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100% ED - does orgasm without erection mean progress

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Posted 7/12/2017 3:57 AM (GMT 0)
rather sensitive question. I have had Robotic surgery and have everything under control except ED. I have no erection whatsoever - willy in nilly. Doc could only save nerves on one side. I had some ED before surgery but was managing with pills.

I have been trying to m..bate and have recently achieved orgasm without any erection. Does this mean I am making progress?

I am using VED to get blood flow but erection does not sustain. Pills are not working either.

My surgery was 2 months back.
Posted 7/12/2017 4:13 AM (GMT 0)
Hello pcbgone,

Welcome to the forum. Sorry you find yourself here but glad you found us. I hope we can help.

But...

With nerve sparing only on one side and with some ED prior to surgery your odds aren't that good to recover useful natural erections but it might happen. It's a long shot but worth a try. Your best chance of regaining natural erections is to make sure you get at least two or three unnatural erections every week while you wait.

Since pills don't work for you, you will probably want to try the next step up in treatment for your ED which is injections... Yes, I know. But they're easier than you think. They'd have to be, wouldn't they? ... Next time you talk to your urologist ask him about "trimix." It's an injectable combination of drugs that will usually work when pills don't. With trimix you can keep your hydraulics working while you wait for your nerves to recover -- which can often take six months to two years if it happens at all.
Posted 7/12/2017 4:15 AM (GMT 0)
2 months isn't that long on the ED front.

Give it time - ED post op can take months. Keep doing the rehab. Signs of life are good.

If you're still having problems in a few months, you may want to talk to your doc about tri-mix.

You might also check out the www.franktalk.org forum for more in depth conversations on the subject.

Andrew
Posted 7/12/2017 4:36 AM (GMT 0)
both sides of mine were saved....so no real help here..other than to say....

2 mos. out .... I needed Viagra.

18 mos. out...I need it less....or not at all
Posted 7/12/2017 4:45 AM (GMT 0)
Orgasms are also much easier to *come* by


they weren't this fast since I was a mere child....
Posted 7/12/2017 10:27 AM (GMT 0)
As others have said, 2 months is early. Some people take up to two years to regain useful erections - some never do. I am two months out and in the same boat as you. Trying hard to be patient.
Posted 7/12/2017 1:18 PM (GMT 0)
Please see my post titled "Tranquility Base here......the Eagle has landed!" posted on 4/12/17 at 7:23 AM.

Hang in there.

J

----------------------------------------------------------------------------------------------------------------

Age at Dx: 54
08/31/15 PSA 2.5
01/01/16 Urinary Frequency
02/05/16 DRE +
02/22/16 Biopsy
02/26/16 Dx 7-12 positive; (5) 3+3=6; (1) 3+4=7; (1) 4+3=7; T2B
03/11/16 Bone Scan -
03/23/16 CT Scan -
03/31/16 Surgery Consult UPENN
04/08/16 RT Consult/2nd Op Fox Chase CC upgrade to 4+4
04/14/16 3TMRI "organ confined", EPE-, SV-, LN-
06/01/16 DaVinci @ UPENN (Dr. D. Lee)
06/08/16 Path EPE+, Marg +, SV-, LN-, G7(4+3), T3a
07/01/16 Start 5mg Daily Cialis, 20mg once a week on Friday's
07/06/16 Decipher 0.56
08/31/16 uPSA <.006
12/01/16 uPSA <.014
01/30/17 PORTOS Lower RT Response
03/01/17 uPSA <.006
06/01/17 uPSA <.006
Posted 7/12/2017 1:39 PM (GMT 0)
Here's a link to JayMot's post:

https://www.healingwell.com/community/default.aspx?f=35&m=3828639

Because the search feature here on the forum is a bit peculiar and stuff can be hard to find.
Posted 7/12/2017 2:32 PM (GMT 0)
pcbgone........been 7 mos. since my end of treatment .....rads......and hormone therapy. ....the first month or 2 I had a few erections and thought all was returning quickly and got kudos and thumbs up from the forum......as the months have passed the erections have become unusable...limp would describe them.....but I have been holding off posting about this , because it seems so strange to me to be able to have an orgasm without and erection .....just for the info record , yes, self stimulation of a limp penis can achieve a excellent orgasm......very strange to me ...but is one thing that is still there !.....don`t know if it is a good sign as far as future stiff erections go .....hope so .....I find that after the orgasm the the penis is stiffer and possibly usable , if the desire was there then .....the new normal ?..........David........
Posted 7/12/2017 2:49 PM (GMT 0)
I'm 9 months post surgery, and ED is present. Pills help a little, but progress is very slow. The nerves are still healing, and everything I read says it can take 12 to 24 months. I understand when, and if things return to "normal" it will be a new normal. Most likely not as good as it was prior to surgery.

I've had some orgasms without erections, and that function is not contingent on the nerves needed for erection.

Two months sounds way too early to expect significant results, but don't abandon hope. You may have a ways to go. Try the injections.

For me, I have an appointment with a local urologist who specializes in ED only. He works with many men after prostate surgery. I'd recommend you find a similar professional in your area. There are some good books as well about ED. Try Saving your Sex Life, by Dr. John Mulhall, from Sloan Kettering.

Good luck.
Posted 7/12/2017 10:09 PM (GMT 0)
I am 11 weeks post SBRT. For the first 2 months, I did not feel SBRT had any effect on the ED at all, just the cum is getting less and less each time. Also it changes from normal white to clear gradually. Until last week, it started to get worse. No matter how hard I tried, I did not get erection, but I did get orgasm finally with limited clear cum. now I think surgery and radiation gave different pathways on ED. People with Surgery will show ED right away, and it takes some time (months to a year) to recover it if your nerve is spared. But people with radiation (like SBRT or IMRT) may show no ED in the first few weeks, because the radiated nerve are gradually dead. I think it is time for me to take Cialis daily (like some members suggested), hopefully it is not too late to keep the blood circulation in the important areas. I like to contribute this information for people just had or about to have SBRT, they may want to consider taking Cialis right away after the end of treatment. Don't wait for the ED symptom comes out.
Posted 7/12/2017 11:46 PM (GMT 0)
looks like I may have to make the move to Colorado an seek greener pastures!

...what's between the ears is going to matter more than what's between the legs...thanks folks ...ill be trying hard ...

edbgone=hand+ved+pills+injection + time + time +...
Posted 7/13/2017 12:00 AM (GMT 0)
In my case I had nothing, nada, for over two years. Nerves spared on one side only. Two and a half years out from surgery I resigned myself to accept that it wasn't going to happen. My URL was pushing an implant but something about coring an apple seemed unappealing and rather permanent. Then I tried a trimix injection Christmas Eve and experienced the Christmas miracle. It only lasted for about thirty seconds but darn it, it worked. I continued to use shots but reacted to them after a short time. I then tried Staxyn and darned if it didn't start to work. Over the past three years I have regained function with Staxyn and sometimes without. Don't give up hope because sometimes it comes along right when you think it won't. Be patient. It's much too soon to worry and any sign of life is a positive.
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