Anyone have continued or re-emergent SE from HT during HT vacation?

The subject kind of says it all.

To elaborate:

During HT, I had most of the dreaded SE, although I did okay with it (never missed a day of work and in fact it didn't impact me there).

Anyway, during my first HT vacation, it took 2-3 months but I recovered fully -- all the SE were totally gone.

During my second HT vacation, after about 2-3 months I was about 99% better, but then some SE returned. Mostly, it was cognitive -- ie: short term memory issues. Not as bad as when on HT, but still not great and it is definitely the SAME SE.

I have noticed that during my first HT vacation, my T came all the way back. This time, only 70% back or so. In short, I have low T somewhat.

So, I guess I'm seeking experiences from those of you who have been on HT vacations.

Unfortunately, I'll be back on HT in early February (based on my PSADT)

Mel

My HT ended in March, 9 months ago. My testosterone (T) got back to (barely) normal in September, and even a bit better now.

For some reason, I still get hot flashes, though much less often. Usually two a night that wake me, and a couple during the day. Fatigue has greatly resolved. My workouts are productive, finally able to gain strength. Sexual performance is almost normal again, libido is low but still improving. Enthusiasm for life in general has recovered, and I find myself actually wanting to do things! So,

Oddly, I've had significant breast tenderness in the 2-3 months, and I'm afraid even some growth. There's definitely noticeable glandular tissue in there. I've read that one's body can sort of adjust to the low T environment being on it for a long time, and the return of T becomes excessive. The body then converts this now excess T into estrogen. It's similar to weight lifters taking excessive T supplements. Hopefully this will go away, but I don't know of anything to do about it now anyway.

And finally, I'm still hoping this isn't a "vacation". We completed my primary treatment, and with luck I'll just go on with life without any further treatment required. (Honestly? It's pretty likely I'll have to go back on HT at some point).

While I don't fall into the category of HT vacation either and was only on zoladex and xtandi for 6 months I found Redwings comment about the breast tenderness and possible growth interesting. While my nipples were painful a bit during the last 3 months of ht I had no growth or other issues with them. But 5 months or so after completing the HT I started to have a small amount of breast growth and a mild tenderness. While its not a large growth I have become somewhat self conscious about them, and when I exercise I actually feel them swaying which is really an odd feeling. After the hot flashes and other issues during HT now I have one more aspect of relating to women.

My T had returned prior to this so Redwings assessment of the T relationship makes sense. Interesting that when I just mentioned this to MO department where I was treated that they seemed surprised that I would have issues now after being off for so long. A doctor will be getting in touch with me soon from this department, so maybe they will have a clue.

I do notice while I don't generally feel fatigued much anymore (Well, no more then before HT) that ever since the HT I sleep in a much deeper sleep, like I am fatigued at night. I fall back asleep when I wake up at night much easier then ever before. I rarely have sleepless nights and am just wiped out when I sleep.

Also I no longer get hot flashes. But while I was on HT my face would always get flush when I overate, even just a little. That still happens quite a bit though sadly I've learned to push through it and overeat. Maybe with the New Year I'll learn to use that as a good signal to stop eating and finally get back in shape...Jim

I've been mostly clear of SEs from Lupron starting about April-May. I just had a followup with my RO a couple of weeks ago and complained about getting really tired in the afternoons but she didn't think it was due to Lupron residuals. My cognition and short term memory seem to be declining or they declined and then stopped. Fortunately my hot flashes have not returned.

Here again I don't know if these SEs have anything to due with Lupron or just part of the normal aging process.

Something that concerns me is my T - it really jumped up in May to 418 (woo-hoo - felt so much better with my T back) and it was just checked on 12/12/2016 at 344. The RO said nothing about the T dropping so maybe it's not significant.