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Posted 2/12/2017 1:24 AM (GMT 0)
My surgery was done on February 23, 2015 and the leaking remains. No more sweet tea at all and only down to one cup of coffee a day. Drinking only water. Back on the pads. My surgeon has changed my meds to mybetriq but no good. She has said that if nothing helps, then she will send me to a bladder surgeon. Does anyone have same thing going on after two years post op? Any ideas on what I can do?
Jimmyc
Posted 2/12/2017 2:53 AM (GMT 0)
Jimmy so sorry. I can tell you that I leek like crazy if I drink Red Wine.

I know others that have had AUS installed with success. A couple have had slings done but have not been as successful.

If you want them to contact you let me know and I will call the to look at your post.

Cajun Jeff
Posted 2/12/2017 3:55 AM (GMT 0)
Those guys will be along soon, but after two years, it's not likely to get better. The AUS is a reasonable option. You should at least talk the docs about it.

Andrew
Posted 2/12/2017 6:05 AM (GMT 0)
Start keeping track of how much you leak. Weigh your pads so you get real data.
If you are leaking less than about 150 ml, 150 grams, per day you might consider getting a sling. That's what I did.

I got an AdVance sling. not a coloplast. It changed my life!
Jeff
Posted 2/12/2017 1:45 PM (GMT 0)
Had surgery last April and I am still wearing pads. Not leaking that much (less than 50 grams) but it is to the point that I can have coffee only once a week, when I do not have to leave the house. Tried the pelvic floor muscle exercises to no avail. What helped me the most is taking long (> 2 hours) bike rides. Took me from > 200 grams to where I am now.

That said, just got back from a scuba trip. Puts a new meaning to the term "wet suit ".
Posted 2/13/2017 2:08 AM (GMT 0)
I leaked for 15 months after RPP. 3-5 ounces a day requiring a pad or depends all the time except nights. Eight months ago I had the advance sling procedure and have not worn a pad since. I love my boxers again. I consulted with to top urologist specializing in continence and had the testing to assure I was a good candidate. After that I was ready to roll and so glad I did. John
Posted 2/13/2017 12:30 PM (GMT 0)
My boyfriend leaked for 4 years. He took Cymbalta for a year. It did help, but did not dry him up. He had the sling procedure as well this past December. He has not worn a since either. AUS was never an option for us. The mechanical nature of the device was something my boyfriend would never have gone for. We're very happy with our decision and results. If you do ever explore the sling procedure, make sure you get a very experience surgeon.
Posted 2/14/2017 10:11 PM (GMT 0)
AUS was a life changer. Search the threads for more info. Several have posted detailed stories of their experience.
Posted 2/14/2017 10:20 PM (GMT 0)
3 years 3 mos and still leaking.
Thought about an AUS but they on avg have to be replaced every 5-7 years.
Wanted a sling but bc I had radiation doc said it wasn't a good idea.

Finally got put on imipromine (or something like that) , it's worked pretty well, still dribble but no major accidents since.
Posted 2/20/2017 12:58 AM (GMT 0)
Thanks to all for your generous reply's. But, because of my ignorance, what is AUS? I have an excellent surgeon that did my cancer surgery and she prescribed myrbetriq about a month ago but leaking is still happening. I am back on pads on a regular basis again. I am definitely done with sweet tea (which sucks) and as I said, maybe two cups of coffee a day. When I feel the urge to go pee, I have to find a bathroom or porta john right quick. It would be great to be wearing boxers again, but for now, it's the skivvies and pads. My doctor did mention something about a sling though. The erections are done as well and nothing seems to work for that, but hey, I'd rather stop the leaking more than anything at this point. On my three month check up in January my doc asked if I ever had any second thoughts about the surgery (and then 41 radiation treatments in as many days) and I told her that I did second thoughts. That didn't sit well with her and she said, "If you didn't have the surgery done, you wouldn't be here right now". I guess I won't say anything else about second thoughts. All check ups have been non detectable and she has said that I can now follow up twice a year. But since the myrbetriq isn't working, it looks as though I might need another procedure. I would definitely like to hear from the sling guys and the AUS procedures. Again, thanks to all.
JimiC
Posted 2/20/2017 4:25 AM (GMT 0)
I never really got better than two pads a day, and am having a lot more serious leaks lately. Am considering the AUS now - automatic urinary sphincter. It is a cuff and pump (internal) that closes off the urethra. I never wanted anything that invasive, but enough is enough.
Posted 2/20/2017 11:01 PM (GMT 0)
Thank you for the definition. I did get a response from my doctor today and she is going to refer me to a bladder specialist to sort out some options. I will ask her about the AUS. I agree, enough is enough. I am also back up two or three times a night. Thank you to everyone for your answers and concern (s)
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