 140. Had biopsy, CT scan, pet scan. My Gleason is 9, and cancer has spread to lymph nodes in my stomach area. I'm 53 yrs. old and have a family, a wife, 4 kids and 3 grandkids. I have a lot to live for. My PCP referred me to a local oncologist, but I don't care much for him. He'd like to start chemo , taxotere. I'd like to know if anyone could recommend a Dr.(oncologist) in this area or close to this area. Or even semi-close. I'm willing to travel if need be. I'd also like to know if anyone has advice on what type of treatment I should look into. Maybe someone on here has been in my shoes. Thanks for any type of help or advice.
Posted 11/5/2016 7:11 AM (GMT 0)
Jeffro,
Welcome to the forum and the G9 club. Although no one wants to join purposely, we are glad your're here and ready to wage war against PCa . You DO have a lot to live for and you came to the right place to get the strength ans support to help you reach that goal.
I'm sure others will have some ideas about a Dr in your area, but you do need to get yourself an oncologist you trust and get going on HT, to keep the mets under control and from further spread. If that doesn't bring your PSA down a LOT, taxotere is not a bad option. But find a reputable oncologist you are comfortable with prompts and keep us posted.
Good luck and best wishes,
Beth
Posted 11/5/2016 11:33 AM (GMT 0)
Jeffro,

Welcome and what a shock. While I can't speak specifically about anyone around you, your best general bet is to google "NCCN centers of excellence" and get to the one nearest you. Usually the major university hospital systems are a good place to start.

Near you, there is OSU in Columbus, or maybe there is a satellite of Cleveland Clinic in your area? (I'm trying to remember the map in my head). You'll hear from more guys soon, keep checking in. I'm personally not experienced with G9 treatment, but many guys here are, and many of them are living a full life years after diagnosis. So there is hope.

The common treatment for early G9, as I understand, is to hit it with HT-usually Lupron to knock out your testosterone first, then follow with taxotere. That combo should bring your PSA to near zero pretty quickly, and shrink the mets considerably. They may also want to do some local radiation. So, the thing you need is a TEAM of a medical oncologist and a radiation expert working together.

Hang in there, you've found us. Help is on the way.
Posted 11/5/2016 12:24 PM (GMT 0)
Jeffro you certainly do have a lot to live for and now it's time to go to war.

You are 4 hours, if by car, from the Cleveland Clinic. You need great team to get the best results. Cleveland Clinic is rated #2 in the nation in fighting cancer. Make an appointment the people are very helpful at this hospital. This is where I would have gone if I lived in Ohio. A great hospital that doesn't run tests just to make money is what you want.

You can get a lot of good advice on this board. But none of us know sqat compared to great doctors. That's why I suggest going to Cleveland. Cincy to Cleveland is about the same distance as Dallas to Houston. That's where M.D. Anderson is located.

Maybe I'll see you in Cleveland. I'm scheduled for lead replacement Jan 5th. It's only 17 hours away and they are the best. Have car will travel.

If you look at the posts you'll see guys that have pretty bad rap sheets that have been at war for a decade or more. I always try to find a silver lining in every situation. My problems allow me to show my wife, daughters, and grandkids how tough grandpa is. Grandpa really isn't that tough, but they will never know it. Good luck Jeffro, I know you're in for the long haul. I look forward to your posts in the years to come.
Posted 11/5/2016 2:15 PM (GMT 0)
Thank you so much for the encouraging words and advise duke48, halbert and celebrate life. I will definitely use your words of wisdom and advise. I have a scheduled appt at Ohio St University in 2 weeks. Keep me in your prayers please. I will keep everyone posted and am open to more advise. Thanks again
Posted 11/5/2016 2:28 PM (GMT 0)
Jeffro-

Sorry you need to be here!

If I lived in your area Cleveland Clinic would be my top choice.

I'm using their Florida branch for my Salvage Radiation and so far they have been great.

Bobby Mac
Posted 11/5/2016 2:34 PM (GMT 0)
Jeffro, we're pulling for you! The really cool part of all this is how accessible the great docs are. Even if you don't wind up going to Cleveland for treatment, the docs there can certainly consult with your more local people and be part of the team. OSU IS on the list of NCCN centers of excellence.

My experience is that there is great care available all over, not just at the major names. Our buddy "Cyclone Fan" (yep he's from Iowa) has consulted at Mayo, but I believe has gotten the bulk of his treatment a lot closer to home.
Posted 11/5/2016 6:41 PM (GMT 0)
I don't have problem you have, no cancer since 2011 and caught in time. My wife was diagnosed with a form of leukemia. Our daughters, PharmD , Pharm Manager at UT and Resident Placement for Pharm college, Daughter who is OT and son who is Toxicologist with Medical Device Testing Company recommended the James at OSU.
I accompanied my wife on the one of 2 trips and the James also works with local oncologist.. Very impressive people at the James. I used Cleveland for an AUS and they are also great.
I would suggest James as primary and your local Oncologist as Secondary, that way you have best of both worlds.
Posted 11/6/2016 3:20 PM (GMT 0)
Jeffro
From another G9, I'm glad you found us! HT and maybe RT are definitely needed . Get started ASAP and we'll be here if you need us.
Bob
Posted 11/7/2016 3:59 PM (GMT 0)
I have used the Cleveland Clinic for 25 plus years. The head of the Glickman Urological Department is a fine surgeon by the name of Eric Klein who did my surgery. While you are likely looking at a different treatment plan he would likely advise you on who to see.
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