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Posted 2/23/2017 6:09 PM (GMT 0)
February didn't go that well overall for our gentle group.

Hopefully, March will be better.
So, please post your March test plans and, eventually, your results here.

I'll start: March is a test-free month for me.

Mel
Posted 2/23/2017 8:23 PM (GMT 0)
I had my 8 year PSA test yesterday. The nurse called me today and told me that the result was 0.01. She didn't say if there was a "<" sign infront. In the past, I always had the "<" sign and two zeroes after the decimal point. I'm seeing the doctor on Monday and will know the exact result. Should I be concerned?
Posted 2/24/2017 5:09 AM (GMT 0)
EdC.
No. Be not concerned, be overjoyed! Even .01 is infinitesimally small!! (and a lot smaller than that description).
I know guys who would give their left nut for a PSA that low! indeed, many already have!
Posted 2/24/2017 10:33 AM (GMT 0)
I have a meeting with a gastroenterologist. Somehow about 1/4 my stomach is now on the wrong side of my diaphragm (perhaps do to the CO2 from DaVinci surgery) and I have "significant" diverticula throughout my intestines (perhaps do to radiation).

Get my next six month Lupron shot as well as blood tests for PSA and totesterone.
Posted 2/24/2017 3:20 PM (GMT 0)
no testing for me. I have to wait till May.
Posted 2/24/2017 4:10 PM (GMT 0)
I have PSA test and second meeting with my new medical oncologist on the 23rd. Not expecting but hoping for a slow-down in my recent upward trend.
Jim
Posted 2/25/2017 1:38 AM (GMT 0)
What the heck Bohemond...wheres the harm of expecting as well as hoping...kinda of like love and marriage...its ok to be wrong for right...no shame...no blame....

A side note... Rhetorically ... Am I the only one on this forum who thinks like this/...dont ask like what?...y'all get what Im saying!...Its actually quite flabbergasting...rampant...anyone know?...what gives?...what is everyone so damm scared of?...check my signature....who's crying for me?...think about it...really think about it...ok...thanks for the vent...rsvp not required...just think...seminally!....
Posted 2/25/2017 5:13 AM (GMT 0)
Bolo -- Expecting and hoping has worked for me for 72 years so far--through Vietnam, melanoma, PCa surgery, SRT, whatever is coming next in the wake of SRT failure. Hope for the best but don't walk around like Pangloss without a plan B, C, D. I know a thing or two about staying alive on this planet and enjoying my time while I'm here. I hope you do also.
Jim
Posted 2/25/2017 1:50 PM (GMT 0)
On February 17, I added Xtandi to my monthly Firmagon regimen. I have an appointment on March 17 to review the results of month 1. Crossing my fingers that I can get a year or so out of this combination.

Tony
Posted 2/25/2017 4:09 PM (GMT 0)
Good on ya Bohomend...I m glad we are on the same page...its good to know your expectations and hopes are on the same page as well...er ah...thats not what your post implied...lets be clear on that...
Posted 2/25/2017 9:18 PM (GMT 0)
PSA scheduled for the 2nd week of March. Will be my 5 year PSA.

I hate PSAs.

Paul
Posted 2/25/2017 9:38 PM (GMT 0)

Bololidat said...
A side note... Rhetorically ... Am I the only one on this forum who thinks like this/...dont ask like what?...y'all get what Im saying!...Its actually quite flabbergasting...rampant...anyone know?...what gives?...what is everyone so damm scared of?...check my signature....who's crying for me?...think about it...really think about it...ok...thanks for the vent...rsvp not required...just think...seminally!....



I really should look up when my next PSA test should be. I think my last one was sometime last spring, so I guess it's coming up sometime soon. I dunno. Will be 8 years this year, I think.
Posted 2/25/2017 10:29 PM (GMT 0)
GG's on the 20th. Feeling a bit 'icky' already...
Best to you all!
Jaybee
Posted 2/25/2017 11:29 PM (GMT 0)
An apt word works wonders for the soul...especially when its your own...reflected back to you from another soul...so good...so good... yeah
Posted 2/26/2017 12:55 PM (GMT 0)
PSA and testosterone blood work the last week of March.

New running shoes in March as well as each of my current 3 pairs now has almost 400 miles on them..... cool
Posted 2/26/2017 1:36 PM (GMT 0)
PSA March 9. Results will be either "not good"or "not not good." Last PSA at end of November .46.

