Regarding your recovery of Testosterone after ADT....
I was on short term (about 6 months) and have recovered fully - 26.7% - 4 votes
I was on long term ADT (about a year or more) and have fully recovered - 13.3% - 2 votes
I was on short term ADT and recovered partially but not back to pre-adt levels - 13.3% - 2 votes
I was on long term ADT and recovered partially but not back to pre adt levels - 40.0% - 6 votes
I was on short term ADT and never got back above castrate levels - 6.7% - 1 votes
I was on long term ADT and never got back above castrate levels - 0.0% - 0 votes
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 3/7/2019 11:22 PM (GMT 0)
I’m replacing the locked thread with this, my bad.....
I thought this would be a poll of interest to some. Certainly to me, i am pretty sure to others as well. How long did it take for your T to recover.
I am only a few weeks out of ADT, so my result doesnt mean much yet, and as has been documented here already, at a pathetic T level.
Since only those who vote can see the poll results, and many here are just starting on the ADT journey and would be interested, I’ll vote, so I can see the results and post them every few days
Again, apologies to JNF and others who took the time to respond. Hope you will vote and respond to this one,
InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 3/7/2019 11:37 PM (GMT 0)
there's no option for, "Never been on it and can't respond."
I'd like to be supportive, but I don't have experience with this. Just wanted you to know that I wasn't ignoring you - just didn't have anything to say.
Sr Sailor
Veteran Member
Joined : Sep 2015
Posts : 1483
Posted 3/8/2019 1:28 AM (GMT 0)
I really don't know my pre-treatment T level, but I do know that my T recovered to a reasonable extent considering my age. And I am feeling about the same as before I got the bad news. Hence, no complaints
Michael_T
Veteran Member
Joined : Sep 2012
Posts : 4103
Posted 3/8/2019 1:33 AM (GMT 0)
Pre-treatment, my T was in the 300s. Post treatment it was in the 100s for a while and after five years it's finally clawed itself back into the 200s.
F8
Veteran Member
Joined : Feb 2010
Posts : 5892
Posted 3/8/2019 2:12 AM (GMT 0)
don't know my pre-treatment T level but I was on Lupron for nine months and within a year after the last 3-month shot my T level was in the 600s.
trailguy
Veteran Member
Joined : Jul 2015
Posts : 941
Posted 3/8/2019 11:52 AM (GMT 0)
2&1/2 years on leuprolide chemo, 2&1/2 years to 'recover' as much as I have. 1 dead testicle, testosterone initially bounced up to 320, but then crashed. Now it hovers around 200. I got nothing compared to before.
SantaZia
Regular Member
Joined : May 2018
Posts : 131
Posted 3/8/2019 12:02 PM (GMT 0)
P of course it will be different for everyone. I just got my T-Tot results at 440, 3 months out of 6 months on Lupron. Treatment ended Nov. 28, 18. It was 886 in May 15,18. My Libdo is still low but starting to have some interest and have erections at night. I had my GP provide a standard blood test order with both T test and full blood workup. So when I go in I can get the full spectrum results. My radiation oncologist was only interested in my PSA which is down to .04.
---
69 yrs., marathon runner, 44 3D-CRT/IMRT Radiation delivered via 3D-CRT in 1.8 Gy minimum dose fractions to a total of 79.2 Gy., 3.2.19 PSA .04 T.Tot 440, 10.5.18. PSA .012, 8.12.18, 1.42 June 18, 2018 (Lupron 5.21.18 & 8.15.18), 12.7 May 2018, 13.7 Jan. 2018, 2.1 May 2012. SpaceOar 9.6.18, testosterone <.7, 8.15.18, Tot Mayo 19 ng .17 testosterone Free 6.18.18, Gleason 3+4=7 involving 15% of the right apex and 15% of the right mid, 3+3=6 prostate cancer involving 5% of the left base. Pathology interpretations by John Hopkins, UNM Cancer, and SF Path 3+4=7 or 4+3=7 MD Anderson Proton Center w/o %. T3 MRI w/ contrast 1.8 lesion left side 5P, Neg. Bone Scan. Prolaris test 3.5 consistent with intermediate and a PTEN test negative. Father PC age 78 RT & ADT now 94 yrs.
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 3/8/2019 2:16 PM (GMT 0)
So far it looks like results are all over the place, as expected. I’ll post the poll numbers at the end of the day today, hopefully we’ll get some more responses
RobLee
Veteran Member
Joined : Apr 2017
Posts : 1490
Posted 3/8/2019 2:25 PM (GMT 0)
I would be interested in seeing the actual poll results, however I am "only" eight months out from Lupron. My final injection was fourteen months ago, but my T is still only around ten. I won't break the rules and vote unless you say it's okay to do so.
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 3/8/2019 2:44 PM (GMT 0)
Rob i’ll Post tonight, and again over the next few days at least
Skypilot56
Veteran Member
Joined : Mar 2017
Posts : 1456
Posted 3/8/2019 3:25 PM (GMT 0)
Ken maybe in a year from now might be able to answer your poll right now still on lupron and the big T is less than 4 along with everything else!
