HealingWell
Search Close Search
☰

If u r deciding between treatments read up

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/18/2018 11:40 PM (GMT 0)
Stan - your posts are not helpful. We offer support, suggestions and you keep posting the same thing, over and over. A mental health professional can help you, I doubt we can.
Posted 8/19/2018 12:11 AM (GMT 0)
The mods' patience here is remarkable. Not complaining: I lean that way too. And this forum has ignore feature, although personally I've never used it on any site except Twitter. Agree with the suggestions for mental health intervention, assuming we aren't dealing with a troll. Something seems not right, for sure. And in addition to adding to confusion for newbies, this type of series of posts present a bad first impression for the forum.

Post Edited (Steve Smith) : 8/18/2018 6:20:30 PM (GMT-6)

Posted 8/19/2018 12:36 AM (GMT 0)
Ok I was out of line ..just frustrated bad can I delete this somehow ...sorry again
Posted 8/19/2018 12:38 AM (GMT 0)
Stan. you've said sorry before. if you're really sorry just stop it.
Posted 8/19/2018 1:36 AM (GMT 0)
Stan as much as I wish there was something I could say or do for you there isn't.
Get a grip on yourself and look around at some of the guys that are way beyond you in suffering. You should be ashamed of yourself.

Ever hear the story of the guy that was so into self pity because he had no shoes until he saw a man that had no feet?

May you be well, may you come to terms with the reality of your condition.

Roger
Posted 8/20/2018 3:45 PM (GMT 0)
I had HT plus radiation for my 4+3 tumor two years ago. I have a prior history of BPH for which I was taking Flomax. Post RT, I have occasional leaking where I think I am done urinating, but I have a dribble after I put it away. This is usually at night. I also had the feeling that I needed to go, but then very little urine came out. This has resolved itself. I occasionally have a "bowel emergency" that may be due to radiation, or maybe just nerves. I have a lot of anxiety, for which I take Sertraline, and see a therapist.
Every little jog in the PSA, which is characteristic when you don't get the prostate removed, and I go over the edge. So in that respect, perhaps I would have been better off having the surgery (but that scared the crap out of me, too. I also have a prior DVT, and had a Vena Cava filter. Pelvic surgery is supposed to increase the risk of DVT or PE.)

Now my wife's cousin had his prostate removed followed several years later by SRT. It burned his urethra to the extent that he had to have an artificial sphincter put in. First he couldn't pee, then he couldn't stop.
Posted 8/20/2018 4:37 PM (GMT 0)
Side effects from SRT are normally much more significant than when radiation is used as the primary treatment to the prostate. They can not be directly compared.

The SRT side effects are the reason men should very carefully assess surgery as a primary treatment. If there is enough of a probability of needing SRT, then generally surgery should not be used as a primary treatment. That was, in fact, my situation.
Posted 8/20/2018 8:40 PM (GMT 0)
My RO, told me that the chance of LONG TERM side effects as a result of SRT are 1%. An RO at Cleveland Clinic told me 5%.
I believe that they both believe what they are saying to be true. I am not so sure they are right though. How do they come up with these numbers. Do they follow their patients for years afterwards? i think in most cases after a year or two they release them to their urologist.
And from what i see here (granted there is selection bias), many men do have some kind of side effects longer term, even if low level.

I sure do hope i am wrong. Maybe its the new machines they use at these institutions (which my MSKCC RO and the Cleveland Clinic RO both alluded to)
Posted 8/21/2018 2:54 AM (GMT 0)
What r u saying the new machines are not that accurate
Posted 8/21/2018 3:11 AM (GMT 0)
No, the newer machines are more accurate. SRT (salvage RT) after the prostate has been removed can have more side effects because there is no prostate to shield other tissues from the RT. Also without a prostate targeting the beam becomes more difficult.

RT before surgery has the advantage of partly shield bowels and with the placement of gold markers the machine can better target the prostate and avoid other tissues.
Posted 8/21/2018 5:34 AM (GMT 0)
Stan.. it's perfectly alright to hate this darn disease and what it does to you, there are no good cancers as I'm sure you saw when you were getting treatment. I saw a lot of guys that were getting radiation after surgery I was one of them so I can't personally say one treatment is better than the other as I have had both and am experiencing some not very nice se's. One thing that was stressed at the hope lodge where I stayed is yes cancer sucks but there is hope and over the many years they have experience a lot of people who have had pretty good success and a few that haven't. and that's not for us to know. But for yourself try to vent your frustration into believing that there is hope and that way you can tell your darn cancer that even tho SE's suck I'm in control here and I'm gonna defeat you Prostate Cancer and even tho it may take a while there is always hope!! Keep your head Hi and keep fighting!!

Larry
Posted 8/21/2018 11:32 AM (GMT 0)

Stan1961 said...
What r u saying the new machines are not that accurate

No I’m saying my RO told me 1% chance of LONG TERM side effects, despite the issues I read about.
And maybe that’s due to the newer machines they use
✚ New Topic ✚ Reply
12