NewspaperLover
Age 73
Surgery 2009
SRt/HT 2011-12
PSA undetectable for nearly three years after SRT.
PSA 01/15 .08
PSA 06/15 .11
PSA 01/16 .26
PSA 06/16 .33
PSA 11/16 .46
No treatment now for 4 years. Expect that HT will resume pretty soon.
Posted 3/3/2017 9:41 PM (GMT 0)
I posted my first 2 post-op uPSA's results separately under their own post. Too try to make me more "normal" (if that's even possible!), I am going to post as part of this March group. Just got my results online today from uPSA from 3/1/17........<.006. Phew! So, I have another 3 month reprieve and a continued good start post RP. Will post next uPSA in the June group.

J

Age at Dx: 54
08/31/15 PSA 2.5
01/01/16 Urinary Frequency
02/05/16 DRE +
02/22/16 Biopsy
02/26/16 Dx 7-12 positive; (5) 3+3=6; (1) 3+4=7; (1) 4+3=7; T2B
03/11/16 Bone Scan -
03/23/16 CT Scan -
03/31/16 Surgery Consult UPENN
04/08/16 RT Consult/2nd Op Fox Chase CC upgrade to 4+4
04/14/16 3TMRI "organ confined", EPE-, SV-, LN-
06/01/16 DaVinci @ UPENN (Dr. D. Lee)
06/08/16 Path EPE+, Marg +, SV-, LN-, G7(4+3), T3a
07/06/16 Decipher 0.56
08/31/16 uPSA <.006
12/01/16 uPSA <.014
01/30/17 PORTOS Lower RT Response
03/01/17 uPSA <.006
Posted 3/9/2017 7:59 AM (GMT 0)
Gary's dropped 80 points to 618. Another round of mitaxantrone today. Blood work for liver and other stuff fine, except for on going anemia. His weight stable at around 133. Lupron today as well. No more xgeva due to necrosis of upper jaw.
The daffodils, poppies, lupins and tulips are beginning to bloom too yeah
Posted 3/17/2017 2:40 PM (GMT 0)
Got my March results back today. Second month in a row of undetectable on ultra sensitive testing. Woot! Yes, I am still on Lupron but prior to my surgery my psa never went down To undetectable with the Lupron so I'm happy.
Posted 3/17/2017 8:48 PM (GMT 0)
PSA=0.019 ..15.03 from <0.003 in 10 January(3 months on ADT followed by 3 months off ADT). I don't know if PSADT is relevant.seems pretty fast rise.waiting my PSA to reach 0.4 for my second 68GaPSMA PETCT.
T=495
Posted 3/17/2017 10:14 PM (GMT 0)
GG's uro just emailed, which was very kind of him, considering it's a Saturday here. Our appointment isn't with him until Monday, but we were glad he got in touch. V.Pleased to report that GG's PSA is undetectable, 9 months out from surgery. Drinks are on us tonight (and Ken (Gear) that is)!
Have a great weekend all.
Posted 3/17/2017 10:42 PM (GMT 0)
Got got my latest blood draw and psa result at the CTCA Center. All blood levels good and PSA continues for the 30th month at undetectable less than 0.06. I'm going to buy me a zero candy bar. Keeping the Faith, floating with wings of angels, Wings of Eagles
Posted 3/18/2017 10:20 PM (GMT 0)
Bump
and special prayers for Mel
Posted 3/19/2017 1:19 AM (GMT 0)
I drove down to the Duke Cancer Center on Friday for my monthly Firmagon injection and lab work. This trip was special because I added Xtandi to the team one month ago and this was the first PSA results since.

Drum roll.....

.07!!! Down from 2.38.

Finally some good news. I am crossing my fingers that I get a nice long ride on this combination.
Posted 3/19/2017 1:56 AM (GMT 0)
I have blood work last week of March then doc visit first week of April to get results unless he calls me first like he did when my psa doubled in three months to 14. Iam now on Zytiga almost a month. But got call yesterday from specialty pharm telling me all funding has run out for zytiga. No worries will talk with uro care mgr this coming week and see where we go from here, have 5 days of it left. I do have two months of xtandi in my dresser, but the full dose (4 pills) beat the heck out of me with fatigue. Like I just got beat up by a 500 pound gorilla, just because I called him banana breath. After reading a bunch of you guys posts about psa at 1 or less blows me away. I can only wish all of you long life full of enjoyment. Question one of you mentioned you go to CTCA just wondering which one, I went to Zion, IL 8 times and really really enjoyed how we were treated, not like a slab of beef.
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