Larry
Redwing57
Veteran Member
Joined : Apr 2013
Posts : 2827
Posted 3/8/2019 4:48 PM (GMT 0)
My baseline testosterone was 440 ng/dL. Normal range for about an 84 year-old old, but I was "only" 55.
Three long years of ADT2, Lupron + Casodex, "released" (end of effective period) in March 2016.
Baseline - 440 ng/dL
ADT 5/2013 - 3/2016, T was <10
Recovering:
May 2016 - 132 (in just 2 months, well above "castrate" level)
Aug 2016 - 290 (in 6 months, normal already)
Dec 2016 - 350
Mar 2017 - 544
Oct 2017 - 709
Oct 2018 - 443
I think the interim "high" level in 2017 was due to my system not fully metabolizing the testosterone that was being produced again.
The Oct 2018 level is the same as my baseline. After 3 years of no testosterone, I was surprised how quickly mine recovered. The boys didn't regain any size, they're still maybe 1/4 of baseline. But somehow they crank out testosterone.
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 3/8/2019 7:37 PM (GMT 0)
Jerry, that’s a huge win, very quick recovery.
Blackjack
Veteran Member
Joined : Sep 2017
Posts : 805
Posted 3/8/2019 9:07 PM (GMT 0)
InTheShop said...
there's no option for, "Never been on it and can't respond."
I'd like to be supportive, but I don't have experience with this. Just wanted you to know that I wasn't ignoring you - just didn't have anything to say.
Lol...Your posts remind me of Purgatory's...he actually went in to his signature and wrote this:
"Not sure what became of my signature? Didn't realize it disappeared." At first I thought it was created with a
creative and understated sense of humor (hilarious); but now I'm convinced it was complete cluelessness...
Fl Drifter
Regular Member
Joined : May 2016
Posts : 404
Posted 3/9/2019 4:52 AM (GMT 0)
a warm S. Fl hello to all....hee hee hee...had to do it ........well....its been a little over 2 years since my 6 month lupron shot ...took about a year to get my T back in the 500 range and now im at about 650....70 yrs old and things are getting back to normal after the 45 rounds of IGRT....so far so good ....keep te faith .....David
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 3/9/2019 2:17 PM (GMT 0)
For those not fitting parameters to vote, Here are the results as of Saturday morning, 9:15 EST...
Regarding your recovery of Testosterone after ADT....
I was on short term (about 6 months) and have recovered fully - 20.0% - 2 votes
I was on long term ADT (about a year or more) and have fully recovered - 20.0% - 2 votes
I was on short term ADT and recovered partially but not back to pre-adt levels - 10.0% - 1 votes
I was on long term ADT and recovered partially but not back to pre adt levels - 40.0% - 4 votes
I was on short term ADT and never got back above castrate levels - 10.0% - 1 votes
I was on long term ADT and never got back above castrate levels - 0.0% - 0 votes
Artist Mark
Regular Member
Joined : Apr 2016
Posts : 430
Posted 3/9/2019 11:17 PM (GMT 0)
Will.be getting my blood work done this coming week. Last result was T 87. PSA 0.06. I was on 18 months Lupton last 4 month shot was Aug 2017 so it's 15 months from ADT release.
NolaVette
Regular Member
Joined : Oct 2011
Posts : 164
Posted 3/19/2019 11:27 PM (GMT 0)
Hey Ken.......My baseline on July 19, 2016 was 243. I received one 6 month injection of Eligard (Lupron) on that same day. Less than a month later (August 15, 2016) I was sitting at 30. It took me a full year for the effects of the stuff to wear off to the point where I was feeling normal again. Hoping I never have to endure that experience again!
-9-19-2016 TST at 30
-12-12-2016 TST at 34
-3-22-17 TST at 291
-10-2-2017 TST at 294
-12-11-2017 TST at 206
-7-16-2018 TST at 341
-11-12-2018 TST at 419
-3-18-2019 TST at 318
Update: Latest testosterone result added.
I'll receive my latest TST score a week from today, unless it's posted on the patient portal sooner. I did recive my latest PSA result which is <0.01.
Pratoman
Forum Moderator
Joined : Nov 2012
Posts : 9890
Posted 3/22/2019 9:10 PM (GMT 0)
Here’s an update on results for those interested who can’t see results due to not voting...
I was on short term (about 6 months) and have recovered fully - 28.6% - 4 votes
I was on long term ADT (about a year or more) and have fully recovered - 14.3% - 2 votes
I was on short term ADT and recovered partially but not back to pre-adt levels - 7.1% - 1 votes
I was on long term ADT and recovered partially but not back to pre adt levels - 42.9% - 6 votes
I was on short term ADT and never got back above castrate levels - 7.1% - 1 votes
I was on long term ADT and never got back above castrate levels - 0.0% - 0 votes