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Pain - 5 weeks after surgery

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Posted 11/30/2016 9:25 AM (GMT 0)
Hi I am in 5th week after the surgery. However for past few days I am experiencing mild pain under the belly button area. Pain comes and goes , I have called urologist and he has advised ultrasound in few days. Any advise what this could be?
My urine flow is ok and no other surgery related issues.

Thanks


Nov 2015 – Urination issue prescribed urimax for next few months
Jan2016 – Postarate size 28gm
Jul2016 – After taking urimax urination still persist
Jul-2016 – PSA 6.9 doc advised to wait for 8 weeks and retest
Aug-2016 PSA 12.44
--MRI DCE No enhancement ‘heterogeneous signal in peripheral zone’(report attached)
Sep2016 – trus biopsy 12 cores (I’ve attached the report copy as well) 30% area.
Gleason score 5+4.
Sep-2016 Bone scan – As per the radiologist scan is negative
Sep-2016 FDG PET CT Scan negative.
Da-vinci date – 04-Nov-2016
Catheter out – 14-nov-2016
Final Pathology – pt3b n1 mx.
Waiting to decide whats next
Posted 11/30/2016 11:36 AM (GMT 0)
My surgery used the DaVinci robot. Post surgery the navel incision herniated (stitches let go) and I had some pain at the site. There was a distinct bulging. It was fixed with same day surgery. Just a guess .....
Posted 11/30/2016 11:43 AM (GMT 0)
After my DaVinci I was in pain for months. My member felt like I had slammed it in a door or something similar. Now, 4 years later, I am left with just the colon cramps from the SRT.
Posted 11/30/2016 1:33 PM (GMT 0)
Do not know if it the same pain. I had DaVinci surgery last April. I have a mild "burning " feeling across my lower abdomen that has not gone away. Nothing showed up in a CT scan. The Dr.'s do not seemed worried.
Posted 11/30/2016 3:05 PM (GMT 0)
Trailguy:

Can you elaborate on your colon cramps. At least once a week I will get some colon cramps, and they go away after a bm (usually a normal bm, not even diarrhea). I've just assumed it was a bit of irritable bowel. But I wonder if this is one of the wonderful SRT SE (had SRT about 5 1/2 years ago)

Mel
Posted 12/1/2016 3:17 AM (GMT 0)
I think some of this is nerve pain and it does come and go. It is mostly around the incision sites, but can be along the pathways of the probes that went into the 5/6 port holes. I've it's directly sensitive and pesists and isn't positively affected by advil/tylenol or ice, then I would seek medical treatment.

I'm not about 3.5 months out and I would say only recently am I totally pain free in that region above the pelvis.
Posted 12/1/2016 9:51 AM (GMT 0)
Hi I had my ultrasound scan to see everything is alright inside and docs are happy with the progress.

I've been given some pain killers hope everything goes well now.


thanks for your replies.
Posted 12/1/2016 12:05 PM (GMT 0)
Compiler:

I got external beam radiation therapy in July - August of 2013 (about 80 Gy in 40 treatments). I got the expected side effects the RO had warned me about - cramping, the 'radiation craps' (lots of effort for small results) and a substantial increase in bleeding from my hemorrhoids. When I got my regularly scheduled colonoscopy this past July, the gastroenterologist found my colon was covered with large blisters of gas. He poked one and it deflated. He took pictures of them and included those in the procedure report of which I got a copy. He said that - while uncommon - these are not extraordinary. He told me that they would eventually go away. I get daily cramping and some discomfort still, and my hemorrhoids still bleed a lot every few days.

I have frequent explosive bowel movements in the morning, but they are pretty regular so I have worked that into my schedule. Sometimes there is quite a bit of pain and cramping involved. I have an extremely healthy diet, take a bunch of supplements and intermittently use a probiotic to keep things a little less exciting.

The nadir for the appearance of radiation side effects is supposed to be about 3 years after treatment ends, then they should fade away over the next few years. A friend who had radiation 30 years ago says she is still recovering from that now. I seem to have peaked this past month myself, as the SE's got pretty bad in the beginning of Nov but have backed off somewhat now.
Posted 12/1/2016 1:50 PM (GMT 0)
Trailguy:

Thanks for the elaboration. At least you have managed to adjust to the situation. I have too.

I had a colonoscopy in March (actually the first one since the SRT in 2011). They found no issues whatsoever, no polyps or any evidence of damage. So, I assume my situation is irritable bowel syndrome. I don't mind the occassional diarrhea, since in my case it is usually one and done. It would be miserable to have continuous issues (ie; the runs). For me, the worst is when I get severe constipation. Not too often, thank goodness.

Mel
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