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Posted 3/4/2019 3:17 AM (GMT 0)
Hi,
I was diagnosed on Feb. 6th after a CT, Bone scan MRI and Biopsy ( 11 of 12, 2- 9(4+5), 7- 8(4+4) and 3 - 7(4+3). Gleason 9.
Had my first shot at Mayo Phoenix ( Feb. 6th ) with Zytiga & Predinsone ( 2 weeks on the pills at this time ) with the Lupron starting on March 6th. I do exercise and have basically an Organic diet.
Question: What should I expect as normal side effects?
Any other suggestions and help would be appreciated.
JLP73
Posted 3/4/2019 4:18 AM (GMT 0)
Welcome, JLP73. Sorry to hear about your diagnosis.

I don't have experience with Zytiga and Prednisone, but I'm sure others who do will be along shortly. The East Coasters may not see your post till morning, so patience.

If you look a few posts down on the list, you'll see a thread titled "The Gleason 9 and 10 Crew." You might want to browse the thread (it goes back years, now on Part 4) for info on side effects. Maybe even post there and introduce yourself to the crew.
Posted 3/4/2019 12:40 PM (GMT 0)
There is also an ongoing recent thread titled ZYTIGA: Our Collective Experiences
Posted 3/4/2019 5:00 PM (GMT 0)
Welcome to HW, sorry you need to be here.
Posted 3/4/2019 6:30 PM (GMT 0)
JLP73,

Welcome to HealingWell and sorry that you have had to join our group. Sorry we have not been able to provide you much information thus far. There is another group dedicated to the G9 & 10 guys. I think some of them will respond later today and can probably give you a lot more information.

Best of luck on your treatment Journey,

Perry
Posted 3/4/2019 6:45 PM (GMT 0)
Sorry to see you here. You are receiving the same treatment I am. It is great that you exercise and eat well. Everyone has a different reaction. For example I have gotten the "Lupron Flu" after every shot. Did you? Wait, what shot did you have in February? So, about 2-4 days after the shot I felt very weak and extremely tired. Slept 11+ hours. Then the day after I am back to working out. The links listed above are very helpful. I still have "bad days" every week to 10 days. A night where I sleep poorly and in the a.m. I can't get out of bed. I'll be foggy all a.m. if not the whole day. But then back to good the next day. I have learned to live with that. I'm in the zero club so all is good. Feel free to ask a bazillion questions. Everyone is very helpful here.
Posted 3/4/2019 7:00 PM (GMT 0)
Welcome to our community, although I'm sorry you need to be here. The hormone therapy essentially made me feel old and creaky--particularly the longer I was on it. But diet and exercise help a lot with that, so you might be ahead of the game there. Most guys get hot flashes, which can get kind of tiresome after a while. That said, the SEs are debilitating, just bothersome. And hopefully, you'll get some breaks in the treatment.

Regarding Zytiga and prednisone, I had some liver inflammation from it--I was getting monthly blood draws for the doctor caught it right away. We played around with the dose for a few months and ended up cutting it in half and that was fine.

Good luck to you and I hope we can be of help!
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